Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

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DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby DK37 » Fri May 06, 2016 11:56 am

Two days after this photo on Tuesday I was vomiting a dozen times in the FOLFIRI infusion chair - but on Sunday I was giving a giant F-You to cancer as I crossed the San Diego Team Triathlon Finish Line... Official photo arrived this morning :D

Image

-DK37
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby midlifemom » Fri May 06, 2016 12:32 pm

Go DK!!! Awesome (the finish line, not the puking)
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby CRguy » Fri May 06, 2016 3:30 pm

Well done buddy !
another epic effort on your part, all the while continually updating us here
with all the latest.

I salute you good sir !

Cheers and Harmony bro'
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Nik Colon

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby Nik Colon » Fri May 06, 2016 5:13 pm

Great job DK! You are truly an inspiration!

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby juliej » Fri May 06, 2016 5:51 pm

Awesome photo, DK! :D You look really strong crossing the finish line. Cancer sucks -- friends, love, and amazing attitudes such as yours kick ass! Be blessed and know you have an army at your back cheering you on!

Julie
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

DebZ
Posts: 83
Joined: Fri Nov 14, 2014 9:01 pm
Facebook Username: Bulc

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby DebZ » Fri May 06, 2016 6:59 pm

That is seriously the most amazing picture. Showing the world that cancer may take away some things from us but not our spirit. Congrats on the run. I'm now going to hit the treadmill for my two miles that I've been putting off all day!
48 @ diagnosis Sept 2014
MSS; Kras mutant G12D
Oct 2014: right hemicolectomy
Dec 2014-May 2015: Folfox
June 2015: clean scans
Sept 2015: scans reveal ovarian mass and liver met; Folfiri
Jan 2016: liver wedge resection and hysterectomy
April 2016: multiple lung mets; Folfiri+Avastin
June 2017: lung mets growing; switch to Folfox+Avastin
Jan-April 2018: dropped oxali; CEA rising
May 2018: back on Folfox+Avastin, add pulse steroid treatment to get platelet count up (continuously in 50s)

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby Stanfordmom » Fri May 06, 2016 8:42 pm

You look great, Tom!

You are such an inspiration for us!

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Team Triathlon on FOLFIRI - a Giant F-You to Stage IV CRC

Postby mariane » Fri May 06, 2016 9:16 pm

You give me so much hope, Tom!
I check your blog and facebook every day. It is a ray of sunshine for me and inspiration.

Thank you!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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