Newly diagnosed, now my mom

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Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Newly diagnosed, now my mom

Postby Youngjen81 » Tue May 03, 2016 12:06 pm

I joined this "club" of cancer in February. I am 35, my lovely, beautiful mother is 56.
She had her first colonoscopy today. A rectal mass was found along with 2 polyps.
My heart is broken.
She is going for blood work now, ct in a few hours.
Please send thoughts and prayers to the most wonderful mother and grandmother. She has been our #1 support since my diagnosis.
I hate this.
I am on a wait list for genetics, they are scheduled out until late june. I am fearful for my sons future as well.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

stu
Posts: 1461
Joined: Sat Aug 17, 2013 5:46 pm

Re: Newly diagnosed, now my mom

Postby stu » Tue May 03, 2016 2:01 pm

Hi,
Thinking of you and your mum. You have both been through so much and I know you will be a great support to her. One step at a time.
Kind regards
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Nik Colon

Re: Newly diagnosed, now my mom

Postby Nik Colon » Tue May 03, 2016 8:00 pm

Hugs and best wishes

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Newly diagnosed, now my mom

Postby jhocno197 » Wed May 04, 2016 8:26 am

:(
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Newly diagnosed, now my mom

Postby DarknessEmbraced » Wed May 04, 2016 2:31 pm

*hugs* Hope everything goes well for you and your Mom!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Newly diagnosed, now my mom

Postby peanut_8 » Wed May 04, 2016 3:10 pm

That really sucks jen. Butt I guess if you look on the bright side, she found out sooner rather than later because of your diagnosis. That has to be good.
Hope you both do well in treatment.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: Newly diagnosed, now my mom

Postby Youngjen81 » Wed May 04, 2016 10:38 pm

Thank you for the support. We are waiting for ct results still...tomorrow we should know more.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

Orissia
Posts: 22
Joined: Wed May 04, 2016 10:20 am

Re: Newly diagnosed, now my mom

Postby Orissia » Thu May 05, 2016 3:05 am

Thinking of you both
Stage 4 colon cancer w. mets to liver
No surgeries, primary tumour & mets still in situ
MSS, KRAS wild type (normal)
2014 Folfox w. Avastin
2015 Folfiri w. Zaltrap
2016 Erbitux fail
June 2016 SIRT done; approved for TAS 102/ Lonsurf
Looking to participate in MSS immuno trial when they start recruiting, if Lonsurf fails


Married since 2007 with a 8 year old daughter.

Wilson02
Posts: 21
Joined: Wed Feb 24, 2016 1:08 pm

Re: Newly diagnosed, now my mom

Postby Wilson02 » Thu May 05, 2016 3:38 pm

Prayers for you and your mom.
Stage 3b CC
Diagnosed 05/27/15
Folfox 07/15 to 01/16 12 cycles
CEA at diagnosis (05/15) 18.8
CEA after surgery (05/15) 3.9
CEA 02/08/2016 - 6.8
CEA 03/08/2016 - 7.1
CEA 05/09/2016 - 6.6

User avatar
Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: Newly diagnosed, now my mom

Postby Youngjen81 » Thu May 12, 2016 12:27 am

So she also has a moderately differentiated adenocarcinoma, 10 cm in. The CT picked up multiple spots on both kidneys and liver. We were told these could be cysts. Her ultrasound is next week and meeting with the surgeon 2 days afterwards.
Still pretty shocked how fast life can change.
Back to waiting.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

kandj
Posts: 308
Joined: Sun Sep 27, 2015 11:29 am

Re: Newly diagnosed, now my mom

Postby kandj » Thu May 12, 2016 8:53 am

I am so sorry! How scary. Genetic counseling and testing is a must. To be honest, I would push for your 22 to have a colonoscopy if he is your biological child. We were told to go 10 years out from diagnosis, but then the Gastro said he would have our kids get their first colonoscopy at 20 to be safe. Also, any siblings you share with your mom should go have a colonoscopy as well. No point waiting for genetics, since there are unknown genetics out there that might cause familial CC that we don't know about yet.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resect 5/19/2016 15-20 mets (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again
9/2020 SBRT on Adrenal Met 11/2020 New liver met to deal with

User avatar
Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: Newly diagnosed, now my mom

Postby Youngjen81 » Sat Jun 11, 2016 4:59 pm

Just an update: Can't believe how quick the time has gone. I have completed my chemoradiation and am feeling 98%. Surgery is scheduled for June 21st. I had my 3 month follow up ct on Thursday evening, expecting results on Monday.
An in office scope shows my tumor is about 5mm now, pretty good response from treatment. What I like best is all the mucous and bleeding I've struggled with for years is gone!
Interestingly my genetic testing came back pretty normal, no breast or colon cancer genes.
My moms treatment starts next week, her first infusion is the day before my surgery. She us having a port inserted Thursday.
I requested 6 weeks leave from work to recover from surgery and begin chemo. I hope to go back part time prior, wait and see how recovery goes.
Thank you to everyone who posts on this site, sure has helped me through some rough days.
Good luck and God bless.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

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nitebreez
Posts: 79
Joined: Sun Mar 24, 2013 3:37 pm
Location: West Central Florida
Contact:

Re: Newly diagnosed, now my mom

Postby nitebreez » Sat Jun 11, 2016 6:27 pm

I see you have four boys???? Did I see that right? You have to be made out of STEEL to begin with! :D
Wishing you and your Mom the very best,.....
Yeah,..I went years with symptoms,..and just ignored them. Big mistake. I kept thinking that whatever it was,..I always got over it. Thank goodness your mucous and bleeding problems are gone now! And best thoughts,..wishes,...vibes,..etc. etc. etc. to you and your Mom. (and to them thar 4 boys!). Gosh, you have your hands full.
T4a-Nx-M0 cc (perforated colon) Septic shock
2/19/13 emergency surgery/colostomy
4/13/13 colostomy reversed (reconnected!)
1/22/14 folfox completed
3/3/14 CT Scan NED
4/15/16 CEAs still low

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Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: Newly diagnosed, now my mom

Postby Youngjen81 » Mon Jun 13, 2016 3:10 pm

Yes 4 beautiful boys. The oldest is my stepson but he lived with us since he was 4, I was 17. He's on his own now, so it's just the 5 of us. Being a mom has been my priority for over half my life.
You'd imagine I would have learned some patience by now! I am going stir crazy waiting for my CT results.

Today we found out my moms liver and kidney spots are cysts! I am so thankful for some good news.

Just 1 week until surgery and I'm in full "nesting" mode. Cleaning, gardening, cooking meals in advance... it's great how helpful my 10 and 11 year olds can be. 2 year old is a busy guy though, keeping up with him after surgery and during chemo is going to be fun.
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Newly diagnosed, now my mom

Postby DarknessEmbraced » Mon Jun 13, 2016 3:20 pm

Wonderful news about your Mom!*hugs* Waiting for ct results are hard!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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