PET Scan Head First?

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yence99
Posts: 9
Joined: Fri Mar 18, 2016 8:59 am

PET Scan Head First?

Postby yence99 » Thu May 12, 2016 2:49 pm

Ok, I realize this is kind of silly but anybody that has issues with claustrophobia will understand... A few weeks ago I had my first PET/CT scan. They scanned everything from my head down to my knees almost. The CT scan is a breeze as it is real fast. Now, the PET is a different story. They started with my knees and then worked their way up towards my head. In other words, when the PET scan started my head was outside the machine and then I was inching closer and closer. I pretty much had a panic attack, but managed to get through it somehow. The problem could easily be avoided if we simply had started with the head and then slowly I would move out. That way I would start with the worst part and have something "to look forward to" instead of seeing the machine come closer and closer.

I should have asked the technician if they can reverse the order (start with head and finish with the knees), but I didn't. Does anyone here have any idea / personal experience?

Thanks!

Nik Colon

Re: PET Scan Head First?

Postby Nik Colon » Thu May 12, 2016 8:08 pm

Both times I had a PET, head coming out of machine at the end, not going in at the end. (I remember my first one as my head slowly came out of the machine cuz it had digiral numbers and i watching the numbers counting down). That machine was sooo quiet and moved so slow I didn't know it was moving at first. The 2nd when I had the combo ct/pet, the pet part seemed to stop, then move like an inch or so quick, then stop, repeat for about a half hr or so. I just remembered being in the machine and slowly my head coming out the top at the end (unless my memory is backward, lol)
Last edited by Nik Colon on Thu May 12, 2016 10:18 pm, edited 2 times in total.

yence99
Posts: 9
Joined: Fri Mar 18, 2016 8:59 am

Re: PET Scan Head First?

Postby yence99 » Thu May 12, 2016 8:59 pm

interesting. When I had my scan, I started with the head out and the scan started at my knees or thighs. At the end of my scan my head was in the machine.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: PET Scan Head First?

Postby Lydia666 » Thu May 12, 2016 9:11 pm

I know, PET scan sucks and the mri is the absolute worst! The PET was head last if i remember correctly. During the MRI you are completely in, maybe half of head out but thats nothing. I have a panic attack just thinking about it!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

RobDontGiveUp
Posts: 30
Joined: Mon Jul 06, 2015 9:17 pm

Re: PET Scan Head First?

Postby RobDontGiveUp » Thu May 12, 2016 9:49 pm

I have claustrophobia but I found the perfect solution. I just close my eyes. I used to be a nervous wreck even when getting blood drawn so now I just look away. Try it. It works!!!
35 M dx Stage IVA colon cancer 7/15 w/
mets to retroperitoneal lymph nodes, suspected neck and para aortic as well
CAA 19-9 <3
12 rounds of FOLFOX W Vectibix 7/15
partial remission with shrinkage of tumor and ln's. Switch to XelodaAvastin 12/15
complete remission NED 6/16 Still on XelodaAvastin
Cancer returns in ln's Start Folfiri Vectibix 10/16
Shrinkage in ln's Folfiri vectibix 2/17
Tumor returns to cecum but ln's remain stable, right hemi 7/17
Folfiri Vectibix 8/17
lung mets 2 nods 2.5cm Stivarga 6/18

User avatar
elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: PET Scan Head First?

Postby elise » Fri May 13, 2016 6:44 am

I went in head first to the PET. MRI i've had both ways to help claustrophobia :)

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

Lee
Posts: 6034
Joined: Sun Apr 16, 2006 4:09 pm

Re: PET Scan Head First?

Postby Lee » Sun May 15, 2016 7:54 pm

Close your eyes at beginning and keep them closed till you are finished with procedure. It's what get me through.

My husband has to be medicated to get through these procedure, They give him an IV and he is in happy land during procedure.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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