This was a good day

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
MikeManess
Posts: 90
Joined: Fri Apr 01, 2016 3:56 pm
Location: Forney, Texas

This was a good day

Postby MikeManess » Sun Jun 12, 2016 9:28 pm

It's easy to read on the internet, even on these pages, about other people that have cancer. Those that have passed, those that have received bad news, etc. And, of course, we all have colon cancer of various stages. It's so easy to become depressed when you haunt these pages for any information about this terrible disease.

This is my off-chemo weekend, and I was feeling pretty good. I looked in my garage and saw my motorcycle (a 2006 Honda ST-1300) that I haven't ridden in about a year. Today was in the 90s, partly cloudy, and a beautiful day. I felt good. I felt alive. So I decided to go for a ride. First motorcycle ride in over a year.

The wind in my face, the road in front of me, and my troubles behind me, it doesn't get any better than this (there's a song lyric in there - if someone uses it, I want credit - and money!). :wink:

I know that riding a motorcycle isn't exactly the safest thing in the world. If I become injured, I have to stop chemo while I heal. But - considering that I have had colon surgery and get toxic chemicals pumped into my body every couple of weeks, riding a motorcycle is the safest thing I've done in a while.

Plus, while I was riding down some lazy country roads, I could forget about cancer, staging, doctors, chemo, side-effects, hospitals, tests, and smiling nurses that carry pokie things. For the first time since I was diagnosed with cancer, I was living in the moment and not considering the future. There will come a time (hopefully in the far future) when I will no longer be able to ride. When that time comes, I can look back on today and days like this and smile. :D

And that's the point of this post. For those that are new to cancer treatment (like me) it's easy to forget to live in the moment. We all consider the future and dark thoughts are always in the back of our minds. Find something that you enjoy doing and do those things when you are in your off week and feeling good. Do something so that, for a time, you can live only in the moment and let your mind and emotions reboot. Exercise, hydration, etc, are all good things to consider for being on chemo, but you need more. Just a few precious moments every couple of weeks does wonders. Find something to enjoy and just do it (apologies to Nike).
3/11/16 Colonoscopy - 9 benign polyps, 1 large cancerous tumor in right ascending colon
4/19/16 Right colectomy
6/3/16 Two liver spots detected, added Avastin to Folfox
12/20/16 Liver surgery. Pathology shows no active cancer cells
6/7/17 Final chemo
12/5/17 Port removed
05/23/18 Liver tumor discovered in scans
04/04/19 Radiation treatment
08/15/19 Additional radiation treatment
08/21/19 NED again

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: This was a good day

Postby jhocno197 » Sun Jun 12, 2016 11:17 pm

Glad you had such a good day!!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

User avatar
Cowgirl918
Posts: 326
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: This was a good day

Postby Cowgirl918 » Sun Jun 12, 2016 11:26 pm

I love your post and your attitude. As one of my favorite cowboy movies (Lonesome Dove) makes very clear "it ain't dyin we' re talking about here it is LIVING"! Here's to every great moment of living that we can enjoy.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery

AussieAssCancer
Posts: 258
Joined: Sat May 21, 2016 10:16 am

Re: This was a good day

Postby AussieAssCancer » Mon Jun 13, 2016 2:45 am

Great to hear you had such a good day! Hope you have many more like it. It's a great way to forget about chemo cycles until before you know it, you've completed more than you have left!
Dx Oct '15 w/ Stage 3c RC/ CEA 8
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Clear CT scans in April ‘16 (NED), Dec ‘16, Aug ‘17, Feb ‘18, March ‘19, Feb ‘20
Feb '17: Ileostomy reversed
CEA Post Surgery: ALWAYS 2

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

Re: This was a good day

Postby macpudd » Mon Jun 13, 2016 5:13 am

Hi Mike,
Good to hear your having good times on your bike, I did not get out much on mine while on chemo, but making up for it now. As you say its great to have something to take your mind away from thinking constantly about our health.
Regards
Macpudd
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: This was a good day

Postby midlifemom » Mon Jun 13, 2016 5:48 am

Great post Mike.
A reminder to us all to keep living.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: This was a good day

Postby DarknessEmbraced » Mon Jun 13, 2016 9:14 am

Glad you had such a wonderful day!*hugs* Good reminder! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: This was a good day

Postby ziggymonster » Mon Jun 13, 2016 11:41 am

Great post......I rode motorcylces for 30 years, finally had to stop....too many medical issues.....I totally get what you said though.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: This was a good day

Postby juliej » Mon Jun 13, 2016 3:32 pm

Beautifully said, MikeManess! :D

People often asked me why I kept running during treatment. And the reason was because it made me feel like Superwoman. When I was running trails up in the mountains, listening to Van Morrison tracks on my iPod, I felt strong and powerful, healthy and fit, like I could conquer anything -- even the stupid-ass cancer that was inside me. Eventually the chemo took its toll and I had to slow down and run considerably less miles. But during the time I was running, I lived only in the moment, no cancer, no fear. That's what got me through my darkest days.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: This was a good day

Postby Lee » Mon Jun 13, 2016 4:35 pm

AWESOME :D

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

mostlysunny77
Posts: 47
Joined: Fri Feb 12, 2016 5:14 pm

Re: This was a good day

Postby mostlysunny77 » Tue Jun 14, 2016 7:39 am

So happy that you had such a great day!!! Loved reading your positive post!!!!!:)
"Scars are badges of courage and make you look like a pirate or a superhero." - quote from a 5 year old cancer patient.

5cm Tumor in Sigmoid Colon
Laparoscopic Sigmoid Colectomy - March 2016
Stage II Colon Cancer


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 153 guests