Reversal on June 14
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tarheelmom
- Posts: 168
- Joined: Mon Mar 07, 2016 5:55 pm
Reversal on June 14
I had my ileostomy reversal on Tuesday and am being discharged today. My kids all signed the bag (like people sign a vast) before I went into the OR. Surgery went fine. I was very nauseous after the procedure, and took some anti-nausea medicine. I was up and walking a few hours after surgery. My bowels woke up around 4 am this morning. I don't have much control and am going very frequently but I think it will just take time. My butt is already sore!
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
Re: Reversal on June 14
It does take time and you may have good days and bad days. Know that it does get better. Be kind to yourself and keep the faith!
DX 9/23/15 rc (age 50)
CT & EUS revealed T3N1 Stage 3b
Chemo/Radiation Oct/Nov 2015
LAR 1/15/16 w/temp ilieostomy
Xelox 3/17/16 - 2 rounds then paused for ilieostomy reversal 4/22/16
& to Clear up C. Diff infection
Restart Xelox 5/19/16 - Final infusion 7/21/16
Finish Xelox (oral Xeloda) 8/3/16
8/17/16 CMP & CBC normal; CEA Zero!
9/26/16 Colonoscopy clear
10/5/16 CT clear
CT & EUS revealed T3N1 Stage 3b
Chemo/Radiation Oct/Nov 2015
LAR 1/15/16 w/temp ilieostomy
Xelox 3/17/16 - 2 rounds then paused for ilieostomy reversal 4/22/16
& to Clear up C. Diff infection
Restart Xelox 5/19/16 - Final infusion 7/21/16
Finish Xelox (oral Xeloda) 8/3/16
8/17/16 CMP & CBC normal; CEA Zero!
9/26/16 Colonoscopy clear
10/5/16 CT clear
Re: Reversal on June 14
Ha! I love that all your kids signed the last bag! 
It takes time to adjust - remember your colon has been "asleep" for quite awhile. Stay close to restrooms for the next several weeks. Stock up on soft toilet paper, flushable baby wipes, Gas-X, Imodium, and Calmoseptine (for sore butts!). Start tracking what you eat and you'll notice certain things cause more urgency. It doesn't necessarily mean you'll never be able to eat them, but you have to go slow, adding just a few new foods at a time. Right now oatmeal, bananas, white rice, etc. are your friends!
Hugs!
Julie
It takes time to adjust - remember your colon has been "asleep" for quite awhile. Stay close to restrooms for the next several weeks. Stock up on soft toilet paper, flushable baby wipes, Gas-X, Imodium, and Calmoseptine (for sore butts!). Start tracking what you eat and you'll notice certain things cause more urgency. It doesn't necessarily mean you'll never be able to eat them, but you have to go slow, adding just a few new foods at a time. Right now oatmeal, bananas, white rice, etc. are your friends!
Hugs!
Julie
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
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AussieAssCancer
- Posts: 258
- Joined: Sat May 21, 2016 10:16 am
Re: Reversal on June 14
Great news on the reversal and the discharge! Hope you have a quick readjustment to something that resembles 'normal'.
All the very best
All the very best
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2
Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2
Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/
Re: Reversal on June 14
Good for you!!! My best to you and continue to heal...
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
Re: Reversal on June 14
Glad to hear the surgery went well. That's impressive that you were up and walking just a few hours after surgery!
Male, 33 @ dx, stage 1 RC (T1N0M0 mod. diff. 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE
2021 - 5 years of clean scopes/scans/bloods
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE
2021 - 5 years of clean scopes/scans/bloods
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tarheelmom
- Posts: 168
- Joined: Mon Mar 07, 2016 5:55 pm
Re: Reversal on June 14
For some reason I felt much less nauseous when I was walking plus the surgeon challenged me to try to walk the same day as the surgery. I also declined all pain mesds but Tylenol. The nurse was really pushing me to take something before I walked and basically told me that it was a one in a million chance that I could walk and not be in agony. I was very determined to prove him wrong. It wasn't easy but it wasn't horrific plus the pain of walking seemed to mitigate the nausea. There was no way I wanted to vomit right after abdominal surgery. I'm surprised by the size of the incision - about 4". Much larger than the scars from the ULAR.
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal
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