I'm scared and want to cry. We worked so hard to get to the HAI pump and dr kemeny.
In June cea was 129.
Then we had pump placement AND colon resection to remove the primary. They said biopsy showed the primary still alive. Liver tumor biopsies showed mostly or all dead. So we thought cea taken a week and a half after surgery would be lower. It wasn't...came in at 332. But the scan came in showing no change in liver and now a totally clear abdomen...and that was with over a month of no chemo.
We had one full month with FUDR and systemic. Are back in NYC today and cea is 469.
We don't get it. We called dr kemeny this evening and they said they are following it and don't need to order any other tests. Earlier today, she said she thinks I have tumor fever but didn't explain what that is. As I understand it....it could be due to tumor growth or tumor death.
We come back in Sept for treatment and scan.
Anyone else have this happen with hai pump?