Paul Update PART TWO ...... FYI....Not good news

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wamo
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Paul Update PART TWO ...... FYI....Not good news

Postby wamo » Thu Dec 11, 2008 2:49 pm

So Paul had his CT scan on Tuesday and we were scheduled for today (Thursday) to meet onc and hear results. Well yesterday morning onc's office calls and wants us to come in ASAP. So we get there about 10:30 AM. Everything is growing cancer mets wise in the following areas:

Both lungs
Liver
Both Kidneys
Left Adrenal Gland

But the concerning news is Paul's previously radiated skull tumor is actively growing again AS WELL AS a new 2.5cm lesion now within the brain tissue (and they suspect there are more also) with swelling in the brain. Paul's right hand had gone numb these past two weeks and now that mystery as to why has been solved. He was put on steroids yesterday to help with swelling and today started whole brain palliative radiation. He will now have to go back on diabetes meds and monitoring glucose levels because steroids seems to bring that on for him. So for 3 weeks (M-F) he will get whole brain radiation and we are going to see what that does basically. So much for quality of life and not having treatment. But the onc said that these fast growing brain mets (nothing showed in the brain at the end of Oct) would take Paul much sooner than any of his currently growing mets. He also wants us to really consider going on Gemcitabine after Christmas and said that would at best give us an additional couple of months.

I am kinda walking around in a haze, but wanted to give the Part Two update. If you PM me it may be a while before I respond because I got the "blue screen of death" last night on my laptop.... but that has become real low priority lately.
Love to you all,
Wendy (WAMO)
Hubby-9-05 IIIC Rectal 4/11nodes 40yrs*1-06 LAR FOLFOX *6-07 Mets Lungs-FOLFIRI,Erbitux,Avastin *5-08 Skull met *9-08 ClinTrial EPO906+Celebrex *mets liver,kidneys,adrenal gld *WBRT brain mets *1-09 Gemzar/Xeloda ***2-25-09 Paul entered Heaven's gates.

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Gaelen
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Re: Paul Update PART TWO ...... FYI....Not good news

Postby Gaelen » Thu Dec 11, 2008 3:01 pm

Wendy--I wish for both of you the news had been better.
When the haze lifts (or even if things stay hazy for awhile), you know how to get in touch with me fast (my personal email).
Write if you need me.
Be in harmony with your expectations. - Life Out Loud
4/04: dx'd @48 StageIV RectalCA w/9 liver mets. 8 chemos, 4 surgeries, last remission 34 mos.
2/11 recurrence R lung, spinal bone mets - chemo, RFA lung mets
4/12 stopped treatment

luv3jay
Posts: 51
Joined: Sun Sep 07, 2008 8:30 pm

Re: Paul Update PART TWO ...... FYI....Not good news

Postby luv3jay » Thu Dec 11, 2008 3:31 pm

Wendy,

I am so sorry to hear this news. My prayers will remain with you and Paul...
-Sheri, dx @39 -kids-16,14 & 12
Rectal IV, mets to liver & lung
Neo: Avastin + FolFox
Liver resect/LAR/VATSx4 (left lung)
Bilateral thoracotomies
current:Avastin+Folfiri plus clinical trial

Margo
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Joined: Wed Dec 19, 2007 3:18 pm
Location: California

Re: Paul Update PART TWO ...... FYI....Not good news

Postby Margo » Thu Dec 11, 2008 3:55 pm

Wendy,
I will pray for you and your housband. As a caregiver I really admire you.
Be strong.
Margo
Margo,
Husband 50 yrs dx 07/16/07 CC stage III B, low grade
right colectomy 07/31/07, 50 lymph nodes/ 3 positive, surgeon Gil Galloway ( La Jolla, CA),
FOLFOX 4 ,
CEA before sur. 1.32,
NED

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justsing
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Location: Pittsburgh, PA
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Re: Paul Update PART TWO ...... FYI....Not good news

Postby justsing » Thu Dec 11, 2008 4:53 pm

Well phooey.
I guess this isn't the sunset ride you were bargaining on.

Well, time for some hard thinking about trade-offs. I wish for the haze to clear sooner for you so you can clearly assess your options. Blue screens are definitely a metaphor for something!
justsing, 46
Stage IV
colon resection 12/07
Liver resection 04/08
Phase I vaccine trial
liver, lung LN mets
tried Oxi, Iri and Avastin
now trying new chemo combos then sir spheres
College prof in theatre & voice
2 girls 18 & 14, one son 10

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bradyr
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Location: Redmond, WA

Re: Paul Update PART TWO ...... FYI....Not good news

Postby bradyr » Thu Dec 11, 2008 5:02 pm

I'm sorry to read this news Wendy. It would have been nice to at least to make it thru the holidays without more bad news.
bradyr
DX 2/07 mets liver/bone/brain/spleen
Foxfox/avastin 3-6/07
bone mets 5 times
xedada 9-7/07
Folfri 1-6/07
GammaKnife brain lesion 1/08
SIRT Spheres rlobe 7/08 llobe 8/08
cyberknife brain 10/08
Brain surgery 1/09
Vebctibix 1-4/09

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sharonr
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Re: Paul Update PART TWO ...... FYI....Not good news

Postby sharonr » Thu Dec 11, 2008 5:24 pm

Wendy, I am so sorry that things have progressed so quickly. You, Paul and your boys are in my prayers.
Bradyr's wife
DX 2/07 mets liver/bone/brain/spleen
Foxfox/avastin 3-6/07
xedada 9-7/07
Folfri 1-6/07
GammaKnife brain lesion 1/08
SIRT Spheres rlobe 7/08 llobe 8/08
cyberknife brain 10/08
Brain surgery 1/09
Vebctibix 1-4/09
Passed Away 5/21/2009

lorrainem
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Re: Paul Update PART TWO ...... FYI....Not good news

Postby lorrainem » Thu Dec 11, 2008 5:43 pm

Wendy,
We're always here for you. I'll send prayers to heaven for you, Paul and your family.
Lorraine
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08

weisssoccermom
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Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Paul Update PART TWO ...... FYI....Not good news

Postby weisssoccermom » Thu Dec 11, 2008 6:48 pm

Wendy,

I am so sorry that all of this has descended on you, particularly at this time of the year. I wish I knew the right words to say that could help ease the pain - even a little. Please know that you are in all of our thoughts and prayers and all of on this forum are here for here for you.
Take care
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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HDLadyRider
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Facebook Username: Jan Vander Werff Baker
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Re: Paul Update PART TWO ...... FYI....Not good news

Postby HDLadyRider » Thu Dec 11, 2008 7:19 pm

Wendy,

I am SO very sorry. I was so hoping for better news with part two.

Hugs and love back.

Janine
Husband...Diagnosed Sept. 07 Stage IV
Chemo until 1/29/08
Surgery on 3-17-08 - Liver/Colon Resection
Ileo reversal 5-5-08
6/08 New tumor growing in liver/More Chemo
NED since 10/08

NWgirl
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Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Paul Update PART TWO ...... FYI....Not good news

Postby NWgirl » Thu Dec 11, 2008 7:41 pm

I'm so sorry Wendy. I wish the news had been better. I don't even know what to say other than my thoughts and prayers are with you and your family at this very difficult time.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

Polarprincess
Posts: 793
Joined: Tue Aug 05, 2008 11:36 am

Re: Paul Update PART TWO ...... FYI....Not good news

Postby Polarprincess » Thu Dec 11, 2008 10:52 pm

I am so sorry. Life is just so unfair sometimes. It just doesn't make sense. Blessings to you and your family. I will be praying for you.
42 y/o Diagnosed Stage IIIa (T1 N1 of 26 M0) July 2008
LAR July 24 2008
Supposedly benign polyp with
invasive tubulovillous adenocarcinoma
12 cycles Fulfox
28 days chemoradiation
Finished April 20th 2009
Currently NED

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JessiLeigh
Posts: 110
Joined: Tue Apr 29, 2008 9:34 pm
Location: Bel Air, MD

Re: Paul Update PART TWO ...... FYI....Not good news

Postby JessiLeigh » Fri Dec 12, 2008 12:33 am

So sorry to hear the news...I will pray for you both and your family. Best of luck to all of you.

Jessica
Jessi 31 yr old Female
Bowel Perforation Dec 2007
Dx Dec 2007 Metastatic Colorectal Cancer
Liver Mets
Current Chemo: Folfiri + Avastin
NED as of Oct 8, 2008
As of Jan 2009, no more Folfiri.
Now liver mets are coming back, surgery may be next step.

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Paul Update PART TWO ...... FYI....Not good news

Postby vancouver eve » Fri Dec 12, 2008 2:50 am

So sorry to hear the news. I don't know what else to say.

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willtowin
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Location: oklahoma

Re: Paul Update PART TWO ...... FYI....Not good news

Postby willtowin » Fri Dec 12, 2008 4:00 am

Wendy--

I am so sorry this is not what you both hoped for. I will pray for peace and clarity w/ your decision making during this time.
Stage 1 -4-25-08 (lymphovascular invasion)
poorly diff
Hnpcc negative
TAH/BSO 5-08
Folfox COMPLETED 12-26-08
NED as of 12-09
gallbladder removed 3-09
appendectomy 11-2012
1-2013 FNH of liver, or Adenoma
44 year old mom to 3-10, 11 & 14


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