My oncologist dumped me. Officially 5 years NED!

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: My oncologist dumped me. Officially 5 years NED!

Postby CRguy » Mon May 23, 2016 9:51 pm

ALL I gots to say buddy is :
The squirrel
... Ya know the happy dancin' one ?????
Image

Keep it real and keep kickin' CRC BUTT !!!!!

Cheers and Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: My oncologist dumped me. Officially 5 years NED!

Postby Pita » Tue May 24, 2016 12:16 am

Congrats! That's wonderful, can't wait to be on the horizon with you.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin

nicola smith
Posts: 1040
Joined: Thu Oct 07, 2010 9:06 am

Re: My oncologist dumped me. Officially 5 years NED!

Postby nicola smith » Tue May 24, 2016 10:59 pm

Brilliant news.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

testing765
Posts: 324
Joined: Tue Aug 19, 2014 9:41 am

Re: My oncologist dumped me. Officially 5 years NED!

Postby testing765 » Wed May 25, 2016 2:31 am

Great news. I hope to be where you are some day.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

kspoon17
Posts: 8
Joined: Mon May 23, 2016 4:46 am
Facebook Username: kilian.geoghegan

Re: My oncologist dumped me. Officially 5 years NED!

Postby kspoon17 » Wed May 25, 2016 3:34 am

I just love those posts.
May you stay NED forever.
12/2015: 34 yo Male Dx stage IV colon cancer with inoperable (19+) liver mets. Primary 4cm×3.5cm in transverse colon. BRAF V600E mutant - MSS
01/2016 - 05/2016: Folfirinox (3 rounds) then Folfoxiri Avastin (4 rounds) then Folfiri Avastin (3 rounds)
05/2016: Latest CT/MRI/Pet show some significant shrinkage on most lesions but one liver lesion growing (progressive disease)
CEA / CA199 : 205 / 182 pre-chemo & 295 / 1600 current

PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: My oncologist dumped me. Officially 5 years NED!

Postby PainInTheAss » Wed May 25, 2016 11:43 am

Congratulations!

My Oncologist said I will get dumped at 5 years. I'm looking forward to it! :-)
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: My oncologist dumped me. Officially 5 years NED!

Postby nkoske » Wed May 25, 2016 11:46 am

Phenomenal news!!
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

Nik Colon

Re: My oncologist dumped me. Officially 5 years NED!

Postby Nik Colon » Wed May 25, 2016 3:53 pm

Awesome! Congrats!

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: My oncologist dumped me. Officially 5 years NED!

Postby juliej » Wed May 25, 2016 6:41 pm

High-fives to you, dude! AMAZING! Five years! :D :D :D

As we both know, you play the cards you're dealt. That's it. I may throw 'em across the room every once in a while, freak out in a existentialist fit about why the Emperor of Maladies picked on me, but then I'll always go pick them back up and presence myself to deep gratitude for the privilege of still being in the game.

Wishing you a very long and healthy life!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: My oncologist dumped me. Officially 5 years NED!

Postby horizon » Wed May 25, 2016 9:59 pm

Thanks again everyone. :)

juliej wrote:As we both know, you play the cards you're dealt. That's it. I may throw 'em across the room every once in a while, freak out in a existentialist fit about why the Emperor of Maladies picked on me, but then I'll always go pick them back up and presence myself to deep gratitude for the privilege of still being in the game.


SO true and I get it. I dealt with a lot of anger when I was first diagnosed. I took care of myself, I don't meet any of the risk factors, and everyone in the waiting room looks like my grandparents. How on earth is this happening to me? Now I appreciate in many ways how lucky I am.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

Wilson02
Posts: 21
Joined: Wed Feb 24, 2016 1:08 pm

Re: My oncologist dumped me. Officially 5 years NED!

Postby Wilson02 » Thu May 26, 2016 4:18 am

Congrats! Great news!!!
Stage 3b CC
Diagnosed 05/27/15
Folfox 07/15 to 01/16 12 cycles
CEA at diagnosis (05/15) 18.8
CEA after surgery (05/15) 3.9
CEA 02/08/2016 - 6.8
CEA 03/08/2016 - 7.1
CEA 05/09/2016 - 6.6


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