SCARED/WORRIED

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CFrancis73
Posts: 24
Joined: Tue May 17, 2016 2:01 pm

SCARED/WORRIED

Postby CFrancis73 » Tue May 24, 2016 6:12 am

Good Morning Everyone,
Today is the day, we get the results of my Mom PET scan results to see exactly what the 12 rounds of modified FOLFOX 6 did for her! I am a nervous wreck! Being in the medical field, I understand all of this BUT...when it comes to my Mom its just so different. I really don't even know how to gauge or even visualize what this appointment is going to be like this morning because, My Mom is doing great other then her now broken arm. She carries on like normal, she gets tired here and there and will nap and rest in little spurts throughout the day but overall she is living life. I have said it so many times, how can someone live life like she is living and have this terrible monster inside of her. Please send positive vibes and prayers her way today! Thank you all so much!
Daughter to a 56 yr old Mother
Stage IV signet ring cell rectal cancer
Poorly differentiated
at this time not a candidate for surgery or HIPEC
mets to peritoneum
no CEA numbers ever run on her
KRAS wild type
11/2015 Modified FOLFOX 6
5/2016 completed 12 rounds of FOLFOX 6
CT scan after 4th round, improvement
PET scan 5/2016 showed non activity in all cancer areas but two nodules (1/lung)
but oncologist believe its chemo induced, not concerned at this time
Laparoscopy scheduled 6/28/16

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: SCARED/WORRIED

Postby midlifemom » Tue May 24, 2016 6:52 am

Sending positive vibes!
Good luck!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: SCARED/WORRIED

Postby AppleTree » Tue May 24, 2016 8:00 am

Wishing you peace of mind on this stressful day! Nerve wracking waiting for results.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: SCARED/WORRIED

Postby DarknessEmbraced » Tue May 24, 2016 12:42 pm

Sending good vibes and peace!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Colon King
Posts: 52
Joined: Tue May 17, 2016 9:13 pm
Location: Canada
Contact:

Re: SCARED/WORRIED

Postby Colon King » Tue May 24, 2016 9:57 pm

wishing you strength and a clear vision of healing and recovery.
39 year old male, Canada.
Husband; father of 4.

5/16/16: 3cm x 4cm Intermediate Serrated Polyp found by fluke (elective colonoscopy)
5/20/16: CEA 1.7 (phew)
06/10/16: EMR complete
06/16/16: Biopsy result: Fragments of tubulovillous adenoma; negative for high grade dysplasia
09/08/16: Follow up Colonoscopy scheduled.

My blog: https://colonking.com


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