Evolution of breast cancer- update

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Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Evolution of breast cancer- update

Postby Lydia666 » Thu Jul 14, 2016 2:15 pm

Hey guys, i am having a breast cancer scare. I had a mammogram yesterday because i am at risk to have this cancer. Dont have the results yet. They will do an mri and an ultrasound too. The doc checked and she felt something underarm where i have a weird sensation. Says could be anything but of course i freaked.

I am holding on to the idea that i had a petscan from head to toe exactly one year ago for my colon cancer and it showed nothing. Could i develop breast cancer in like 9 months - as i ve had the sensation for 2-3 months now. I mean i guess i know i could if i have some incredibly agressive type, but really??

Thanks for any input.
Last edited by Lydia666 on Thu Jul 28, 2016 6:14 pm, edited 1 time in total.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

DarknessEmbraced
Posts: 3579
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Evolution of breast cancer

Postby DarknessEmbraced » Thu Jul 14, 2016 2:20 pm

I hope that your MRI and ultrasound are negative. Good luck!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Evolution of breast cancer

Postby janklo » Thu Jul 14, 2016 5:05 pm

My mom died from bc. Three times I've had something weird show up on mammograms and had ultrasound, mri and even 2 biopsies and it was nothing. There's a lot of false positives on mammograms.

but--with signet ring cell, that is aggressive and it can spread to breast tissue, so definitely best to check it out!
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Evolution of breast cancer

Postby Lydia666 » Thu Jul 14, 2016 6:14 pm

janklo wrote:My mom died from bc. Three times I've had something weird show up on mammograms and had ultrasound, mri and even 2 biopsies and it was nothing. There's a lot of false positives on mammograms.

but--with signet ring cell, that is aggressive and it can spread to breast tissue, so definitely best to check it out!

I doubt this is spread from colon cancer. For it to not go in any of the usual places: peritoneum, lungs, liver but jump to breast sounds unlikely. I am thinking more a new primary since i have this gene that makes me prone to various cancers, 2 of which i had already. Docs are talking along the same lines. If there is something, it is a new primary.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Deborah614
Posts: 23
Joined: Tue Jan 27, 2015 10:24 am
Facebook Username: Deborah Melchi

Re: Evolution of breast cancer

Postby Deborah614 » Thu Jul 14, 2016 10:15 pm

Hi, Lydia.
Here's a quick summary of what is going on with me. I had a mammogram just before I was diagnosed with rectal cancer. It showed a cluster of microcalcifications that were removed and biopsied and were benign. That was in December of 2014.
I went through the standard treatment for rectal cancer starting in Jan 2015, with 28 days of chemo/radiation, surgery, then 8 rounds of Folfox. I had my first CAT scan since my last chemo this past May, and I was told I was NED.
On June 2nd I had another mammogram. And another cluster of microcalcifications was biopsied. I now have a second, unrelated cancer called Invasive Ductal Carcinoma, which thrived and grew in 18 months, as I was taking a top shelf chemo cocktail through my port. Some breast cancers react to Folfox, but not my kind. Yep, I'm just that lucky. I am very grateful that this was caught at an early stage, but I'm also feeling pretty pissy, i'll admit it. I have chosen to have a mastectomy with immediate reconstruction on the one breast and if there is no spread to lymph nodes, I won't need chemo.
Today I painted my fingernails pink and my toenails blue. Take a deep breath, it can happen to the best of us. My hopes and prayers are with you, that you and I don't both have to belong to two clubs we never wanted to join. This forum has been invaluable to me; I haven't found one yet to even compare to it in the wide world of pink. Feel free to PM me anytime if you have questions. I'm just a month in, but I've learned a lot already. My surgery is scheduled for August 3.
blessings and hugs,
Deb
dx 12/17/14
stage 2 rectal cancer T3N0M0
standard treatment 28 days radiation w/xeloda, surgery, 8 rounds Folfox
22 shots neupogen 32 days in hospital for infections
60 years old
mother of 6, grandmother of 10, wife of 1 for 35 years
Jeremiah 29:11
05/28/15 APR, Barbie butt, permanent colostomy
May 2016 Cat scans NED!
May 2016 mammogram
June 2016 invasive ductal carcinoma breast cancer left breast stage1
August3 '16 mastectomy with reconstruction, genetic screening scheduled

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Evolution of breast cancer

Postby Lydia666 » Fri Jul 15, 2016 5:44 am

Deborah614 wrote:Hi, Lydia.
Here's a quick summary of what is going on with me. I had a mammogram just before I was diagnosed with rectal cancer. It showed a cluster of microcalcifications that were removed and biopsied and were benign. That was in December of 2014.
I went through the standard treatment for rectal cancer starting in Jan 2015, with 28 days of chemo/radiation, surgery, then 8 rounds of Folfox. I had my first CAT scan since my last chemo this past May, and I was told I was NED.
On June 2nd I had another mammogram. And another cluster of microcalcifications was biopsied. I now have a second, unrelated cancer called Invasive Ductal Carcinoma, which thrived and grew in 18 months, as I was taking a top shelf chemo cocktail through my port. Some breast cancers react to Folfox, but not my kind. Yep, I'm just that lucky. I am very grateful that this was caught at an early stage, but I'm also feeling pretty pissy, i'll admit it. I have chosen to have a mastectomy with immediate reconstruction on the one breast and if there is no spread to lymph nodes, I won't need chemo.
Today I painted my fingernails pink and my toenails blue. Take a deep breath, it can happen to the best of us. My hopes and prayers are with you, that you and I don't both have to belong to two clubs we never wanted to join. This forum has been invaluable to me; I haven't found one yet to even compare to it in the wide world of pink. Feel free to PM me anytime if you have questions. I'm just a month in, but I've learned a lot already. My surgery is scheduled for August 3.
blessings and hugs,
Deb

Thanks Deb. Honestly, i would not be surprised if i get bc. What i find unlikely is that on 9 months i go from no breast cancer , to cancer in the lymphnodes ( i have tenderness under arm). The only way this is possible is if i have the most aggressive cancer on the planet or if my pet scan last year completely missed any sign of breast cancer. I dont know.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Evolution of breast cancer

Postby Steph20021 » Fri Jul 15, 2016 11:06 pm

Lydia when do you get your mammogram results? Please let us know the outcome. Hoping it's nothing for you.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Evolution of breast cancer

Postby Lee » Sat Jul 16, 2016 4:01 pm

Good luck Lydia, hope it's nothing serious. I have a few friends, most mammograms seem to show something new almost every year. So far nothing serious.

I actual see a breast surgeon once a year for my mamo. Many years ago, I had a mamo, guess I had a small infection in left breast, butt no one told me. 6 months later I was dealing with a massive infection. Over a year later, 2 surgeries and 3 bouts of medicine, we finally got it under control. Now that surgeon orders my mamo and then I see him for 5 mins, for him to say all OK. He does it because we all agree it could happen again.

Again, good luck, keep us posted.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Evolution of breast cancer- UPDATE

Postby Lydia666 » Thu Jul 21, 2016 5:23 pm

The mamogram shows calcifications on the right breast, i need a biopsy and an ultrasound. Crazy thing is that my uncomfortable sensation is on the left side and doc felt something on the left side. Go figure! Ultrasound and biopsy next week and surgery to remove the stoma! No break!!!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lee
Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Evolution of breast cancer

Postby Lee » Thu Jul 21, 2016 6:54 pm

WOW :shock: You've got a busy schedule there next week. Don't forget the prepping day too.

All the best, bet you are glad to be getting beyond that stoma.

Keep us posted,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Evolution of breast cancer

Postby Lydia666 » Thu Jul 21, 2016 8:35 pm

Lee wrote:WOW :shock: You've got a busy schedule there next week. Don't forget the prepping day too.

All the best, bet you are glad to be getting beyond that stoma.

Keep us posted,

Lee

Hi Lee, thank you for your note. Imagine that I don't need to prep for this surgery- I don't know why but i am really glad!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Evolution of breast cancer- update

Postby Lydia666 » Thu Jul 28, 2016 6:15 pm

Had the biopsy today- the radiologist is pretty sure it's cancer- dcis! I am speechless. I just got out of the hospital after reversal.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Evolution of breast cancer- update

Postby Pita » Thu Jul 28, 2016 7:39 pm

Sorry Lydia for the diagnosis, hugs and prayers to you that all will be taken care of.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

Skoliv
Posts: 49
Joined: Thu Nov 27, 2014 3:50 am

Re: Evolution of breast cancer- update

Postby Skoliv » Thu Jul 28, 2016 8:22 pm

I am so sorry! But I am sure it will be very initial since you have been doing all the screening right? Protocol is there for a reason, to catch something early if needed.

DarknessEmbraced
Posts: 3579
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Evolution of breast cancer- update

Postby DarknessEmbraced » Fri Jul 29, 2016 5:48 pm

I'm so sorry you are dealing with this Lydia!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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