I'm sure this is insensitive but...

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Target2
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Re: I'm sure this is insensitive but...

Postby Target2 » Sat Jul 02, 2016 12:47 pm

I've only drank one time in my entire life. I have a horrible diet and I'm overweight that's where the diagnosis came from I'm sure. Also I've been trying to increase my fiber intake as I'm sure I don't get enough of it. Maybe that was a bad idea.

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mypinkheaven
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Re: I'm sure this is insensitive but...

Postby mypinkheaven » Sat Jul 02, 2016 1:31 pm

Adding a bunch of fiber when your colon isn't used to it is going to cause gas, bloating and diarrhea. You need to add fiber gradually.

Did the doctor who thought you had internal hemorrhoids suggest suppositories? If it were me, I would eat a BRAT diet (bananas, rice, applesauce, toast) for a few days along with using suppositories.

Occam's Razor is a line of reasoning that says the simplest answer is often correct. The simplest answer is internal hemorrhoids. You're being smart and advocating for yourself by getting the colonoscopy. I truly understand the fear and worrying, but I also know that it's a waste of time.
MSS, KRAS Wild NRAS Mutated
9/2012 CRC IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Spread to uterus. Hysterectomy
2/16 Pelvic radiation 25, brachytherapy 3
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules 5 mm
8/16 CT Nodules still present. Most stable. Some growth
11/16 Transfer to UCSD Moores
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus
7/18 Spread to vagina
6/18 Folfiri + Avastin + Trametinib
6/18 CEA dropping

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BeansMama
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Location: North Carolina

Re: I'm sure this is insensitive but...

Postby BeansMama » Sat Jul 02, 2016 1:32 pm

I know easier said than done, but slow deep breaths. Step away from Dr. Google - while many times it is useful, in situations like this good old Dr. G just makes things worse.

Getting a colonoscopy done is a good thing, you are being proactive. Stressing about it will make things worse.

You are young, you have your whole life ahead of you. Once you get past this concentrate on staying healthy. Regular screenings and checkups will help you feel better about your health.

And please, get insurance as soon as you can! It doesn't matter if you think you won't need it, you never know what can happen. It's better to have it and not need it than to need it and not have it.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Target2
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Re: I'm sure this is insensitive but...

Postby Target2 » Sat Jul 02, 2016 7:11 pm

I gotta stop reading this board. Just reading about people that had blood on toilet paper for years like me is getting me more worried. Honestly it's not the blood that scares me it's the blood plus the other symptoms like stomach aches, diarrhea, and narrow stool. The only thing that keeps me hopeful that its internal hemorrhoids plus something less serious is that the blood is worse when using rough toilet paper like in a public bathroom.

Anyway maybe it's better to just assume it's cancer then if it is the news won't be so disappointing. Well I'll stop whining now doesn't feel right to do this on this board. Sorry.

midlifemom
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Re: I'm sure this is insensitive but...

Postby midlifemom » Sat Jul 02, 2016 7:16 pm

There are even more people that had bloody stools which turned out NOT to be cancer than those who did have cancer. But they don't post here because they don't have cancer.
Please, go find a friend to hang out with, a movie to watch or a book to read.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

mike1965
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Re: I'm sure this is insensitive but...

Postby mike1965 » Sun Jul 03, 2016 4:00 pm

Get the test done and you will know. Stop trying to figure it out on Google. Pray you do not have cancer. Cancer sucks. Until you find out no sense of saying I think I have it. Just get the test done. I do not mean to be rude but I am in the middle of chemo and cancer sucks. You do not know if you have cancer. Right now for you it is all guessing . People on this board know they have cancer. So I wish you the best on your test and I hope you do not have cancer. If you do this board is a great place for support and information.
Colonoscopy 09/06/15 Doctor removed polyp
DX - Rectal cancer 09/10/2015 T1M0N0
Surgeon recommended wait and see approach 09/2015
Tumor board recommended LARs Surgery 10/2015
Oncologist and PCP recommended LARs Surgery 11/2015
Seeking 2nd opinion from another Surgeon 01/2016
Having Sigmoidscopy on 02/01/16.
Figured out treatment 02/2016
LARS Surgery 03/2016
Stage 3A T1 N1C M0
Chemo Folfox to begin 04/18/16

Steve Marethyu
Posts: 49
Joined: Sun May 29, 2011 10:49 am

Re: I'm sure this is insensitive but...

Postby Steve Marethyu » Mon Jul 04, 2016 2:11 pm

At 24, you might be able to be covered by your parents policy. I don't know the specifics, but I know it was mentioned that there was an extension to 25 or 26. However, you might have needed to maintain coverage. It's at least worth checking. Also, you can get insurance if you have a major life event. It would be at least worth checking to see if you qualify to get covered. If you have cancer, you will want to have insurance. I don't know if they'll cover you immediately, but the sooner you have coverage the better. Cancer is expensive with insurance, so not having it is a real risk.

I actually lowered the level of my insurance at work two years before my surgery. I figured there was no reason to pay an extra $30 a month, since I was young and relatively healthy (not weight-wise, but I didn't get sick often.) Turns out that the decision cost me an extra $2,400 in out of pocket expenses, to save $360 a year.

All that said, get the colonoscopy. You also don't need to assume it's cancer, but it's best not to let it wait. I ignored rectal bleeding for about 6 months (maybe longer, I don't remember.) If you have cancer, catching it now is best. If you don't, you'll have the piece of mind to know that it isn't.

Re: timing of the colonoscopy. I would go more on the quality of the doctor, than on who will do it soonest. I chose the first doctor who would take me on short notice, and it eventually caused serious problems when he misdiagnosed the location of the tumor.
Dx Stage I rectal; 19 lymph nodes clear; age 28.
APR in 1/08; no chemo
Lung met 5/11: VATS 7/11
Folfox/Xelox 9 times; Avastin (1 dose, major bleeding);
13 & 14- Sacrum met, trad. radiation & proton
4/14- severe neuropathy right leg
1/16-4/17- 6 rounds folfiri; Lots of 5-FU/Av
8/17-6/18- Irinotecan and erbitux; severe, unpredictable diarrhea
16 month chemo break, bc I needed it
10/19- multiple, bilateral lung mets; largest ~7.5 cm; persistent cough
11/11/19- resuming Irino and erb and dreading it.

Target2
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Joined: Thu Jun 30, 2016 5:48 pm

Re: I'm sure this is insensitive but...

Postby Target2 » Mon Jul 04, 2016 3:16 pm

I've ignored rectal bleeding for 5 years....

Target2
Posts: 16
Joined: Thu Jun 30, 2016 5:48 pm

Re: I'm sure this is insensitive but...

Postby Target2 » Mon Jul 04, 2016 7:16 pm

More blood again today. I really don't think it's hemorrhoids. The blood is mixed into the feces not just like on top of it or something. It's like chunks of red.

Why'd I ignore the blood on the toilet paper for so long? I feel like I need to get this colonoscopy done asap

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LeonW
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Re: I'm sure this is insensitive but...

Postby LeonW » Tue Jul 05, 2016 1:30 pm

Target2 wrote:I feel like I need to get this colonoscopy done asap

Target2 wrote:Well I scheduled the colonoscopy . . . for July 19th


Two more weeks and you'll have a reliable answer, until then there is no reason for panic.
As said by others, your problems could be caused by many things.


Should I call around to try and get one sooner?

waiting another fortnight will not make a big difference. In the meantime, focus on positive things and stay away from Dr Google . . . . Enjoy life

I sincerely hope that you'll have no reason to be around here once you have the scope results
Best wishes, L
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

mymom
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Re: I'm sure this is insensitive but...

Postby mymom » Thu Jul 07, 2016 9:03 am

My husband had tons of blood in toilet and diahrea and it was very serious internal hemroids and a very large NON cancerous Colon polyp that they removed.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

Steve Marethyu
Posts: 49
Joined: Sun May 29, 2011 10:49 am

Re: I'm sure this is insensitive but...

Postby Steve Marethyu » Thu Jul 07, 2016 8:26 pm

Target2 wrote:I feel like I need to get this colonoscopy done asap


If you trust the doctor doing the scope, that's more important that doing it two weeks sooner. I can understand why you're feeling so nervous, though. You'll know the answer soon.
Dx Stage I rectal; 19 lymph nodes clear; age 28.
APR in 1/08; no chemo
Lung met 5/11: VATS 7/11
Folfox/Xelox 9 times; Avastin (1 dose, major bleeding);
13 & 14- Sacrum met, trad. radiation & proton
4/14- severe neuropathy right leg
1/16-4/17- 6 rounds folfiri; Lots of 5-FU/Av
8/17-6/18- Irinotecan and erbitux; severe, unpredictable diarrhea
16 month chemo break, bc I needed it
10/19- multiple, bilateral lung mets; largest ~7.5 cm; persistent cough
11/11/19- resuming Irino and erb and dreading it.

Nik Colon

Re: I'm sure this is insensitive but...

Postby Nik Colon » Fri Jul 08, 2016 12:28 am

Steve K wrote:
Target2 wrote:I feel like I need to get this colonoscopy done asap


If you trust the doctor doing the scope, that's more important that doing it two weeks sooner. I can understand why you're feeling so nervous, though. You'll know the answer soon.

Very true. I got my last one at a new place, they got me in earlier, my reply was "as long as they kniw what they are doing"! Otherwise I would have waited.

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WriterGirl1969
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Re: I'm sure this is insensitive but...

Postby WriterGirl1969 » Mon Jul 11, 2016 5:16 pm

Target2 wrote:More blood again today. I really don't think it's hemorrhoids. The blood is mixed into the feces not just like on top of it or something. It's like chunks of red. Why'd I ignore the blood on the toilet paper for so long? I feel like I need to get this colonoscopy done asap


Hi Target. So sorry that you have to be going through this. If it makes you feel any better, 24 is VERY young for CRC. Not that it's impossible, but it's just very young. If you've been seeing blood for 5 years, that would mean it started at 19, which is even MORE unusual for cancer. Blood on the toilet paper can indicate lots of things. Blood mixed in with your stool can be very scary, but it can still be lots of things.

I totally agree with your decision to pay out of pocket if necessary to get the colonoscopy. Think of it this way. Being so young, you are spending this money to potentially save your life. Even if there is a polyp, this type of cancer generally moves very slowly. Even those of us who had doctors that were fairly confident that we had cancer sometimes delayed procedures by a month or two. So don't stress too much about your time frame. You're doing the right thing, and it's never to late to do that.Try not to kick yourself for decisions made up until now. Nothing you can do to go back and change them. Just accept that you are doing it now, and hopefully you'll have some answers soon.

Second best thing you did was coming here. No matter your outcome, we are here for you. :)

--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

Target2
Posts: 16
Joined: Thu Jun 30, 2016 5:48 pm

Re: I'm sure this is insensitive but...

Postby Target2 » Mon Jul 18, 2016 11:08 am

Well tomorrow is the big day. Starting the prep right now. Not looking forward to spending the whole day on the toilet.

Had some pretty narrow stool today with quite a bit of blood on the toilet paper so I'm pretty nervous.... Biggest thing I'm nervous about is if it is cancer how I'm going to pay for anything after this colonoscopy. I'm going to have almost no money after paying for this.


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