Well it was a good run. Almost 9 years.
Yesterday I had a colonoscopy which wasn't very good. Apart from some lymph nodes there are 2 lymphomas in the colon.
Not rare but not that common. I can't say that I have ever seen any posts with lymphomas in the colon on the forum. I've scheduled an appointment with my Oncologist for Friday next week ( after the path results are in.)
In the meantime it's time for another fight.
Wayne
My NED Days appear over
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wwroam
- Posts: 763
- Joined: Sun Apr 06, 2008 8:13 pm
- Facebook Username: Wayne Whitaker
- Location: Brisbane, Australia
- Contact:
My NED Days appear over
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
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Travelgirl
- Posts: 123
- Joined: Sun Dec 20, 2015 4:17 am
- Facebook Username: Jac gar
- Location: Florida
Re: My NED Days appear over
Aww... sorry your news wasn't so good.
I was diagnosed with cecum cancer and follicular lymphomas. Two separate cancers at the same time. I didn't have lymphoma in the colon. But some of the twenty lypmh nodes removed in my colon surgery tested positive for follicular lymphoma. The lypmh nodes didn't have colon cancer in them.
I am still stymied with what it all means.. I don't feel sick except for GERD..
I wish you the best.. hang in there..
Prayers.
I was diagnosed with cecum cancer and follicular lymphomas. Two separate cancers at the same time. I didn't have lymphoma in the colon. But some of the twenty lypmh nodes removed in my colon surgery tested positive for follicular lymphoma. The lypmh nodes didn't have colon cancer in them.
I am still stymied with what it all means.. I don't feel sick except for GERD..
I wish you the best.. hang in there..
Prayers.
Travel Girl
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.
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wwroam
- Posts: 763
- Joined: Sun Apr 06, 2008 8:13 pm
- Facebook Username: Wayne Whitaker
- Location: Brisbane, Australia
- Contact:
Re: My NED Days appear over
From what I have read treatment most likely will be resection and radiation. The prognosis is good.
The complication is that my partner has Stage IV mCRC ( unresectable) and I'm the "caregiver", which is almost obscene but them's the breaks.
The complication is that my partner has Stage IV mCRC ( unresectable) and I'm the "caregiver", which is almost obscene but them's the breaks.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Re: My NED Days appear over
I sure didn't want to hear that from you. It's good that the prognosis is good. Still didn't want to hear that after 9 years. I hope it's a few radiations & then you are done.
Them's the breaks? I'm beginning to wonder if there are any breaks. I hope you get one tho.
Them's the breaks? I'm beginning to wonder if there are any breaks. I hope you get one tho.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Re: My NED Days appear over
Sorry to hear that Wayne I hope every thing is treatable. I think that feeling of waiting for the hammer to drop never entirely goes away. I have to have a liver ultrasound next week. I have been quite unwell and now the readings on my liver function tests have doubled in five weeks. It is either auto immune hepatitis or my old nemesis back after over 18 years. I will take hep but I will dread that is the other till I find out , Hugs to you and your wife, Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
Re: My NED Days appear over
wwroam wrote:In the meantime it's time for another fight.
Wayne
That sucks shit buddy…. WORD !
Sending posi vibes and best wishes to you and your S/O
kick some ASS !
Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: My NED Days appear over
Hello, Wayne.
That's some sickening news you got. I'm really sorry. You may remember my husband was diagnosed with really aggressive lymphoma in 2012. He had some trouble beating it but is now cancer-free after a stem cell transplant. if yours is limited to your colon, I think you will find it pretty easy to treat. Still sucks, butt better than CRC. I'll be thinking about you, and your S/O.
Hugs to you,
Bev
That's some sickening news you got. I'm really sorry. You may remember my husband was diagnosed with really aggressive lymphoma in 2012. He had some trouble beating it but is now cancer-free after a stem cell transplant. if yours is limited to your colon, I think you will find it pretty easy to treat. Still sucks, butt better than CRC. I'll be thinking about you, and your S/O.
Hugs to you,
Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: My NED Days appear over
I'm so sorry it's bad news!*hugs* 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
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wwroam
- Posts: 763
- Joined: Sun Apr 06, 2008 8:13 pm
- Facebook Username: Wayne Whitaker
- Location: Brisbane, Australia
- Contact:
Re: My NED Days appear over
No news for me yet. I've stopped googling "lymphoma in the colon". Until I see the path results it's all wild speculation.
Chrissie started her 27th cycle of chemo yesterday. We had an interesting meeting with our Oncologist today . Her CEA has come down a little and her LDH is completely stable.
He's softening her up for Irinotecan and Erbitux but I think he may stick with the Oxi/Avastin a bit longer. It still seems to be working.
The Oncology nurse was very good. She's from an agency and highly experienced ( and her brother is an Oncologist). I learnt quite a lot from her, particularly lymphomas. They are now finding lymphomas cropping up in patients who were treated 10-20 years ago. Breast cancer seems to be very prone.
Chrissie started her 27th cycle of chemo yesterday. We had an interesting meeting with our Oncologist today . Her CEA has come down a little and her LDH is completely stable.
He's softening her up for Irinotecan and Erbitux but I think he may stick with the Oxi/Avastin a bit longer. It still seems to be working.
The Oncology nurse was very good. She's from an agency and highly experienced ( and her brother is an Oncologist). I learnt quite a lot from her, particularly lymphomas. They are now finding lymphomas cropping up in patients who were treated 10-20 years ago. Breast cancer seems to be very prone.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Re: My NED Days appear over
G'day Wayne,
I had my liver ultrasound today. I don't think it was too good . He kept asking me if I was sure I had my gallbladder removed. After he had finished with my liver ,which was all he was asked to do, he then took some time scanning my pancreas and my kidneys. He said nothing but as I was leaving he was on the phone with my report in his hand. I sincerely hope he was just trying to scare the crap out of me, it worked, Ron. I hope you hear something soon and I hope the chemo keeps helping Chrissie, all the best Ron.
I had my liver ultrasound today. I don't think it was too good . He kept asking me if I was sure I had my gallbladder removed. After he had finished with my liver ,which was all he was asked to do, he then took some time scanning my pancreas and my kidneys. He said nothing but as I was leaving he was on the phone with my report in his hand. I sincerely hope he was just trying to scare the crap out of me, it worked, Ron. I hope you hear something soon and I hope the chemo keeps helping Chrissie, all the best Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
-
wwroam
- Posts: 763
- Joined: Sun Apr 06, 2008 8:13 pm
- Facebook Username: Wayne Whitaker
- Location: Brisbane, Australia
- Contact:
Re: My NED Days appear over
Well I got the histology from my GP and I'm looking for a bum to kick. Or at least a gastroenteroligist who proofreads his Procedure Report. Or a typist who switches off spell-check.
I had 2 lipomas . Not lymphomas.
There will be a small celebration in the household this evening. I'm still NED.
You certainly went through the ordeal of fire and ice Ron. I hope that it all turns out OK.
Is Steve still on the warpath Bev. That CHOP chemo looks like a nasty piece of work.
I had 2 lipomas . Not lymphomas.
There will be a small celebration in the household this evening. I'm still NED.
You certainly went through the ordeal of fire and ice Ron. I hope that it all turns out OK.
Is Steve still on the warpath Bev. That CHOP chemo looks like a nasty piece of work.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15
Re: My NED Days appear over
Wonderful news!
Ann
Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
Re: My NED Days appear over
Hugs mate ,first good news I have today Wayne, congratulations. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
-
Nik Colon
Re: My NED Days appear over
That's great! Horrible you had to go through thinking that tho 
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