Checking In; BrownBagger Update (w/photos & drone video)

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Checking In; BrownBagger Update

Postby HopeForJesse » Mon Jun 20, 2016 9:07 pm

Dear BB,
Thank you for the update and inspiration. I am in the newbie category having joined in 2016 but quickly recognized you as a wealth of information and success story to follow. Thanks for keeping it real in showing that every day is not a bed of roses even with your remarkably positive attitude. I have often read upbeat posts on here with envy as the tension and somberness in our house this year is often overwhelming. I pray that between Dr K and all of the aforementioned immunotherapy pending, you will be on your way to many more days not thinking about cancer very soon!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

manders
Posts: 53
Joined: Sat Jul 13, 2013 7:32 pm
Location: Pacific Northwest

Re: Checking In; BrownBagger Update

Postby manders » Tue Jun 21, 2016 2:03 am

I don't post much but I still keep my eye out for updates. I bought a bike recently and thought about all those miles you have logged post diagnosis. I even thought about buying an odometer! Your strength inspires. Take care.
Mom to 2 (2008 and 2018)
Diagnosed at 34, 7/9/2013
Sigmoid colon resection 7/24/2013; Stage 3b; T3 N2a; 4/14 lymph nodes
Folfox 8/28/2013 - 2/7/2014

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Bev G
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Facebook Username: Bev Golde
Location: Quechee, VT

Re: Checking In; BrownBagger Update

Postby Bev G » Tue Jun 21, 2016 5:35 am

Hi Eric,

If Roseanne Rosanadana was around I know she would say "if it's not one thing, it's another"....

You have had a real bunch of crap to deal with over the past several months. I hope things will be calming down. I hope Kemeny keeps refining the plan and that you can catch a break.

Hang in there, pal. You have many, many here who love and support you.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

DarknessEmbraced
Posts: 3527
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Checking In; BrownBagger Update (w/photos)

Postby DarknessEmbraced » Tue Jun 21, 2016 9:56 am

Thanks for updating with pictures as I really enjoy looking at them and reading the descriptions! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

bitchslapped
Posts: 1531
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Checking In; BrownBagger Update (w/photos)

Postby bitchslapped » Tue Jun 21, 2016 11:32 am

Hello Brownbagger, Well I'm not an old timer, not a newbie, but coming up on 2 yrs here. Don't know why I'm still hangin 'round here on CT, but I am. Must be the caregiver in me. The newbies that do any kind of reading on here mostly likely are familiar w/who some of us are.
Nice pics. I'm worn out just looking at them :)
Just wanted to mention that it appears the "new mindset" is that clinical trials are not necessarily considered the "last resort" to tx anymore. Rather they (whoever that is) recommend considering trials @ each major tx decision.
So, having said that, we have a fairly new sticky thread: Clinical Trials & Important Links. On there is listed various resources, incl phone support to assist in the search for suitable clinical trials for which one may qualify should you want to have an idea of what may even be doable for you (location wise + other criteria) to present to or ask Dr. K about @ some point in time. I know you said you were going to let her handle that end, just throwing it out there.
Good to hear you don't mind the port & hoping the switch brings you some good results.

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Jack&KatiesMommy
Posts: 628
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby Jack&KatiesMommy » Tue Jun 21, 2016 2:49 pm

Thinking of you, Eric. You are such an inspiration and voice of reason on this site. We are all praying for good things for you. Hang int here! What an amazing garden....and the log harvest....wow! I cannot even imagine how the two of you did that? You are pretty amazing!
Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

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CRguy
Posts: 10246
Joined: Sun Feb 10, 2008 6:00 pm

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby CRguy » Tue Jun 21, 2016 4:18 pm

That drone has some mighty righteous image stabilization going on there bro' !

I see you're getting cheeky, bringing it down thru a road "canopy" instead of the nice safe field further out :mrgreen:
Cheers to your piloting skills !!
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6167
Joined: Sun Apr 16, 2006 4:09 pm

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby Lee » Tue Jun 21, 2016 5:09 pm

IMPRESSIVE. That is quite a drone you've got there. Looks like beautiful land. Love your garden. Mine has mostly died recently, way to hot here.

Sorry for all your medical issues, hope things turn around for the better for you.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby juliej » Tue Jun 21, 2016 5:59 pm

Nice flying! What a beautiful property too! I felt like a bird soaring over the trees!

Are the shorter green blobs (about 1:57) young trees that you've planted? Are the photos available in both JPEG and RAW format? I think UAV's are going to revolutionize farming!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby BrownBagger » Tue Jun 21, 2016 6:29 pm

The bigger softwood trees were all planted by my grandfather. The smaller ones growing in the understory and in the openings (drought or disease) are all white pine volunteers. That's the next forest. We're counting on it.

Here's another video:

https://www.youtube.com/watch?v=-vNyphyqSLs
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby Nichoebe » Tue Jun 21, 2016 6:39 pm

I always enjoy reading your posts over my three year journey you've been a strong I spermatozoa for me you've been through so much and just keep driving forward good for you and MSKCC is opening a satellite outpatient clinic in Montvale NJ so that's gonna cut an hour and a half off your trip and it's ten minutes off the NYSThruway right off the GSParkway
Keep On Digging
Mike
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby juliej » Tue Jun 21, 2016 7:01 pm

BrownBagger wrote:Here's another video:

https://www.youtube.com/watch?v=-vNyphyqSLs

Man, that's a lot of trees! How high up are you? It looks really high. Does the drone have obstacle avoidance tech inside of it or are you just a good pilot? :D
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby AussieAssCancer » Tue Jun 21, 2016 11:39 pm

As a new by I have to say I loved reading your post and am inspired by your attitude and grit. I've also been comforted by a lot of the advice you give to people joining the forum.

Hope to keep reading posts like this!

All the best from Down Under

GK
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

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Phuong
Posts: 1496
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby Phuong » Tue Jun 21, 2016 11:57 pm

Totally agree about coming and going on CT, but it is nice to see you post as it really does bring out all the old timers. Wishing you well BB, and hope that you continue to kick the can down the road until the immunotherapy option becomes more solid for a cure.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Checking In; BrownBagger Update (w/photos & drone video)

Postby lauragb » Wed Jun 22, 2016 7:45 am

I, like many folks check in from time to time and I'm glad to see you're still doing what you love. I have heard some good stories about immunotherapy so hope to read you're on that successful path soon. You've been through enough recently......

Anyway, love the garden! I have become a gardening maniac since retiring and spend most of my time outside in my garden or other gardens where I volunteer. My husband is a bike rider and has been very impressed with your mileage. You continue to inspire by living well!

Take care. Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16


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