Thunder10 wrote:Thank you to original poster for bringing up topic. I hope you are finding relief for the pain.
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I'm so sorry to be so late replying and hope I hope maybe something I says will still be of use or helpful. After the HIPEC he had constant pain still and then the pain began to spread to his thighs and upper leg area. He did manage to get his pain under control after seeing a pain management specialist. He's on the max dose of Morphine with some oxycodone for breakthrough pain and a high dose of Gabepentin to help with pain too (they also said its never related). Needless to say he nods off all the time and isn't having much quality of a life. Since my post he ended up going back to surgery and having 2 lymph nodes removed. His latest scan shows he is cancer free which is great but now he hasn't eaten in over 2 months because of a lymphatic leak. He goes to the hospital about every 3 days to get fluids drained. A lot of times its 4 liters or more but more recently it seems to have slowed down a bit. He's been on TPN for a while now and we were told that should help decrease the amount of fluids but it doesn't seem like that is happening. Currently he is still suffering and on pain meds but nauseated all of the time (probably bc such high dosage of pain meds without eating). He's already very thin so it's worrisome.
I guess in short to answer your question he did find relief on morphine and even now it's decreasing in effectiveness bc of his tolerance. However, now there's also this entire new problem with the leak.
I know this is a later post but I hope your mom was able to have some sort of relief. I know it is terrible to have to watch your mom suffer.