Postby DarknessEmbraced » Wed May 11, 2016 4:21 pm
I have my genetic counseling session via video conferencing May 24th. They will decide then whether they will do genetic testing. I want genetic testing because of how young I was at diagnosis, and also because I don't know any health history of my father's side of the family since I don't know him or anyone on his side. I filled out a questionnaire that I sent to the center where they do the genetic testing. What sort of questions should I ask them? I also noticed that they do testing for MEN(multiple endocrine neoplasia). I had both parathyroids on the left removed due to hyperparathyroidism and am having issues with high parathyroid hormone levels, borderline high calcium, very low vitamin D and osteoporosis.(again) MEN can cause tumors in other endocrine glands.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!