Mini rant - continued hair loss.

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midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Mini rant - continued hair loss.

Postby midlifemom » Thu Jul 21, 2016 1:24 pm

I haven't had chemo for just over 4 weeks. We know the cancer is growing since it was growing when just on FU. Butt, the hair is still falling out! No fair thAt theres enough chemo still in me to cause hair loss, but its allowing the cancer to grow.
I was hoping for at least a few days of no hair loss before starting the evil drugs again.
Rant done.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

aja1121
Posts: 214
Joined: Sat Jun 28, 2014 5:12 pm

Re: Mini rant - continued hair loss.

Postby aja1121 » Thu Jul 21, 2016 1:54 pm

That sucks. Sorry. And yes, it would just be nice if things could be fair for once...
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Mini rant - continued hair loss.

Postby jhocno197 » Thu Jul 21, 2016 9:03 pm

:x
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

User avatar
CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: Mini rant - continued hair loss.

Postby CRguy » Thu Jul 21, 2016 9:31 pm

Givin' you, your rant creds here
it is yours .. OWN IT !!!!! :twisted:

( BUTT .... the hair loss is likely due to disruption of hair growth cycle in the follicles as a result of chemo ... SO even tho' there is no mo' chemo around, the follicles still need to reboot, go thru their growth cycle phases before they can sprout any new stubble for you.)

Like I said the rant is STILL YOURS sista' = OWN IT :twisted:

best wishes
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Soccermom2boys
Posts: 218
Joined: Tue Nov 10, 2015 10:29 pm

Re: Mini rant - continued hair loss.

Postby Soccermom2boys » Thu Jul 21, 2016 10:38 pm

By all means, rant away! If you can't rant here about this kind of stuff then where else can you?! My heart is aching for you as I just finished eight rounds of Folfox and so my already thin hair feels even more thin than I ever thought possible! It really does suck that having cancer alone is enough to wrestle with and then to be dealing with all of the secondary issues that make a big difference with our mental health like actually having hair on our head! We can think of each other every time we shed another hair and know that we're not alone. :)
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Mini rant - continued hair loss.

Postby BeansMama » Thu Jul 21, 2016 11:50 pm

Rant all you want, you deserve it! Sometimes a good rant is what we need to feel a bit better.

Keeping you in my thoughts :)
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: Mini rant - continued hair loss.

Postby Willow.NZ » Fri Jul 22, 2016 4:45 am

So freeking annoying when trying to take a chemo break that cancer doesn't bugger off too!!
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Mini rant - continued hair loss.

Postby midlifemom » Fri Jul 22, 2016 9:54 am

Thanks all.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

User avatar
WriterGirl1969
Posts: 513
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Mini rant - continued hair loss.

Postby WriterGirl1969 » Fri Jul 22, 2016 7:31 pm

midlifemom wrote:hair is still falling out! No fair


I totally prepared myself for the fact that I might get breast cancer someday because my maternal grandmother had it. I thought, if I have to lose my breasts, I can get younger, perkier replacements. If I have to lose my hair, I can get better, fully wigs that will look lots better than my sucky hair. As it turned out, I didn't get the breast cancer. I got the colon cancer. All my hair isn't falling out, just enough that I constantly feel it all over me and pull it off my clothes. So I have too much left to wear a wig.

Aint life ironic!!! :lol:

<hoping I made you smile at least a little> :wink:

--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Mini rant - continued hair loss.

Postby midlifemom » Fri Jul 22, 2016 8:37 pm

Yes, Tracy, thanks for the smile.
Life truly is ironic.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?


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