Cannabis oil - breathlessness

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thehunter
Posts: 65
Joined: Thu May 19, 2016 10:13 am

Cannabis oil - breathlessness

Postby thehunter » Sat Jun 04, 2016 2:30 pm

Hi everyone
Has anyone tried cannabis oil to relieve pain?
My brother has back pain from his cancer (and or chemo) so has tried a small amount of cannabis oil. He found that although it made him sleep he found it made him very breathless. Has anyone experienced this?
Thanks for any replies!
Cheers
Mar 15 stage 3 colon cancer
Apr 15 Colon resection
Cancer found LN & in fat in back
Jun 15 - 6 months chemo oxi & 5fu
Dec 15 scan : colon clear but mark on liver
Feb 16 mark on liver is a tumour
Feb 29/16 - liver resection
1 Tumour liver & attached to diapgrham & LN
May 16 - pet scan - peritoneal seeding, pelvic mass & marks in lungs & Lymph node by collarbone.
May 16 - TX: IRINOTICAN & 5 FU
Aug 16 chemo stopped. Not working.
lynch syndrome negative
KRAS Mutation present

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Cannabis oil - breathlessness

Postby Lee » Sat Jun 04, 2016 5:49 pm

While I do not have direct experience, a lot of people here have tried with great results. Guess sometime you have to tweet the formula just right. Hopefully others will be long and can offer some good advice. My suggestion for the moment is to cut back on the amount and see if that helps. If not maybe talk to folks who he got it from. They might have the right answer.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Cannabis oil - breathlessness

Postby Nik Colon » Sat Jun 04, 2016 8:17 pm

Has he smoked or done any prior to this? Some people (like myself) are more sensitive and it can cause anxiety which may bring on the breathless feeling.
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Cannabis oil - breathlessness

Postby jhocno197 » Sat Jun 04, 2016 9:35 pm

A strange allergic reaction?
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Cannabis oil - breathlessness

Postby Pita » Sat Jun 04, 2016 10:38 pm

Nope never breathless but it does take time to find the right amount and taking too many drops can cause unwanted reactions. There are so many different kinds, need to make sure you have the right one that fits your brothers situation, a good shop and shopkeeper can help with that. Good luck...
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

thehunter
Posts: 65
Joined: Thu May 19, 2016 10:13 am

Re: Cannabis oil - breathlessness

Postby thehunter » Sun Jun 05, 2016 1:41 pm

Thanks so much for replies. Will try smaller dose I think and contact the shop.
Mar 15 stage 3 colon cancer
Apr 15 Colon resection
Cancer found LN & in fat in back
Jun 15 - 6 months chemo oxi & 5fu
Dec 15 scan : colon clear but mark on liver
Feb 16 mark on liver is a tumour
Feb 29/16 - liver resection
1 Tumour liver & attached to diapgrham & LN
May 16 - pet scan - peritoneal seeding, pelvic mass & marks in lungs & Lymph node by collarbone.
May 16 - TX: IRINOTICAN & 5 FU
Aug 16 chemo stopped. Not working.
lynch syndrome negative
KRAS Mutation present

User avatar
CRguy
Posts: 9956
Joined: Sun Feb 10, 2008 6:00 pm

Re: Cannabis oil - breathlessness

Postby CRguy » Sun Jun 05, 2016 5:21 pm

You may wish to find out HOW their oil is made ????

if it is any variation of RSO recipes .... they often use a range of volatile solvents which personally, I would not want to inhale or ingest !
It may not be the cannabis itself, it may be a result of the "processing" ??? and he could be having a reaction to it.

Be prepared for them to get defensive :
" OUR product never hurt anybody... OR it is safe and been used since 1999 ... OR this is Rick's latest recipe " etc.
Caveat emptor

Best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

NateA
Posts: 115
Joined: Sun Aug 02, 2015 7:41 pm
Facebook Username: Nathan Drew Allen

Re: Cannabis oil - breathlessness

Postby NateA » Sun Jun 05, 2016 5:43 pm

I'm an oiler. Thc for tumor death, high cbd is for pain. If your not trying to kill tumors, go high cbd and low thc, see how that does.
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Cannabis oil - breathlessness

Postby Pita » Sun Jun 05, 2016 11:53 pm

What exactly is an oiler Nate? I didn't understand the info i googled. A friend made mine, not sure what strain it is but it is mixed with coconut oil which she did herself. I don't really like it, don't think it's what i need, but it works for her neck problems. Thanks for the info on the 2 kinds. I don't have pain from the tumor, but i want to be prepared in case i do, not into pills.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Cannabis oil - breathlessness

Postby Nik Colon » Mon Jun 06, 2016 12:39 am

What I think may be a big issue is MJ is not legal everwhere. So, many get theirs from who knows, yes, some grow their own, but if not, you don't know. We currently have med MJ here, but places who don't it's many times taking a gamble. I feel if it were regulated like all meds, we would know. If one doesn't work, try another, etc. This is the scary thing (especially for people who don't have alot of knowledge). If we did, the docs could adjust accordingly. Otherwise, we are like a bunch of lab rats. Jmo

I'm big on not taking anything with MJ (past reasons I won't go into) and still am against it. But now with the med uses, I am giving it thought, alot of thought as I said I would never again. Difficult decision for me.
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

OrchardWriting
Posts: 53
Joined: Wed Nov 18, 2015 9:10 am

Re: Cannabis oil - breathlessness

Postby OrchardWriting » Mon Jun 06, 2016 7:12 am

I would add that the oils and edible marijuana are much stronger than the smoked leaf, which itself is pretty strong these days.

I didn't do the oil or an edible for this reason. Instead I put a very small punch in a one hit pipe took the small hit and exhaled and that was enough to ease the chemo issues and pain for a couple of hours. It also didn't require smoking a lot, jut very small amounts every so often.
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Ooops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13.

missjv
Posts: 1416
Joined: Tue Sep 12, 2006 10:38 am
Location: FLORIDA

Re: Cannabis oil - breathlessness

Postby missjv » Wed Jun 08, 2016 9:12 am

he has to start with a very tiny amount. did he get a script for the oil? a very little goes a long way. a drop of oil the size of a grain of rice is all you should start with. you need to do the oil containing cbd in the morning and the oil containing thc in the evening and it has to be the right strain of oil. if it is not legal in your state you can go to a state where it is legal see a doctor they will tell you what you need but won't write a script and leave it up to you on how to get. at least you would know if it is the right oil and amount.

missjv

thehunter
Posts: 65
Joined: Thu May 19, 2016 10:13 am

Re: Cannabis oil - breathlessness

Postby thehunter » Wed Jun 08, 2016 9:33 am

HI there, thanks for continued replies. We are in the UK so this is bought from holland and we dont get any mdeical info with it.
Another friend who has cancer recommended where to get it.
But it seems to have not gone down so well with my brother. He took only a tiny drop (a few days after starting a new chemo (when feeling bad) so he is going to try it again during the week when he is not feeling so bad and has not had the chemo recently. hopefully that will help.
Really hoping it helps and he manages to tolerate it better.
I tried a tiny drop myself and didnt feel bad.
Thanks again..
Mar 15 stage 3 colon cancer
Apr 15 Colon resection
Cancer found LN & in fat in back
Jun 15 - 6 months chemo oxi & 5fu
Dec 15 scan : colon clear but mark on liver
Feb 16 mark on liver is a tumour
Feb 29/16 - liver resection
1 Tumour liver & attached to diapgrham & LN
May 16 - pet scan - peritoneal seeding, pelvic mass & marks in lungs & Lymph node by collarbone.
May 16 - TX: IRINOTICAN & 5 FU
Aug 16 chemo stopped. Not working.
lynch syndrome negative
KRAS Mutation present


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