Cancerversary 7 years NED since stage 4

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ranger
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Cancerversary 7 years NED since stage 4

Postby ranger » Thu Aug 11, 2016 10:29 am

Hi everybody, it's been 7 years since my liver resection at Johns Hopkins and adjuvant at Georgetown Lombardi. I'm throwing a party (in New Mexico, aka NEDville)
I hope you're encourages by my survival.
your friend,
AMY
(strange ranger)
ps only check the link -- my party invitation -- if you're okay with the F-bomb
https://m.facebook.com/story.php?story_ ... 2100303900
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.
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NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: Cancerversary 7 years NED since stage 4

Postby NedPlease » Thu Aug 11, 2016 12:56 pm

Happy Cancerversary!!! Wishing you many more :D
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED
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sadysue
Posts: 986
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Cancerversary 7 years NED since stage 4

Postby sadysue » Thu Aug 11, 2016 2:44 pm

What wonderful news. Thank you for sharing and Happy Cancerversary to you! :D
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED
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Ffac2016
Posts: 22
Joined: Mon Aug 01, 2016 12:42 pm

Re: Cancerversary 7 years NED since stage 4

Postby Ffac2016 » Thu Aug 11, 2016 2:59 pm

ranger wrote:Hi everybody, it's been 7 years since my liver resection at Johns Hopkins and adjuvant at Georgetown Lombardi. I'm throwing a party (in New Mexico, aka NEDville)
I hope you're encourages by my survival.
your friend,
AMY
(strange ranger)
ps only check the link -- my party invitation -- if you're okay with the F-bomb
https://m.facebook.com/story.php?story_ ... 2100303900


Wow what a blessing! Congrats! I am praying for the same results for my sister who was recently diagnosed with Stage IV CC. Have fun at your party!
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DarknessEmbraced
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Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Cancerversary 7 years NED since stage 4

Postby DarknessEmbraced » Thu Aug 11, 2016 4:11 pm

Wonderful news! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Cancerversary 7 years NED since stage 4

Postby Ron50 » Thu Aug 11, 2016 4:39 pm

Hugs ranger , party on. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
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Felicitym23
Posts: 32
Joined: Sun Jan 24, 2016 2:37 am
Facebook Username: Felicity Malyszko

Re: Cancerversary 7 years NED since stage 4

Postby Felicitym23 » Thu Aug 11, 2016 11:53 pm

I love reading posts like this.

Congratulations and wish you many many more years of NED.
47yrs and mother to a 12 year child with autism
Cancer confirmed 9/23/15
Ext right hemicolectomy 10/13/15
35 Lymph nodes & 6 cancer told Stage 3C.
Nov 15 Oxy, Leucovorin, Flurourcil
CT and PET Scan told that cancer was now in abdo & neck lymph nodes.
STAGE 4 told two days before Christmas 2015.
Oxy, Leucovorin, Flurourcil & Panitumumab
MARCH 2016 NED - currently in remission. Stage 4.
After 3 sessions of Vectibux.
PET & CT SCAN July 16 - Still NED but still on chemo and Vectibix.
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missNiki
Posts: 1
Joined: Fri Jan 22, 2016 9:36 pm

Re: Cancerversary 7 years NED since stage 4

Postby missNiki » Sat Aug 13, 2016 8:04 pm

Congratulations and hoping for many more!

This gives me hope. I was just told I have liver mets and I start FOLFOX on Aug 24....hoping for a resection after that....
Female 55
DX: RC (Invasive adenocarcinoma)
Lower rectum / sphincters
TNM: T3N1M0
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AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: Cancerversary 7 years NED since stage 4

Postby AussieAssCancer » Sun Aug 14, 2016 6:19 am

Fucking BOOM! Have a tequila for me and I will have one for you in a couple weeks when I finish chemo :D
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/
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cecioboe
Posts: 597
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Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Cancerversary 7 years NED since stage 4

Postby cecioboe » Mon Aug 22, 2016 11:40 pm

Congratulations!!! And thank you for sharing.
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16
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Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Cancerversary 7 years NED since stage 4

Postby Pita » Tue Aug 23, 2016 12:11 am

Fantastic! Congrats!!!
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin
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mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Cancerversary 7 years NED since stage 4

Postby mariane » Tue Aug 23, 2016 8:29 am

Congrats! Thank you for giving us hope!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!
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AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Cancerversary 7 years NED since stage 4

Postby AnnClare » Tue Aug 23, 2016 11:47 am

Congratulations!!! This is such awesome news & I'm so happy for you. Party like a rock star!!! :)
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17
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dianetavegia
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Cancerversary 7 years NED since stage 4

Postby dianetavegia » Fri Sep 30, 2016 3:04 pm

http://link.springer.com/article/10.1245/s10434-014-4234-0/fulltext.html You're cured, if you go by this 2015 paper!

Congrats on 7 years!
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
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Nik Colon

Re: Cancerversary 7 years NED since stage 4

Postby Nik Colon » Fri Sep 30, 2016 3:32 pm

Awesome! Congrats!
(Sorry, I must not have seen it the when first posted)
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