Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Marylandmaniac
Posts: 234
Joined: Wed Jun 29, 2016 6:22 pm

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Marylandmaniac » Wed Jul 27, 2016 7:16 am

Congrats to you and thank you for sharing! I needed to read this today. I have not slept well and am crying because I may be facing the same thing. Reading your story and seeing how you have over come this gives me such hope. I too had a terrible experience with my first surgeon. Do some just think they are so perfect that they can't handle being questioned??? Luckily I have a surgeon I really like now.
DX 6/29/16 7 cm tumor, 10 cm fr av
CT scan ab,MRI abdomen - 9mm spot on liver,CT scan of chest lungs clear
Special staging MRI - clinical staging stage 3b - T3N2M0 (unless spot proves to be met)
8/11 PET scan - spot lit up not nodes
8/16 Port in, 8/17 liver microwave abltn - spot gone
8/23 6 rds FOLFOX started
PET scan 10-13 43% red of tumor and no mets shown
Exam tumor greatly reduced. Surgery 12-14-16.
Clear margins, 7 out of 13 nodes positive. Tumor 2.1 cm
Kras wild, MMS, not MSI. 6 more rds FOLFOX

Nik Colon

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Nik Colon » Wed Jul 27, 2016 5:56 pm

Congrats!

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby juliej » Wed Jul 27, 2016 6:05 pm

Cptmac, I never get tired of hearing your story! Thanks for coming back every year to tell it again. May you have a long and healthy life!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Ajane » Wed Jul 27, 2016 10:26 pm

Cptmac, Yes, in deed, thanks again for sharing your journey. It's the hope that you bring us each year that we need. Wishing you the absolute best for many, many years to come. Jane
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby BeansMama » Fri Jul 29, 2016 4:08 am

Congratulations and thank you for sharing your story! It gives me a lot of hope. I hope to reach NED one day, I refuse to give up.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby mom_2_3 » Fri Jul 29, 2016 1:28 pm

Cptmac,

Since I joined in 2008 you have always been an inspiration to me. I am so happy for you! I also discovered I had Stage IV on my birthday so I feel we have that in common. I am only 4 1/2 years behind you in Nedville. Best wishes to you now and always.

Amy
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby crazylife » Fri Jul 29, 2016 2:18 pm

DH just got his first clean scan 2 days ago. Hoping he is as blessed as you!
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

User avatar
mmblz
Posts: 58
Joined: Sat Oct 10, 2015 3:03 pm

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby mmblz » Fri Jul 29, 2016 8:22 pm

Thanks for posting your story. Read it in the hospital yesterday during a day of dumb worry and it brought a smile :)
40yo married 16 years. 4 kids 12, 10, 7, 5
2015-09-21 colonoscopy finds tumor in sigmoid, partial obstruction
2015-09-22 CT no mets, path G2 adenocarcinoma, CEA 1.2
2015-09-29 lap hemicolectomy at MSKCC
2015-10-06 pT3 N1a M0 stage IIIB
2015-10-22 folfox started - 12 rounds, last 4 no oxaliplatin
2016-10-27 clear CT !
2021-03-25 "cured"

User avatar
Rob in PA
Posts: 2005
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Rob in PA » Fri Jul 29, 2016 10:22 pm

Cptmac.....doing an extended happy dance for you long timer.! :D :D

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

stevieb
Posts: 407
Joined: Sat Feb 09, 2013 12:26 am

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby stevieb » Sun Jul 31, 2016 9:33 am

Awesome!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

mariane
Posts: 687
Joined: Sun Sep 13, 2015 6:16 pm

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby mariane » Sun Jul 31, 2016 10:22 pm

Cptmac, your post on Cancer Compass about metastases to the liver from crc brought me to Dr K, NY and colon talk. I am so very grateful. It was the first post about HAI pump I was able to find. You gave me good year with my family and hope for more.
Thank you again,
mom of now 12 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

User avatar
cptmac
Posts: 1195
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby cptmac » Fri Aug 05, 2016 10:35 am

Thank you all soo much for your kind comments. I feel so humbled by them and am soo grateful I am here to tell my story!!!

I wish everyone continued success with your journey and I look forward to celebrating your milestone cancerversary's!!!!
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

Travelgirl
Posts: 123
Joined: Sun Dec 20, 2015 4:17 am
Facebook Username: Jac gar
Location: Florida

Re: Happy 12 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Travelgirl » Fri Aug 05, 2016 10:05 pm

God Bless You.. What a wonderful inspiration you are. I pray you have many more to share with us...
Travel Girl
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 5 guests