Update on my husband Ron!

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Rob in PA
Posts: 2005
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Update on my husband Ron!

Postby Rob in PA » Sun Jul 31, 2016 9:35 pm

Best wishes for ron :D. Hopingfor good news tomorrow
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Update on my husband Ron!

Postby Pita » Sun Jul 31, 2016 11:28 pm

Good Luck to Ron and you... Hope all turns out well for the pills.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Mon Aug 01, 2016 2:57 am

What do you mean I have the bleeding and clots reversed, Nik Colon?

:?:
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

Nik Colon

Re: Update on my husband Ron!

Postby Nik Colon » Mon Aug 01, 2016 3:38 am

ronswife wrote:What do you mean I have the bleeding and clots reversed, Nik Colon?

:?:

From what I know/read. The meds and bleeding or clots seem to be opposite from the one you mentioned causing them. Afaik, the Xeloda could cause clots and the Avastin the bleeding.
But, I could be wrong

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Mon Aug 01, 2016 2:21 pm

Thanks, Nik, we will speak with his onc today!

:?:
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: Update on my husband Ron!

Postby Nichoebe » Mon Aug 01, 2016 2:28 pm

Hopefully he won't have issues with capacitabine I take
5,000 mg a day in two week cycles actually tomorrow is my last cycle of six months yay but the most issues is fatigue other than that no side effects that are that bad a little diarrhea some lack of appetite and the fatigue
Good luck to Ron I hope he does well
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: Update on my husband Ron!

Postby Nichoebe » Mon Aug 01, 2016 2:28 pm

Hopefully he won't have issues with capacitabine I take
5,000 mg a day in two week cycles actually tomorrow is my last cycle of six months yay but the most issues is fatigue other than that no side effects that are that bad a little diarrhea some lack of appetite and the fatigue
Good luck to Ron I hope he does well
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Mon Aug 01, 2016 2:48 pm

Nichoebe wrote:Hopefully he won't have issues with capacitabine I take
5,000 mg a day in two week cycles actually tomorrow is my last cycle of six months yay but the most issues is fatigue other than that no side effects that are that bad a little diarrhea some lack of appetite and the fatigue
Good luck to Ron I hope he does well


WOW! You are on a VERY high dose and you haven't had a lot of debilitating side effects. Ron will be on 1,000 mg per day. Good for you!

PRAYING Ron does well with this drug too!! Thanks for your input!

:D
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: Update on my husband Ron!

Postby Nichoebe » Sun Aug 07, 2016 9:50 am

Hello I just wanted to mention that Xeloda or capacetabine is calculated by body mass I'm 6'2" and 240lbs so I take 2500 mg twice a day for 5000 mg total per day when I took it with radiation it was less 4000 mg per day but this time it started at 6000 mg a day but I had horrible neuropathy in my feet and hands so my oncologist knocked it down to 5000 mg and as I said in my last text I've had very little side effects my main thoughts as far as your husband Ron goes is why he's only taking 1000 mg a day that's so low a dose as it goes by body size it just strikes me as odd maybe question oncologist as to how he comes up with that dosage
Hope this helps
Mike
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Sun Aug 07, 2016 12:59 pm

Nichoebe wrote:Hello I just wanted to mention that Xeloda or capacetabine is calculated by body mass I'm 6'2" and 240lbs so I take 2500 mg twice a day for 5000 mg total per day when I took it with radiation it was less 4000 mg per day but this time it started at 6000 mg a day but I had horrible neuropathy in my feet and hands so my oncologist knocked it down to 5000 mg and as I said in my last text I've had very little side effects my main thoughts as far as your husband Ron goes is why he's only taking 1000 mg a day that's so low a dose as it goes by body size it just strikes me as odd maybe question oncologist as to how he comes up with that dosage
Hope this helps
Mike


I made an error when I posted that the dose would only be 1,000 mg per day. He is on FOUR 500 mg pills per day so that is 2,000 mg. His weight has dropped to 165, so that is likely why he is on a lower dose.

Thanks much everyone for your input and concern. I appreciate it much more than you will ever know!

:D
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: Update on my husband Ron!

Postby Lee » Sun Aug 07, 2016 1:57 pm

Glad to hear things are improving for your husband. Especially glad to read about the clots disappearing.

All the best to both of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Sun Aug 07, 2016 3:18 pm

Lee wrote:Glad to hear things are improving for your husband. Especially glad to read about the clots disappearing.

All the best to both of you,

Lee


Thanks Lee! It's been a VERY long and HARD road!

:)
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

sun569
Posts: 9
Joined: Fri Aug 05, 2016 12:27 pm

Re: Update on my husband Ron!

Postby sun569 » Mon Aug 08, 2016 8:16 am

I am new here, sadly, and just read your story and few other comments. I am sorry you are going through this, but am very happy for you both that he is doing so well! The power of prayers work ! Will pray for you both, and everyone else going through their illness as well.

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: Update on my husband Ron!

Postby ronswife » Mon Aug 08, 2016 10:57 am

sun569,

Thanks! We will take and we NEED all the prayers we can possibly GET!!!!!!

:)
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

User avatar
Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: Update on my husband Ron!

Postby Sharon Brent » Mon Aug 15, 2016 2:24 pm

Hi,
Thanks for the update, I can't offer any advise on medicines or the doses etc, but just know that Ron is always in my Prayers and I'm glad he has you there for him to help him through every day.

Love always Piyagarn
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: ginabeewell and 3 guests