Btw - collapsed lungs?!

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Btw - collapsed lungs?!

Postby HopeForJesse » Wed Jul 20, 2016 2:11 pm

DH had post liver op CT scan to check for blood clots last week. Good results - no clot is all we were told. CT results show up on MSK portal today (when I am actually looking for pathology) and list Bilateral passive atelectasis which no one mentioned. Translation is partially collapsed lungs. WTH - anyone experience this? Need to worry? Discharge pending tomorrow. Thanks!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Btw - collapsed lungs?!

Postby midlifemom » Wed Jul 20, 2016 3:00 pm

I do believe ive seen others post on this before.
You can call Kemenys office and ask about it, but BB once said if Kemmeny doesnt mention something its because shes not worried about it, and if shes not worried, he shouldnt either. (Hope i got that close to right BB).
Im sure others will jump in.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Btw - collapsed lungs?!

Postby CLD » Wed Jul 20, 2016 4:00 pm

DH had atecalactis the night he went to the ER with abdominal pain when he was first diaganosed. After I got his discharge papers I read about the atecalactis. I called my aunt, a nurse who said *yeah, him and everyone else * has it. She said it was likely due to him being in pain.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

mariane
Posts: 677
Joined: Sun Sep 13, 2015 6:16 pm

Re: Btw - collapsed lungs?!

Postby mariane » Wed Jul 20, 2016 10:06 pm

p
Last edited by mariane on Fri Nov 18, 2016 9:33 pm, edited 1 time in total.
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Btw - collapsed lungs?!

Postby jhocno197 » Wed Jul 20, 2016 10:16 pm

My husband has had this showing up on his scans for 18+ months now. It can be mild or severe. If it was something to worry about he would probably be feeling it.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Nik Colon

Re: Btw - collapsed lungs?!

Postby Nik Colon » Wed Jul 20, 2016 10:48 pm

I don't believe I had issues (idk, never mentioned anything about it), but it was harder to breathe and they had me constantly doing the breathing thing where you suck into the plastic thing to see how your lungs are doing. It was really hard at first, I do remember that.

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Rob in PA
Posts: 2004
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Btw - collapsed lungs?!

Postby Rob in PA » Thu Jul 21, 2016 12:09 am

I had it twice. Painful to lie on side. Used the spirometer to keep it inflated. Both times were after sbrt. Then, finally my right diaphragm went paralyzed due to radiation damage to the phrenic nerve, and now lung is only partial function.
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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BrownBagger
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Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Btw - collapsed lungs?!

Postby BrownBagger » Thu Jul 21, 2016 9:42 am

midlifemom wrote:I do believe ive seen others post on this before.
You can call Kemenys office and ask about it, but BB once said if Kemmeny doesnt mention something its because shes not worried about it, and if shes not worried, he shouldnt either. (Hope i got that close to right BB).
Im sure others will jump in.


Someone else said that, but it's true. It's always been my approach. Too many details and I start to get nervous. I prefer to judge my condition on how I feel, not what some test or scan may or may not show. It's all I've got.

I have had a partially collapsed lung as well as a pneumothorax, and neither one caused me any pain or other discomfort. The PX needed to be treated with a chest tube, however. Cleared it up in a week.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Btw - collapsed lungs?!

Postby HopeForJesse » Thu Jul 21, 2016 11:52 am

Thank you all so much for the reassurance. Maybe I will just stop reading the reports but that will be hard for me. Good news - headed home today after one last hopefully quick MRI :D
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

AngelaN
Posts: 206
Joined: Tue Jan 28, 2014 9:00 pm
Facebook Username: angelamnicholas

Re: Btw - collapsed lungs?!

Postby AngelaN » Sat Jul 23, 2016 8:16 am

Just to clarify - atelectasis is not technically a "collapsed lung". Atelectasis is when you do not take deep enough breaths (especially due to pain, illness, sitting in bed) to inflate your lungs. Use the incentive spirometer like they tell you, sit up in a chair instead of laying in the bed and be up and around as much as you can. It will get back to normal over time.
DH diagnosed with Stage 4 CRC Nov 2013
11 tx Folfox/Avastin; LAR/liver resection/introp RF of liver - May 2014
3 treatments FOLFIRI
Lung resection - Sept 2014
FOLFIRI + Avastin x 10 treatments
Avastin+5FU q3 weeks x 4
SBRT x 1 lung met
RFA for remaining 3 in Oct and Nov
SBRT for liver met Jan 16
lung mets growing
Enrolled in NIH TIL trial Oct 16
XRT for lung met 12/16
Cells didnt grow for TIL trial Feb 17
Waiting for NCT03085914 at Penn

kandj
Posts: 293
Joined: Sun Sep 27, 2015 11:29 am

Re: Btw - collapsed lungs?!

Postby kandj » Sat Jul 23, 2016 10:25 am

DH has had that noted in every CT since his surgery in December. It has gotten better, then got worse following his liver resection. It is very common and I would not worry. Make sure he keeps using the spirometer. I think DH's enlarged liver had something to do with it also, as it was always noted on the right side, and only as bilateral after surgeries. Dh ended up with a large liver abscess though following his liver resection, so keep an eye out for symptoms like shoulder pain, URQ pain, etc. We brushed it off as nerve pain at first. Wish DH had gone in sooner like I wanted him to.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again

mariane
Posts: 677
Joined: Sun Sep 13, 2015 6:16 pm

Re: Btw - collapsed lungs?!

Postby mariane » Wed Jul 27, 2016 4:27 pm

Mary,
How is Jesse doing?
Thinking and praying for you both. How was today's visit with Dr K?
I hope we will be able to meet sometime again.
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

User avatar
HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Btw - collapsed lungs?!

Postby HopeForJesse » Thu Jul 28, 2016 11:59 am

mariane wrote:Mary,
How is Jesse doing?
Thinking and praying for you both. How was today's visit with Dr K?
I hope we will be able to meet sometime again.


Hi Mariane,
Thanks for checking back. He is finally much better but seemed like he was just sleeping/recovering forever over the past week. Yesterday was a long day - with train/subway and 6 appointments we were gone from the house for 14 hours but lucky to be able to return same day.
I was exhausted so can't even imagine how he felt.

How was your Monday appointment?

We will be there again 8/10 and 8/31. Can't state how much I am indebted to MSK and Dr K and this forum. I know it is still a long road but feeling much more hopeful than we have in months. CEA finally under 5 too:) New scan will be in 2 months. There is a questionable 3m new spot on the liver - already!! but hopefully just surgical damage (please!)

Prayers for you continue as well - keep in touch so we can catch up in person when the appointments line up :D Hope you have still been able to keep up the walking with this awful heat lately.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Btw - collapsed lungs?!

Postby Pita » Thu Jul 28, 2016 1:35 pm

Sounds like the two of you have met, how nice! My best to all...

My lung collapsed when I had a biopsy, was one of the most painful things I've ever experienced.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

kandj
Posts: 293
Joined: Sun Sep 27, 2015 11:29 am

Re: Btw - collapsed lungs?!

Postby kandj » Thu Jul 28, 2016 9:17 pm

HopeForJesse wrote: There is a questionable 3m new spot on the liver - already!! but hopefully just surgical damage (please!)



Noted on the scan or just noted by Dr. K? She said there were a few spots on DH's scan she wants to watch. But Dr. D and the radiologist didn't mention them. It is always something. How I wish they would just say "it all looks great, get out of here and never come back!"
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again


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