14 year old boy with high grade dysplasia polyp

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Knowlesy
Posts: 1
Joined: Sun May 22, 2016 4:33 am

14 year old boy with high grade dysplasia polyp

Postby Knowlesy » Sun May 22, 2016 4:41 am

Hi My son has the above - it has now been removed - is there anyone with any knowledge of this in someone so young?

Thanks
H

crazylife
Posts: 255
Joined: Wed Dec 30, 2015 11:29 am

Re: 14 year old boy with high grade dysplasia polyp

Postby crazylife » Sun May 22, 2016 12:26 pm

Good grief! This scares the shit out of me. So great you had him checked and it was found. What prompted a colonoscopy so young?
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

Lee
Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: 14 year old boy with high grade dysplasia polyp

Postby Lee » Sun May 22, 2016 7:30 pm

This is not the first time I have heard of this. There is an old member here something like Harleymom who"s son was diagnosed with CC in his teens. It was a miracle, he survived, last I heard he was a healthy young man. I know of a family who's kids started getting scoped at age 10 simply because Mom was diagnosed in her 20's with CC. Very rare, butt it has happened.

On another site many many years ago, a young boy at around age 16 was found to have many polyps, Mom wanted her son to get a permanent colostomy (ie all of colon removed) and avoid colon cancer. While I understood her fears, 16 is a young age to deal with a bag especially for gym and showers and class mates. My recommendation, get scoped every 6 months until he was 18/21, of legal age to make his own decision.

What is his Dr saying would be the next best course? Monitor?

All the best to you and your son.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: 14 year old boy with high grade dysplasia polyp

Postby jhocno197 » Sun May 22, 2016 8:39 pm

There was a 13 year old over the last year who had stage IV colon cancer.

So scary! I am so sorry you guys are having to deal with this!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

User avatar
elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: 14 year old boy with high grade dysplasia polyp

Postby elise » Mon May 23, 2016 8:52 am

With the size of my tumours, it would have made sense that I had polyps starting between 16-18. I'm so glad he's had it removed. Personally I'd scope every year or two until there are a few clean then spread out to 3 years.

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

DarknessEmbraced
Posts: 3444
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 14 year old boy with high grade dysplasia polyp

Postby DarknessEmbraced » Mon May 23, 2016 9:14 am

I'm so sorry your son is dealing with this!*hugs* I agree it would be best for him to get colonoscopies yearly.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Nik Colon

Re: 14 year old boy with high grade dysplasia polyp

Postby Nik Colon » Mon May 23, 2016 9:28 am

So sorry, it's rare but it happens. Best wishes


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