Dr. Kemeny's Patients

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Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Dr. Kemeny's Patients

Postby Kathy » Thu Jul 14, 2016 3:47 pm

Just have been wondering, how many of Dr. Kemeny's patients are on this website? I've talk to Trish about the Colon Club but they don't seem to know much about it. Hope to meet some of the Colon Clubbers at the office soon.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Dr. Kemeny's Patients

Postby juliej » Thu Jul 14, 2016 4:16 pm

Count me as one! :D

Let me know next time you're at 53rd and maybe we can meet for coffee.

JulieJ
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

kandj
Posts: 308
Joined: Sun Sep 27, 2015 11:29 am

Re: Dr. Kemeny's Patients

Postby kandj » Thu Jul 14, 2016 8:33 pm

my hubby is one!
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resect 5/19/2016 15-20 mets (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again
9/2020 SBRT on Adrenal Met 11/2020 New liver met to deal with

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Dr. Kemeny's Patients

Postby HopeForJesse » Thu Jul 14, 2016 11:36 pm

My DH is one also - just got the HAI pump on Tuesday - separate post to follow on that...
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Dr. Kemeny's Patients

Postby BrownBagger » Fri Jul 15, 2016 6:23 am

I'm one of "Nancy's Kids" too.

I'll be there July 27.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Dr. Kemeny's Patients

Postby Stanfordmom » Sun Jul 17, 2016 1:30 pm

I see Dry. kemeny, too. I am there tomorrow (July 17th).

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

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Jack&KatiesMommy
Posts: 633
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Dr. Kemeny's Patients

Postby Jack&KatiesMommy » Mon Jul 18, 2016 10:25 am

I've been her patient (and adore her!!!) since April 2012.
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Re: Dr. Kemeny's Patients

Postby mom_2_3 » Mon Jul 18, 2016 5:30 pm

Kathy,

My NED is only 4 months behind your own. I was diagnosed in 11/08 but had my HAI pump and surgery in 2/09 and have been NED since. I saw Dr. K last Monday to get my yearly scan results and I brought her a beautiful orchid. I called my husband after to tell him about my appointment (he didn't go as we already knew the NED results from the portal) and he said, "why did you get her an orchid when they are all over that place?!" But she said she loved it and would take it home and I insisted on giving the woman that saved my life a hug. Love her!

Amy
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Dr. Kemeny's Patients

Postby midlifemom » Mon Jul 18, 2016 6:24 pm

Count me in.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Dr. Kemeny's Patients

Postby mymom » Tue Jul 19, 2016 10:11 am

My mom is a patient!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Dr. Kemeny's Patients

Postby HopeForJesse » Tue Jul 19, 2016 5:16 pm

BrownBagger wrote:I'm one of "Nancy's Kids" too.

I'll be there July 27.


Assuming discharge later this week, we will also be there afternoon of 7/27. Will try to figure a way to get a photo on here, but otherwise look for a louder post op man and a short Irish girl :D
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!


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