PET/CT done on Monday

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Nik Colon

PET/CT done on Monday

Postby Nik Colon » Wed May 04, 2016 1:59 am

I have the CD's, just wish I could understand exactly what to look for. 2 discs. Interesting tho. As I mentioned, I don't see my onc till next Tuesday :(
I will update here when I get the results. Kinda nervous :shock:

michelle c
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Re: PET/CT done on Monday

Postby michelle c » Wed May 04, 2016 5:59 am

Waiting sucks :? That's a long time to wait for results. Hang in there and wishing you the best for your results. Keep busy and distracted in the meantime. It's not easy but it does help to ward off the looming anxiety. Did you have your CEA tested also?
Probably best not to try to read or decify the CD's - too easy to see something that's not there or misread them. When I was getting down once from having a CT, I looked up at the screen and saw lots of "blobs" on it - of course, for a minute, I imagined that all those blobs were tumours :shock: They weren't of course :) Just my crazy anxious mind.
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

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Jacques
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Location: Occitanie

Re: PET/CT done on Monday

Postby Jacques » Wed May 04, 2016 6:26 am

Nik Colon wrote:I have the CD's, just wish I could understand exactly what to look for. 2 discs. Interesting tho. As I mentioned, I don't see my onc till next Tuesday :(
I will update here when I get the results. Kinda nervous :shock:

Do you know if the radiologists are going to compare this PET/CT scan with the CT scans from your former hospital? Do you have CDs of your earlier scans from the other facility? If so, it would be nice if the radiologist could have a look at the sequence of scans over time to see if there is a pattern or a trend.

I think that normally when a doctor prescribes a scan he/she will give the context in the prescription so that the radiologist will know what the original diagnosis was and what he/she should focus on. For example, "something like: : "RX: a CTscan of the thorax of colon cancer patient to check on status of suspicious nodules found earlier in the lower right lobe..." , or whatever...

CLD
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Joined: Fri Mar 27, 2015 7:16 pm

Re: PET/CT done on Monday

Postby CLD » Wed May 04, 2016 6:33 am

Good luck Nik!
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

Nik Colon

Re: PET/CT done on Monday

Postby Nik Colon » Wed May 04, 2016 7:59 am

Thanks everyone. I have been going here for awhile (did my last 6 tx here) and think they have all my previous scans.

Jleefitness
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Facebook Username: Jonathan Woon Lee

Re: PET/CT done on Monday

Postby Jleefitness » Wed May 04, 2016 8:32 am

Sending you good vibes from arkansas. Waiting on scan results are so shitty, really wish they can tell you same day or the very next following day. I wonder if the docs really understand how much of a torture it is.

AppleTree
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Joined: Fri Mar 18, 2016 8:16 am

Re: PET/CT done on Monday

Postby AppleTree » Wed May 04, 2016 12:49 pm

Sending you best wishes as you wait. Waiting is awful and the mind can imagine all sorts of things. Too bad you have to wait such a long time.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

esscape
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Location: Turkey/Istanbul

Re: PET/CT done on Monday

Postby esscape » Wed May 04, 2016 1:26 pm

I'm sending you good vibes from istanbul. Good luck:)
My Sister dx @ age 36 Ultra Low Rectal Cancer(signet ring cell) November 2015
Finished 5 weeks rad/5FU January 2016
History of Ulcerative Colitis 1998-2008
History of Crohn's Disease 2008
APR surgery April 2016
Permanent colostomy April 2016
Path report: T3N2M0 stage 3c
Started adjuvant chemo Xelox

DarknessEmbraced
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Re: PET/CT done on Monday

Postby DarknessEmbraced » Wed May 04, 2016 2:25 pm

Sending good vibes from Canada!*hugs* Hope you get good results Nik!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Nik Colon

Re: PET/CT done on Monday

Postby Nik Colon » Wed May 04, 2016 3:11 pm

Thanks. I don't know why my follow up this time is so long, normally for my CTs it's has always been 2 days. Maybe whoever is reading it or my onc aren't available til then this time, but it sux.

Joannerogers
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Re: PET/CT done on Monday

Postby Joannerogers » Thu May 05, 2016 10:03 pm

Nik, call them tomorrow and get a verbal report. I do it all the time! I don't like waiting.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

Nik Colon

Re: PET/CT done on Monday

Postby Nik Colon » Thu May 05, 2016 10:43 pm

Joannerogers wrote:Nik, call them tomorrow and get a verbal report. I do it all the time! I don't like waiting.

I will try. Right now I am dealing with some issues which are more important to me than my results. I will see what tomorrow brings, but thank you. I will update with all details soon.

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Cowgirl918
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Location: Indiana

Re: PET/CT done on Monday

Postby Cowgirl918 » Thu May 05, 2016 11:44 pm

I hate waiting. I listen to Vilca when she speaks of patience and try to learn. I am wishing and praying for the very best results.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery

Nik Colon

Re: PET/CT done on Monday

Postby Nik Colon » Fri May 06, 2016 1:08 am

Thank you all again. For pet owners you may know where I am coming from. Although I am sure many dont have ferrets, we do. 2 males (Loki and Chaos) Loki recently fell ill, brought him in and did what we could afford. Steroids and Protein food powder. It's been a week and today he really didn't want any. I have grown up with animals since I was born. I know he is at his end. I am torn, bring him in in the morning or let him be at home. His brother just a few hrs ago left his side and went up top, laid down with his nose poking out, then went into their other sleeping place. To me it was another sign. My heart is broken as I don't know what to do. My parent said they would pay to bring him in tomorrow if I wanted, but I know animals know and don't want to if it's what he wants. I am a mess tho. We brought them to our room and had his food to eat but he didn't want it. I know this is not good. I do not want to force him as animals know what they need. I just can't get over the sadness I feel. Let him go natural at home or bring him in. I feel he wants to go at home. I told him I loved him and if he needed to go it was ok. I'm sure others who don't know ferrets may not view them the same as dogs or cats or other animals, but they are my babies and it breaks my heart. So, I apologize if I'm moody. Loki, my scans, and other issues are making my time right now difficult. I can type about it but can't talk about it without breaking down.

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spinnz
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Re: PET/CT done on Monday

Postby spinnz » Fri May 06, 2016 7:48 am

Nik, I am so sorry you are going through this, especially while you are waiting on scan results!! ((((HUGS))))
Dx age 53 10/8/15
Lap/robotic converted to open sigmoid colectomy, partial small-bowel resection and right salpingo-oophorectomy 10-9-15
CRC stage 3b, T3N1aM0
Margins clear of malignancy
1/27 lymph nodes
Well differentiated
CAT / MRI's indicate NED
FOLFOX + Neulasta- 2 rounds 11/15
Xeloda, 1 week on 1 week off 1/16- 5/16
1/5/16 CEA 1.0, 5/16, 1.0
Factor 13-bleeding disorder
NEW DX
11/15/18 IDC


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