Decent Scan

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Decent Scan

Postby BrownBagger » Tue May 31, 2016 12:10 pm

Sloan-Kettering usually doesn't post the radiologist's report on the portal until after you've had a chance to review it with the doctor. This time, however, they did it before my appt. with Dr. Kemeny tomorrow. Happily, it's a good scan--some significant shrinkage in some places and stability in others. No sign of a recurrence of the bronchial tumor that I had removed in March (whew!). Since this is my first scan since starting on Xelox 2 months ago, I'm pleased that we're seeing some positive results. I don't want to take more oxi than I have to, but after four rounds it's still no big deal. I think I can do 12 rounds no problem. Not sure what the end game is on all this (other than the obvious), but it looks like I'll be around to see it.

I realize the wisdom of Sloan's policy, and I really debated peeking at the report. But, you know, couldn't help myself. At least now we don't have to spend our five-hour drive tomorrow wondering and worrying. Don't think I'll tell Kemeny that I knew in advance.

On an unrelated note, I managed to get the garden in over Memorial Day weekend, thanks to my daughter who came out from California to attend her bridal shower and of course, to help me put the garden in. It's not all that hard, mostly because the soil is very loose and workable, but I tire easily and while I have lots of stamina, it's only available in small doses. I need to rest frequently when doing any kind of hard work, but am good to go after a few minutes. So it gets done over time with persistence. Much easier having some labor available. She wants me to supply some of the food for her wedding in August, so I suggested she help me choose what to plant.

All in all, it was a wonderful weekend spent working with one of my favorite people.

I will be posting photos once there's something besides bare ground to see.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

eleven11
Posts: 130
Joined: Tue Sep 16, 2014 12:48 pm
Location: Chicago

Re: Decent Scan

Postby eleven11 » Tue May 31, 2016 12:39 pm

It makes me really happy to hear that you are doing well, BrownBagger. Hope you enjoy your time with your daughter and gardening this summer! These are the moments to keep fighting for. Cheers to you.
11/11 Mom dx @ age 50 T3M0N0
2012 12 tx FOLFOX
12/13 2 lung nodules
1/14 VATS wedge
3/14-present 5FU
4/15 Lobectomy RML

ams5796
Posts: 2290
Joined: Fri Feb 06, 2009 10:07 am

Re: Decent Scan

Postby ams5796 » Tue May 31, 2016 12:44 pm

Congratulations on your scan. It's always scary to look at the results online...and to get them in person.

Exciting news about your daughter! You'll have to post some wedding pictures soon. I got to see my daughter get married a few months ago. It was very special to be there.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Decent Scan

Postby BrownBagger » Tue May 31, 2016 12:52 pm

ams5796 wrote:Congratulations on your scan. It's always scary to look at the results online...and to get them in person.


She's pretty good at letting you know as soon as she walks in the room whether the news is good or bad. But waiting for that moment is pure torture, as I'm sure we can all appreciate.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Decent Scan

Postby midlifemom » Tue May 31, 2016 12:54 pm

Congrats on decent scan. I would call it "good" though.

Once, I was able to see my scan results online before meeting with Dr Kemeny. I prefer it that way - so I can ask questions. Butt, I also understand why most docs prefer to give the news first hand.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Decent Scan

Postby BrownBagger » Tue May 31, 2016 1:10 pm

My last scan in late March generated a call from Kemeny about 2 hours post-scan. I was about halfway home when she called my cell phone. Wanted me to return the next day to see Dr. Huang about the bronchial thing, which we did. I had surgery the following morning.

That's the kind of amazing access to treatment that's gotten me this far. It sure helps to have a doc who can get things done in a hurry when she thinks it's necessary.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

jdepp
Posts: 488
Joined: Sun Sep 28, 2008 7:53 pm

Re: Decent Scan

Postby jdepp » Tue May 31, 2016 2:08 pm

Fabulous news, Eric. Love to see you taking chemo & carrying on with life. It can be done! And it's easier when people show us how.
Colon dx 08 @ 41 Poorly diff. 12+ liver mets, 19/28 LN
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18

teachpdx
Posts: 624
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Decent Scan

Postby teachpdx » Tue May 31, 2016 2:45 pm

Glad to hear that your scan was good. It's nice that your daughter is visiting & helped you out. Now you have vegetables and a wedding to look forwasforwasrd to!
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Decent Scan

Postby DarknessEmbraced » Tue May 31, 2016 2:49 pm

I'm glad you had a good scan!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

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CRguy
Posts: 9956
Joined: Sun Feb 10, 2008 6:00 pm

Re: Decent Scan

Postby CRguy » Tue May 31, 2016 3:58 pm

Sounds like good news on all fronts my friend !!!

Glad to see some CRCass still being kicked in typical BBagger fashion :mrgreen:

MEGA Cheers bro'
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Decent Scan

Postby Nik Colon » Tue May 31, 2016 4:24 pm

Great news!
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

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juliej
Posts: 3015
Joined: Thu Aug 05, 2010 12:59 pm

Re: Decent Scan

Postby juliej » Tue May 31, 2016 4:59 pm

BrownBagger wrote:Happily, it's a good scan--some significant shrinkage in some places and stability in others. No sign of a recurrence of the bronchial tumor that I had removed in March (whew!).

Just the news I wanted to hear! Sounds like oxaliplatin is working very well!!! :D :D :D

BrownBagger wrote:I realize the wisdom of Sloan's policy, and I really debated peeking at the report. But, you know, couldn't help myself. At least now we don't have to spend our five-hour drive tomorrow wondering and worrying. Don't think I'll tell Kemeny that I knew in advance.

Probably better not to tell Sandy or Trish either. Sandy, especially, is a strong enforcer of The Rules. Anytime I do something unsanctioned and she finds out about it, she asks, "Does SHE know you're doing that?" -- as she jots down my offense on the notes she gives to Dr. K. :roll:

I'm conflicted over the policy. On one hand, it's up to the oncologist to interpret the results so patients don't misread anything in the report and flip out over something inconsequential. On the other hand, patients who've had years of experience with CT scans are pretty savvy about reading those reports. Waiting to hear the results from the onc can be pretty stressful, even for pro's like us.

BrownBagger wrote:I managed to get the garden in over Memorial Day weekend, thanks to my daughter who came out from California to attend her bridal shower and of course, to help me put the garden in. It's not all that hard, mostly because the soil is very loose and workable, but I tire easily and while I have lots of stamina, it's only available in small doses. I need to rest frequently when doing any kind of hard work, but am good to go after a few minutes. So it gets done over time with persistence. Much easier having some labor available. She wants me to supply some of the food for her wedding in August, so I suggested she help me choose what to plant.

Your daughter's getting married? Cool! Will the wedding be at your house? I hope you use the drone to cover the event wherever it is!

I was the same way doing hard work on chemo. Tired but with lots of stamina. It was like a timer went off every few hours. BEEP - time to sit down and rest! I had to literally stop what I was doing and just sit or lie down in the shade. After 15-30 minutes of rest I was good to go again.
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 6/13/2019, CEA<1

Lee
Posts: 5939
Joined: Sun Apr 16, 2006 4:09 pm

Re: Decent Scan

Postby Lee » Tue May 31, 2016 5:56 pm

Congratulations on your scan results. Keep it up.

I wanna see pic of your garden.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

DebZ
Posts: 83
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: Decent Scan

Postby DebZ » Tue May 31, 2016 6:10 pm

Congrats on good scan! May I ask if only in lungs and how many? Mine are scattered throughout lungs but really tiny and I'm on Folfiri w/ Avastin. Haven't had scan since starting back on chemo.
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)

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HopeForJesse
Posts: 249
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Decent Scan

Postby HopeForJesse » Tue May 31, 2016 7:20 pm

Congrats on the positive news and lucky portal peeking :) enjoy the garden and wedding plans!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!


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