HOPE-There are stage 4 survivors !!!!!!!
HOPE-There are stage 4 survivors !!!!!!!
Just checking in to let people know there are stage 4 survivors,, I am one,,mets all over abdomine,,on liver,omentum,small and large intestine,,,5surgeries, 2 years chemo,,,,Diagnosed 4/23 2006 .Alive and "cancer free"
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arizona mom
- Posts: 127
- Joined: Thu May 08, 2014 10:25 am
Re: HOPE-There are stage 4 survivors !!!!!!!
((((hugs))))
Thank you so much for sharing. I really,really needed that right now. I'm off this morning to get a new port after a recurrence with peri mets. I start chemo again on Monday and hoping that HIPEC is in my near future.
Congratulations!! I am so happy for you!!
Thank you so much for sharing. I really,really needed that right now. I'm off this morning to get a new port after a recurrence with peri mets. I start chemo again on Monday and hoping that HIPEC is in my near future.
Congratulations!! I am so happy for you!!
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets.
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets.
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: HOPE-There are stage 4 survivors !!!!!!!
Wonderful news scottg! 
I'm sorry you had a recurrence arizona mom!*hugs* I hope your chemo goes well!*hugs*
I'm sorry you had a recurrence arizona mom!*hugs* I hope your chemo goes well!*hugs*Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: HOPE-There are stage 4 survivors !!!!!!!
Thank you for posting! Love hearing these stories to remind me it what is possible.
DH dx. Stage 4 Colon cancer with Peri mets Dec '15 @ age 29
12 Rounds FOLFOX & then successful HIPEC in 2016. Diagnosis changed to appendix cancer.
Recurrence to pelvis 9 months later.
Years of chemo.
At rest. Sept 2021.
12 Rounds FOLFOX & then successful HIPEC in 2016. Diagnosis changed to appendix cancer.
Recurrence to pelvis 9 months later.
Years of chemo.
At rest. Sept 2021.
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Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: HOPE-There are stage 4 survivors !!!!!!!
scottg wrote:Just checking in to let people know there are stage 4 survivors,, I am one,,mets all over abdomine,,on liver,omentum,small and large intestine,,,5surgeries, 2 years chemo,,,,Diagnosed 4/23 2006 .Alive and "cancer free"
Every time you remind us of your story I smile inside. I'll always love your story and I always need the reminder.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: HOPE-There are stage 4 survivors !!!!!!!
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
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CFrancis73
- Posts: 24
- Joined: Tue May 17, 2016 2:01 pm
Re: HOPE-There are stage 4 survivors !!!!!!!
Did you have it on your peritoneum? Peritoneum carcinomatosis?
scottg wrote:Just checking in to let people know there are stage 4 survivors,, I am one,,mets all over abdomine,,on liver,omentum,small and large intestine,,,5surgeries, 2 years chemo,,,,Diagnosed 4/23 2006 .Alive and "cancer free"
Daughter to a 56 yr old Mother
Stage IV signet ring cell rectal cancer
Poorly differentiated
at this time not a candidate for surgery or HIPEC
mets to peritoneum
no CEA numbers ever run on her
KRAS wild type
11/2015 Modified FOLFOX 6
5/2016 completed 12 rounds of FOLFOX 6
CT scan after 4th round, improvement
PET scan 5/2016 showed non activity in all cancer areas but two nodules (1/lung)
but oncologist believe its chemo induced, not concerned at this time
Laparoscopy scheduled 6/28/16
Stage IV signet ring cell rectal cancer
Poorly differentiated
at this time not a candidate for surgery or HIPEC
mets to peritoneum
no CEA numbers ever run on her
KRAS wild type
11/2015 Modified FOLFOX 6
5/2016 completed 12 rounds of FOLFOX 6
CT scan after 4th round, improvement
PET scan 5/2016 showed non activity in all cancer areas but two nodules (1/lung)
but oncologist believe its chemo induced, not concerned at this time
Laparoscopy scheduled 6/28/16
Re: HOPE-There are stage 4 survivors !!!!!!!
This is so totally AWESOME .
May you always reside in NEDville,
Lee
.May you always reside in NEDville,
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
Re: HOPE-There are stage 4 survivors !!!!!!!
Wow! So good to read this! We all need stories like your's. Thank you!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!
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Felicitym23
- Posts: 32
- Joined: Sun Jan 24, 2016 2:37 am
- Facebook Username: Felicity Malyszko
Re: HOPE-There are stage 4 survivors !!!!!!!
Thank you for sharing this with us. While I am stage 4 and currently in remission (only been 3 months). But still on Chemo.
My Dr seems to talk with such dread not positives. I need to know that we can and could beat this monster of Stage 4.
Thank you xx
My Dr seems to talk with such dread not positives. I need to know that we can and could beat this monster of Stage 4.
Thank you xx
47yrs and mother to a 12 year child with autism
Cancer confirmed 9/23/15
Ext right hemicolectomy 10/13/15
35 Lymph nodes & 6 cancer told Stage 3C.
Nov 15 Oxy, Leucovorin, Flurourcil
CT and PET Scan told that cancer was now in abdo & neck lymph nodes.
STAGE 4 told two days before Christmas 2015.
Oxy, Leucovorin, Flurourcil & Panitumumab
MARCH 2016 NED - currently in remission. Stage 4.
After 3 sessions of Vectibux.
PET & CT SCAN July 16 - Still NED but still on chemo and Vectibix.
Cancer confirmed 9/23/15
Ext right hemicolectomy 10/13/15
35 Lymph nodes & 6 cancer told Stage 3C.
Nov 15 Oxy, Leucovorin, Flurourcil
CT and PET Scan told that cancer was now in abdo & neck lymph nodes.
STAGE 4 told two days before Christmas 2015.
Oxy, Leucovorin, Flurourcil & Panitumumab
MARCH 2016 NED - currently in remission. Stage 4.
After 3 sessions of Vectibux.
PET & CT SCAN July 16 - Still NED but still on chemo and Vectibix.
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Jack&KatiesMommy
- Posts: 640
- Joined: Wed Dec 21, 2011 1:08 pm
- Location: Columbus, OH
Re: HOPE-There are stage 4 survivors !!!!!!!
I LOVE, LOVE, LOVE hearing your story, Scott! You cannot tell it enough. Thank you so much for coming back to share...please keep doing so...it provides so much hope. ((HUGS))
Cynthia
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,
Re: HOPE-There are stage 4 survivors !!!!!!!
Woo Hoo!!! Congrats!!!
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04
Re: HOPE-There are stage 4 survivors !!!!!!!
I am so glad to hear this! Thank you for sharing!
Rhonda- 41
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!
Philippians 3 14
Wife and mom of 2 (21 and 22)
Diagnosed 9/12/14
Stage 3 Colon Cancer
Surgery 10/6/14
30 radiation treatments
6 months chemo. Oxy and xeloda
NED 7/18/15
Reoccurrence 4/2016 in abdominal wall
Surgery 4/2016
Stage 4
KRAS wild
3 months of Erbitux (May-July 2016)
20 radiation treatments
NED 8/10/16
January 2017 CLEAR SCANS!!!
Philippians 3 14
Re: HOPE-There are stage 4 survivors !!!!!!!
Best of luck. Thanks for posting. We all need positive stories.
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