Update on my husband Ron!

[Rob in PA]

Best wishes for ron . Hopingfor good news tomorrow

[Pita]

Good Luck to Ron and you... Hope all turns out well for the pills.

[ronswife]

What do you mean I have the bleeding and clots reversed, Nik Colon?

[Nik Colon]

What do you mean I have the bleeding and clots reversed, Nik Colon?

From what I know/read. The meds and bleeding or clots seem to be opposite from the one you mentioned causing them. Afaik, the Xeloda could cause clots and the Avastin the bleeding.
But, I could be wrong

[ronswife]

Thanks, Nik, we will speak with his onc today!

[Nichoebe]

Hopefully he won't have issues with capacitabine I take
5,000 mg a day in two week cycles actually tomorrow is my last cycle of six months yay but the most issues is fatigue other than that no side effects that are that bad a little diarrhea some lack of appetite and the fatigue
Good luck to Ron I hope he does well

[Nichoebe]

Hopefully he won't have issues with capacitabine I take
5,000 mg a day in two week cycles actually tomorrow is my last cycle of six months yay but the most issues is fatigue other than that no side effects that are that bad a little diarrhea some lack of appetite and the fatigue
Good luck to Ron I hope he does well

[ronswife]

Hopefully he won't have issues with capacitabine I take
5,000 mg a day in two week cycles actually tomorrow is my last cycle of six months yay but the most issues is fatigue other than that no side effects that are that bad a little diarrhea some lack of appetite and the fatigue
Good luck to Ron I hope he does well

WOW! You are on a VERY high dose and you haven't had a lot of debilitating side effects. Ron will be on 1,000 mg per day. Good for you!

PRAYING Ron does well with this drug too!! Thanks for your input!

[Nichoebe]

Hello I just wanted to mention that Xeloda or capacetabine is calculated by body mass I'm 6'2" and 240lbs so I take 2500 mg twice a day for 5000 mg total per day when I took it with radiation it was less 4000 mg per day but this time it started at 6000 mg a day but I had horrible neuropathy in my feet and hands so my oncologist knocked it down to 5000 mg and as I said in my last text I've had very little side effects my main thoughts as far as your husband Ron goes is why he's only taking 1000 mg a day that's so low a dose as it goes by body size it just strikes me as odd maybe question oncologist as to how he comes up with that dosage
Hope this helps
Mike

[ronswife]

Hello I just wanted to mention that Xeloda or capacetabine is calculated by body mass I'm 6'2" and 240lbs so I take 2500 mg twice a day for 5000 mg total per day when I took it with radiation it was less 4000 mg per day but this time it started at 6000 mg a day but I had horrible neuropathy in my feet and hands so my oncologist knocked it down to 5000 mg and as I said in my last text I've had very little side effects my main thoughts as far as your husband Ron goes is why he's only taking 1000 mg a day that's so low a dose as it goes by body size it just strikes me as odd maybe question oncologist as to how he comes up with that dosage
Hope this helps
Mike

I made an error when I posted that the dose would only be 1,000 mg per day. He is on FOUR 500 mg pills per day so that is 2,000 mg. His weight has dropped to 165, so that is likely why he is on a lower dose.

Thanks much everyone for your input and concern. I appreciate it much more than you will ever know!

[Lee]

Glad to hear things are improving for your husband. Especially glad to read about the clots disappearing.

All the best to both of you,

Lee

[ronswife]

Glad to hear things are improving for your husband. Especially glad to read about the clots disappearing.

All the best to both of you,

Lee

Thanks Lee! It's been a VERY long and HARD road!

[sun569]

I am new here, sadly, and just read your story and few other comments. I am sorry you are going through this, but am very happy for you both that he is doing so well! The power of prayers work ! Will pray for you both, and everyone else going through their illness as well.

[ronswife]

sun569,

Thanks! We will take and we NEED all the prayers we can possibly GET!!!!!!

[Sharon Brent]

Hi,
Thanks for the update, I can't offer any advise on medicines or the doses etc, but just know that Ron is always in my Prayers and I'm glad he has you there for him to help him through every day.

Love always Piyagarn