It is a recurrence

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Apple1291
Posts: 65
Joined: Mon Jul 04, 2011 2:14 pm

It is a recurrence

Postby Apple1291 » Wed May 11, 2016 3:15 pm

My dad had a colonoscopy this morning. They found a tumour at the original resection site between the large and small bowel. They are also assuming the peritoneal nodules are mets. The surgeon said no surgery just chemo although it probably won't help. He has an appointment with his onc on Friday morning to figure it all out. So far I think I've read what seems like the entire internet and I know that there are still some options. He's currently being treated at Credit Valley in Mississauga, Ontario. I'd like him to get a second opinion at Mount Sinai and Princess Margaret in Toronto. I know that Mount Sinai has a hipec specialist.

I have 2 questions for you guys...

1. How do we get a second opinion? It seems like everything takes soooo long. It took almost a month to get a colonoscopy done after his last scan showed some trouble spots.

2. How do I deal with all of the emotional stuff that I'm feeling? My heart is truly broken. I'd go into detail about how amazing my dad is, but I'm not sure my heart can handle that right now.

I'm sure I'll have more questions and I'm so grateful for any advice.

Annie
Daughter to Dear Father 57 years old at diagnosis
T4N0MO July/11
12 rounds folfox completed March/12
Recurrence June/16 peritoneal carcinomatosis
12 rounds folfiri and avastin completed November/16

DarknessEmbraced
Posts: 3444
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: It is a recurrence

Postby DarknessEmbraced » Wed May 11, 2016 4:23 pm

I'm so sorry to hear about your Dad!*hugs* I can't give any advice but just wanted to let you know that we are here for you!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: It is a recurrence

Postby elise » Wed May 11, 2016 7:05 pm

Hi Annie (from Ottawa ON!)

second opinions are tricky in Canada :( Easiest way I've found is to go to your GP and ask them to request it with the person you want to meet. Though I would start chemo while you're waiting. Several people here have had HIPEC and Steph had it in Toronto region. I'll see if I can PM you both in one message :)

The emotional stuff is it's own thing :( Seek out the help of a counsellor. IMO its hugely helpful.

Chin up,
Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

Nik Colon

Re: It is a recurrence

Postby Nik Colon » Wed May 11, 2016 7:20 pm

So sorry :( Best wishes

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: It is a recurrence

Postby Steph20021 » Thu May 12, 2016 8:34 am

Annie I pm'd you. Always happy to chat.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

Apple1291
Posts: 65
Joined: Mon Jul 04, 2011 2:14 pm

Re: It is a recurrence

Postby Apple1291 » Thu May 12, 2016 8:58 am

Thanks for all of the support. Yesterday my heart was in a million pieces. Kindness from the lovely people in this club means so very much.

Annie
Daughter to Dear Father 57 years old at diagnosis
T4N0MO July/11
12 rounds folfox completed March/12
Recurrence June/16 peritoneal carcinomatosis
12 rounds folfiri and avastin completed November/16


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