Even Cowgirls get the Blues
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Cowgirl918
- Posts: 326
- Joined: Sun Jan 17, 2016 12:55 am
- Location: Indiana
Even Cowgirls get the Blues
Going through another strong round of multiple antibiotics etc. before my next EMR in August. It is nothing compared to chemo or radiation and yet right now, today, it feels like just one more obnoxious process. My life is interrupted, I feel poorly and I am missing my life. My world used to be so BIG. Now I run from the bedroom to the bathroom and use art to pass my time. Maybe we all wish we could turn back the clock. Maybe some with cures are glad they have survived the passage. I guess this Cowgirl just has the blues today. Thanks for letting me share with all of you.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery
Re: Even Cowgirls get the Blues
I am sure we all have days like that. I am sad because my surgery will take away from me being able to go see my family for 7 weeks. I will go for 3 (hopefully), so better than nothing. It is the only time a year I can go. And, they are taking my son for the summer so that is nice for him. I try to focus on the positive, but it is hard some days!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital
2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital
2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!
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Travelgirl
- Posts: 123
- Joined: Sun Dec 20, 2015 4:17 am
- Facebook Username: Jac gar
- Location: Florida
Re: Even Cowgirls get the Blues
Oh cowgirl hang in there.
You have to remain positive. I know it is so hard sometimes but you have to smile.
It isn't fun being sick.. But think of things that bring you joy.
Here am I talking the travel girl , who has been burying myself in work.
I walk around with constant acid reflex, cause I drink way too much coffee and tea. It's my only addiction I have left caffeine.. There are days the chest pain is brutal. Like the last few days.. I over drank tea cause I been exhausted and I can't be sleeping I need to working.
Hugs my friend
You have to remain positive. I know it is so hard sometimes but you have to smile.
It isn't fun being sick.. But think of things that bring you joy.
Here am I talking the travel girl , who has been burying myself in work.
I walk around with constant acid reflex, cause I drink way too much coffee and tea. It's my only addiction I have left caffeine.. There are days the chest pain is brutal. Like the last few days.. I over drank tea cause I been exhausted and I can't be sleeping I need to working.
Hugs my friend
Travel Girl
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.
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Joannerogers
- Posts: 260
- Joined: Tue Jun 16, 2015 4:50 pm
Re: Even Cowgirls get the Blues
I wish so many times to turn back the clock to when I wasn't sick! Summer's coming up and with this ilieostomy I'll be missing my pool time, but then I think things could be worse, and for a lot of people they are much worse so I'm thankful for where I'm at in my life. Cheer up.....if you're still frowning stand on your head and you'll be smiling then.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
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Cowgirl918
- Posts: 326
- Joined: Sun Jan 17, 2016 12:55 am
- Location: Indiana
Re: Even Cowgirls get the Blues
Thanks to all for support. I feel better today and have accepted that I can not ride my horse until this treatment is done. I did take a lounge chair out into the beautiful afternoon sun today. I would rather be puny outside with my pups and watching the birds than chair bound inside. On the bright side, I only have 8 more days! And I have already lost 5lbs which I can spare 
Better days should be around the corner!
Better days should be around the corner!
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery
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