Dad was disagnosed and now I'm paranoid

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somuchanxiety123
Posts: 1
Joined: Sun May 01, 2016 11:22 pm

Dad was disagnosed and now I'm paranoid

Postby somuchanxiety123 » Sun May 01, 2016 11:33 pm

My 50 year old Dad was diagnosed on April Fools day of all days. While the tumour is quite large, it was growing inwards in the colon like a donut rather than out through the colon wall, so it hasn't spread. He goes for surgery on May 16th to remove it and a bunch of lymphnodes, but the specialist doesn't think they'll find cancer in the lymphnodes since he can't see any area where the tumour could have broken through the colon wall. Best we could have hoped for considering the circumstances. I am now completely terrified that I too could have colon cancer. I have had chronic constipation and rectal bleeding since I was 14 (I'm 22 now). I do have hemorrhoids that at times poke out of my anus, but I also have had stabbing pain 2 inches to the right and then 2 inches above and below my navel. The constipation does subside when I increase water and fibre, but it's feels like I have to eat/drink so much more fibre/water just to get a normal looking poop. I went to the doctor and they said I probably just have a "lazy colon" and completely dismissed me. Now I'm scared since the symptoms have been on going for 8 years.

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Dad was disagnosed and now I'm paranoid

Postby midlifemom » Mon May 02, 2016 10:55 am

Perhaps seeing a GI doc will help.
Get an answer with suggestions on how to address it.
If doc can't give answers, find a doc who can.
Good luck!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Dad was disagnosed and now I'm paranoid

Postby DarknessEmbraced » Mon May 02, 2016 5:10 pm

I agree it's best to see a GI doctor to discuss your symptoms. Good luck and hope your Dad's surgery goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

British HNPCC
Posts: 60
Joined: Sat Nov 05, 2011 7:45 am

Re: Dad was disagnosed and now I'm paranoid

Postby British HNPCC » Mon May 02, 2016 9:08 pm

If you are worried that there is a genetic link then it needs to be more prevelant than just one family member.look up the Amsterdam Criteria As an example, i have had genetic bowel cancer and As medical records do not go back that far historically, what i know is my great grandfather died of it. My grandmother his daughter had it and survived and died years later of unrelated causes aged 91. Her son, my uncle died of it in 1977 aged 38. His son, my cousin, had it aged 33 and is a survivor now aged 48. My father had it aged 58 and has survived and is now 68. I had it aged 39 and am now 44. I have two brothers who were genetically tested and do not carry the gene. So in short if the gene does run in your family u only have a 50/50 chance of inheriting it. My cousin (as above)has no children so cannot pass it on. My brothers have tested negative cannot either as they both do not carry it. I have 2 children who both have a 50/50 chance of having it. They were both born prior to my dad (who had it later in life than is prevelant for the condition)and myself knowing we were carriers of it. Hopefully in the near future there will be breakthroughs in the treatment of my genetic condition before my kids need to get tested. Hope this helps
Diagnosed with HNPCC/Lynch Syndrome in 2006
Polyp found Oct 11 advised that T3N2M0
Surgery Nov11 to remove colon/rectum and form temp ileostomy/J pouch.
Dec 11 Biopsy results = T1N0M0.
Feb 12 - Illeostomy takedown performed.


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