Posting/spreading the word of an clinical trial successful case for a rare cancer where treatments are very limited on behalf of a friend:
Attention anyone looking for clinical trial treatment options for metastatic BRAF-mutant Small Bowel Cancer (or any “rare” cancer that is BRAF-mutant)..... the following trial....ClinicalTrials. gov Identifier:
NCT02034110 ( https://clinicaltrials.gov/ct2/show/NCT ... 110&rank=1 ) is currently accepting and looking for participants to be treated with the inhibitors dabrafenib and trametinib which are currently approved for melanoma and are being studied for efficacy with rare cancers including small bowel adenocarcinoma. The studies are taking place at various locations throughout the US.
My husband started the trial in January at UCLA with 2 small tumors on his liver which recurred after resection and 20 rounds of chemo. On his May scan the tumors were no longer visible. He is having a big success with these drugs on this cancer which has been resistant to other treatments. His main side effects have been bouts of high fever and night sweats which are currently managed with the addition of steroids. The study requires monthly visits and the drugs are oral. My husband is fully functioning and feeling "well" on these meds. Please share & spread the word!