Is deaccess on day 5 rather than 3 a problem?

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Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Is deaccess on day 5 rather than 3 a problem?

Postby Steph20021 » Fri Jul 29, 2016 10:01 am

Im having folfori treatment on friday the 13th with deaccess scheduled on the sunday but would it be a problem keeping the bottle on and empty until Tuesday? I want to be out of town at a family members cottage and just want to deaccess when I get home. I will sdk my team but do you guys see any problem with that? I have a port.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Re: Is deaccess on day 5 rather than 3 a problem?

Postby mom_2_3 » Fri Jul 29, 2016 1:26 pm

Steph,

Not sure about whether deaccess would be appropriate for day 5 but did want to mention that my husband always removed my port needle after the 5FU was finished. Basically he would clean the area, run alcohol and heparin through the line and then simply remove the needle from the port. Took him 4-5 minutes to do so. Perhaps this could be an option for you? It was very simple and apparently something many of my doctor's patients did as they had pre-packaged deaccess bags (with alcohol wipes, alcohol and heparin syringes).

Amy
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Is deaccess on day 5 rather than 3 a problem?

Postby midlifemom » Fri Jul 29, 2016 2:53 pm

Steph, not a medical opinion, butt i would think the longer the port is accessed, the greater the chance for infection. Not something i would take a chance on. I generally deaccess myself at home, takes just minutes, and center gives me the supplies to do so.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Is deaccess on day 5 rather than 3 a problem?

Postby Steph20021 » Fri Jul 29, 2016 4:01 pm

Thanks ladies. Maybe I'll try and move it up a day and deaccess Saturday and leave for cottage after the Saturday access.

I had my first infusion today I'm home with bottle feeling so nauseas. I forgot how icky it feels. And I'm feeling scared and overwhelmed. It's going to be ok though right? Everything is going to be ok I keep telling myself.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Is deaccess on day 5 rather than 3 a problem?

Postby Bev G » Fri Jul 29, 2016 6:48 pm

It is safe to be accessed for 7 days. When one is in the hospital and connected, they just change the needle every seven days.

HTH

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Is deaccess on day 5 rather than 3 a problem?

Postby midlifemom » Fri Jul 29, 2016 8:36 pm

Steph20021 wrote:Thanks ladies. Maybe I'll try and move it up a day and deaccess Saturday and leave for cottage after the Saturday access.

I had my first infusion today I'm home with bottle feeling so nauseas. I forgot how icky it feels. And I'm feeling scared and overwhelmed. It's going to be ok though right? Everything is going to be ok I keep telling myself.


Yes, its going to be ok. Someone once told me that - doesnt matter the outcome, its ok, cause its how things are supposed to turn out.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Is deaccess on day 5 rather than 3 a problem?

Postby Steph20021 » Sat Jul 30, 2016 5:55 am

Thanks Bev, I remember the nurse saying its a closed system nothing can get in. It seems to be safer to avoid issues than having a pic.
Midlifemom, I like that saying. I should post that on the mirror.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


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