Postby Delinda2 » Thu Jul 14, 2016 8:40 am
Hello all, I've been away for a while but I do lurk from time to time & think of you all. Time to catch up & maybe pick your collective brains a bit. First, they have recently changed my status to Stage 4. Since February they have been convinced that the problem in my sigmoid was a second primary. I had a huge surgery on 6/14 that included resection on sigmoid, total hysterectomy, removed the rest of my colon except for a tiny snip, and a temporary ileostomy. I've been healing great, no complications at all, ileo working perfectly - then we got the pathology report. Oops, it was a spread of the original in the transverse colon. Good reminder that doctors don't know everything & no test/scan is infallnble. Personally I'm glad they did the surgery, they wouldn't have if they had known it was a spread. I'm just glad that filthy stuff is out of me. Also turned out that the lesion on my uterus was nothing, so yeah! I had 6 rounds of FOLFOX before surgery & was supposed to have 6 more starting yesterday. However, I had a bad reaction to the oxy after 20 minutes so they shipped me off to ER at the University of Washington hospital when my oxygen dropped & I started turning blue. Had shhooting pains in legs & spine, chest constriction, throat swelling, etc. After 4 hours they let me go home. Feeling better but pretty washed out today. Now I have to find out what we do for chemo now. Fortunately the genetic tests showed NO mutations (that they currently know off) so I should have some options. I'm guessing Folfuri?? Other suggesiions? I'm not surprised at the stage 4 news, I suspected it from the beginning. All my other indicaters are pretty bad anyway. I'm not freaked out & just taking it one step at a time. Hope all of you are well. Will try to be around more & give support where I can. March on!
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."