Now stage 4
Now stage 4
Hello all, I've been away for a while but I do lurk from time to time & think of you all. Time to catch up & maybe pick your collective brains a bit. First, they have recently changed my status to Stage 4. Since February they have been convinced that the problem in my sigmoid was a second primary. I had a huge surgery on 6/14 that included resection on sigmoid, total hysterectomy, removed the rest of my colon except for a tiny snip, and a temporary ileostomy. I've been healing great, no complications at all, ileo working perfectly - then we got the pathology report. Oops, it was a spread of the original in the transverse colon. Good reminder that doctors don't know everything & no test/scan is infallnble. Personally I'm glad they did the surgery, they wouldn't have if they had known it was a spread. I'm just glad that filthy stuff is out of me. Also turned out that the lesion on my uterus was nothing, so yeah! I had 6 rounds of FOLFOX before surgery & was supposed to have 6 more starting yesterday. However, I had a bad reaction to the oxy after 20 minutes so they shipped me off to ER at the University of Washington hospital when my oxygen dropped & I started turning blue. Had shhooting pains in legs & spine, chest constriction, throat swelling, etc. After 4 hours they let me go home. Feeling better but pretty washed out today. Now I have to find out what we do for chemo now. Fortunately the genetic tests showed NO mutations (that they currently know off) so I should have some options. I'm guessing Folfuri?? Other suggesiions? I'm not surprised at the stage 4 news, I suspected it from the beginning. All my other indicaters are pretty bad anyway. I'm not freaked out & just taking it one step at a time. Hope all of you are well. Will try to be around more & give support where I can. March on!
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Now stage 4
I'm sorry you're now stage 4 and you had such a severe reaction to chemo!*hugs* How scary! I'm glad you're ok! I'm glad your surgery recovery went well and hope they find a chemo you won't react to as severely.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
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canadiandaughter
- Posts: 676
- Joined: Sun Aug 17, 2014 11:19 am
Re: Now stage 4
So good to see your post as I have been wondering how you were doing, but am so sorry about how things are for you right now. Glad the surgery went well at least.
I hope your doctor can come up with a good plan for you. Maybe some of the immunotherapy trials might be an option. Thanks for checking in!!
I hope your doctor can come up with a good plan for you. Maybe some of the immunotherapy trials might be an option. Thanks for checking in!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
Re: Now stage 4
Delinda, didn't you have a bad reaction to the oxy back in May? I surprised they tried it again. Yes, Folfiri should be an option for you or Erbitux since you have no mutations.
I'm so happy to hear you sailed through that big surgery and had no complications! And great news about the lesion on your uterus! Score 1 for Delinda!
Take care and keep us informed when you can.
xo,
Juliej
I'm so happy to hear you sailed through that big surgery and had no complications! And great news about the lesion on your uterus! Score 1 for Delinda!
Take care and keep us informed when you can.xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
Re: Now stage 4
Gotta say major sucknitude on your complimentary upgrade with free side effects !!!! 
The rest of it does sound better tho' and more options to work with.
Mega Cheers and Harmony coming your way my friend
CRguy
The rest of it does sound better tho' and more options to work with.
Mega Cheers and Harmony coming your way my friend
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: Now stage 4
Hey Delinda, sorry you're back in the trenches but glad you pulled through your operation well.
Dumb question here - because the new cancer was in the colon, why is it stage 4? I always thought it had to be distal ie organ spread.
Wishing you strength for the treatment ahead!
Dumb question here - because the new cancer was in the colon, why is it stage 4? I always thought it had to be distal ie organ spread.
Wishing you strength for the treatment ahead!
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
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Nik Colon
Re: Now stage 4
NZJay wrote:Hey Delinda, sorry you're back in the trenches but glad you pulled through your operation well.
Dumb question here - because the new cancer was in the colon, why is it stage 4? I always thought it had to be distal ie organ spread.
Wishing you strength for the treatment ahead!
Im confused too.
Delinda, also in your sig, not sure if the dates are years or days. I assume the last is this yr, but the day not yr?
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