Tough Decisions

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Tough Decisions

Postby BrownBagger » Tue Aug 09, 2016 7:17 am

I'm kind of at a crossroads in my journey with this disease. I think it could go either way. I have a recurring tumor in my bronchial tract that's come back once. My thoracic surgeon thinks he got it all last time and says, which I find hard to believe, that he doesn't think it will come back. Hope he's right. If not, I still have chemo and radiation options. And then, ultimately, there are new treatments on the horizon that might provide some help. The rest of my disease--a few lung mets and a suspicious lymph node--are all stable, just waiting on some of that sweet immunotherapy.

So, I don't know how much longer I have on the planet. No clue. Going on eight years since dx, I continue to be optimistic.

Chemo doesn't do your teeth any favors, and I've had my share of both chemo and dental issues. Last year my dentist recommended about $20,000 worth of work, hopefully resulting in a movie star smile, that I agreed to have done. I saved up my freelance income and today I'm going in to get my lower teeth done. She's either going to do crowns or veneers or some combination of the two. She's an outstanding dentist, so, just like with my doctors, I trust her judgement and skill and will do whatever she recommends.

It's certainly occurred to me that I could simply live with degraded/degrading teeth and save my money, since I may not be around much longer to benefit from the investment. But since one of my mottos has always been, "Win, lose or draw, I'm going to do it with a smile," I think it's only fitting that I do it with a 20 Grand smile.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

DarknessEmbraced
Posts: 3376
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Tough Decisions

Postby DarknessEmbraced » Tue Aug 09, 2016 8:35 am

I hope that your bronchial tract tumor doesn't come back and that your dental surgery goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Bob_Weiss
Posts: 742
Joined: Sun Apr 11, 2010 11:23 am
Location: Brooklyn, NY

Re: Tough Decisions

Postby Bob_Weiss » Tue Aug 09, 2016 8:41 am

Look upon this dental work as a kind of psychotherapy. The latter is equally expensive, and you do not end up with an improved smile.
Stage 3 R/C -1 node+ ( 7/09)
5 wks radiation, 2 wks chemo: 5FU (8-9/09)
Rectal surgery: tumor removal (11/09)
10 rounds Xeloda: 3000mg/daily 1 wk on/1 wk off (1/10-6/10)
Supplements: Aspirin, Calcium, Vit. D3
03/27/17: 7+ yrs. since surgery--still NED

Soccermom2boys
Posts: 212
Joined: Tue Nov 10, 2015 10:29 pm

Re: Tough Decisions

Postby Soccermom2boys » Tue Aug 09, 2016 9:52 am

I feel you with the dental work! I was only on four months of FOLFOX and when I went to the dentist a month after my last round, I walked out needing two fillings, one root canal, and a tooth extracted and therefore a bridge to cover the opening. I do like my sweets, not going to lie, but I was being extra vigilant while on treatments with the brushing, flossing, and rinsing, etc. I think your $20k is absolutely worth it, you're planning on hanging around for a while right?! Now that you have a daughter getting married that means grandkids in the near future--you want that pearly white smile for them! :lol:
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Tough Decisions

Postby chrissyrice » Tue Aug 09, 2016 10:16 am

:D :mrgreen: :D
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

aja1121
Posts: 214
Joined: Sat Jun 28, 2014 5:12 pm

Re: Tough Decisions

Postby aja1121 » Tue Aug 09, 2016 10:19 am

I like your style! :D
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died

sadysue
Posts: 985
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Tough Decisions

Postby sadysue » Tue Aug 09, 2016 10:30 am

Your upbeat attitude is better than a strong cup of java in the morning! Thank you! Best wishes for a successful outcome on all pending issues :-)
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

ams5796
Posts: 2297
Joined: Fri Feb 06, 2009 10:07 am

Re: Tough Decisions

Postby ams5796 » Tue Aug 09, 2016 10:50 am

Money well spent! You deserve it.


I have a call into my dentist right now. :cry: Gee, I haven't seen him in a couple of months!




Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: Tough Decisions

Postby Hapa » Tue Aug 09, 2016 1:30 pm

These decisions are so gut renching. I hope it hasn't come back. But, if it does it sounds like you have options. I wish I had some brilliant input-you have been invaluable in sharing information.

Dh had several cavities after just 6 rounds of folfox (and 1 root canal). Since he has just had recurrence I guess he will be having more chemo.

Is that area visable with a ct -or do they have to scope?
DH Stage 3 RC

peanut_8
Posts: 2334
Joined: Sun May 25, 2014 1:31 pm

Re: Tough Decisions

Postby peanut_8 » Tue Aug 09, 2016 2:11 pm

I like this quote of yours Eric.

But since one of my mottos has always been, "Win, lose or draw, I'm going to do it with a smile," I think it's only fitting that I do it with a 20 Grand smile.

Here's to your new smile and good health.

Image

Best Wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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juliej
Posts: 3049
Joined: Thu Aug 05, 2010 12:59 pm

Re: Tough Decisions

Postby juliej » Tue Aug 09, 2016 3:51 pm

BrownBagger wrote:But since one of my mottos has always been, "Win, lose or draw, I'm going to do it with a smile," I think it's only fitting that I do it with a 20 Grand smile.

AMEN, BB! Flash those pearly whites as you say f*ck cancer!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

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muskokamike
Posts: 224
Joined: Tue Feb 25, 2014 4:38 pm

Re: Tough Decisions

Postby muskokamike » Tue Aug 09, 2016 6:46 pm

"Live your life like it's going to be a long one, because it just might, and then you'll be glad you did"....... fix them teeth.
Last edited by muskokamike on Tue Aug 09, 2016 7:30 pm, edited 1 time in total.
53M Dx rc10/31/13
WTF!
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kicknasscancersass.blogspot.com/

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WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Tough Decisions

Postby WriterGirl1969 » Tue Aug 09, 2016 6:51 pm

BrownBagger wrote:I'm kind of at a crossroads in my journey with this disease. I think it could go either way.


BB, I think one of the things I've always noted and admired about you is your courage, your outlook and your perseverance. I've seen you tell others that your goal is to stay alive long enough to benefit from the new treatments coming out. Hearing your words gives me a kick in the A$$ when I sometimes need it. Just wanted you to know that. So here's some song lyrics that your post made me think of.

Hugs and Prayers from me to you.
--Tracy

Don't start doubting now, God's never gonna let you down
Don't let fear and worry rob you of the joy you've found
Just look how far you've come, everything God has saved you from
You're too close to home to turn around, don’t start doubting now

When burdens get a hold on you, you reach for faith to hold on to
But, this time you can’t take it any longer
You say this trial's the worst one yet
But God's still there, so don't forget
The times He's brought you through and made you stronger

Don't start doubting now, God's never gonna let you down
Don't let fear and worry rob you of the joy you've found
Just look how far you've come, everything God has saved you from
You're too close to home to turn around, don’t start doubting now

Don't you remember when, in the middle of a raging wind
Peter stepped out on the stormy water
His eyes were on his Master’s face, but he got scared and looked away
And that kept him from going any further

Don't start doubting now, God's never gonna let you down
Don't let fear and worry rob you of the joy you've found
Just look how far you've come, everything God has saved you from
You're too close to home to turn around, don’t start doubting now

God understands the words you're not saying
Don’t question if he hears the praying

Don't start doubting now, God's never gonna let you down
Don't let fear and worry rob you of the joy you've found
Just look how far you've come, everything God has saved you from
You're too close to home to turn around, don’t start doubting now
You’rE too close to home to turn around, don’t start doubting now

---The Dunaways. Dunaway Music LLC, copyright 2016
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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CRguy
Posts: 10035
Joined: Sun Feb 10, 2008 6:00 pm

Re: Tough Decisions

Postby CRguy » Tue Aug 09, 2016 7:46 pm

Yeah fine ......
BUTT how many new drones would that buy ? :shock: :shock: :shock:
:mrgreen:

you know I gotchur' back here bro'
just joking

DO
what it is you need to DO

BE
who you need to BE

'COS that makes you who YOU are
and it has always worked for you
and we be digging' you for it

WORD

Harmony on the Journey
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Tough Decisions

Postby Pita » Tue Aug 09, 2016 8:12 pm

Good choice! I had veneers done some years ago and it was one of the best decisions I ever made.
My best wishes to you (((BB)))
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin


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