Ewwww more sticky poo... UPDATED

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CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Ewwww more sticky poo... UPDATED

Postby CLD » Mon Apr 25, 2016 6:43 am

Alright everybody, I need your advice. DH has been working A LOT lately but had a day off yesterday. Well he kept farting all day long and it was STINKY. Not as bad as immediately before dx, but my son started lighting candles again. :oops: DH also told me his poop is STICKY again and he has to wipe soo much it hurts his but :shock: He said sometimes he feels constipated. Soooooooo, 1 year colonoscopy was all clear in Jan, CEA remains 2.3. However, next dr apt not until June and next scan not until August. He says his diet changed since it is harder to eat at work. I"m not so convinced. He eats a gluten free and a high protein, low carb diet his onc suggested. He takes daily asprin and probiotic. Should I call behind his back? He wants to wait a couple weeks. WHo should I call, Onc or GI? Thanks all and have a great day!
Last edited by CLD on Mon May 02, 2016 3:39 pm, edited 2 times in total.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

OrchardWriting
Posts: 53
Joined: Wed Nov 18, 2015 9:10 am

Re: Ewwww more sticky poo...

Postby OrchardWriting » Mon Apr 25, 2016 7:17 am

Since the chemo I am perpetually constipated. The first thing is to drink plenty of water. Also warm liquids at night and in the morning such as an herb tea. I also use Senakot that has a stool softener and that keeps things moving.

You have to kind of experiment around, but the chemo did a number on me.
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Ooops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13.

OrchardWriting
Posts: 53
Joined: Wed Nov 18, 2015 9:10 am

Re: Ewwww more sticky poo...

Postby OrchardWriting » Mon Apr 25, 2016 7:18 am

PS

You also have to play around with diet. The big problem is that the things that help keep you regular also tend to cause gas. Nuts and raw carrots are okay for me, but I wish I could eat far more veggies without terrible gas.
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Ooops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13.

User avatar
Jacques
Posts: 678
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Eating Well - Living with Bowel Cancer

Postby Jacques » Mon Apr 25, 2016 7:43 am

Here's a booklet you might find interesting:

Eating Well - Living with Bowel Cancer
https://www.beatingbowelcancer.org/wp-content/uploads/2016/03/Eating-Well-Booklet.pdf

Jachut
Posts: 1137
Joined: Mon Sep 26, 2011 11:16 pm
Facebook Username: hutchinson@aanet.com.au

Re: Ewwww more sticky poo...

Postby Jachut » Mon Apr 25, 2016 4:28 pm

I had constant problems with this pre colostomy AND since but its not as much as a problem with a colostomy. I dont know what it is but it used to take me a whole darn roll of toilet paper to clean up! Really annoying. Maybe a daily stool softener lie Miralax or Lactulose?

Nik Colon

Re: Ewwww more sticky poo...

Postby Nik Colon » Mon Apr 25, 2016 5:31 pm

I am still having issues with poop and gas and it's been over a yr since surgery, over 6 months chemo ended. Very smelly gas and bouts of constipation and diarrhea. I take miralax daily, gas x, etc.

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Ewwww more sticky poo...

Postby teachpdx » Mon Apr 25, 2016 11:17 pm

Foul gas goes with bowel surgery. If I eat the wrong foods its pretty bad & I live alone. Might I suggest a bidet if you don' t already have one? My ass would be raw after popping if I didn't have one. Maybe he needs to drink more water? Also working can be hard on digestion. If I work multiple days in a row sometimes I'm constipated the whole time.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Ewwww more sticky poo...

Postby CLD » Wed Apr 27, 2016 4:45 pm

Thanks for your answers. I guess I'm just afraid this is an early recurrence sign...
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

Lund5505
Posts: 69
Joined: Tue Jul 08, 2014 1:37 am

Re: Ewwww more sticky poo...

Postby Lund5505 » Wed Apr 27, 2016 11:08 pm

Please don't go behind his back and call. I personally would be so ticked if my husband did that regardless of his good intentions. It is not unusual after cold n surgery to have bouts where GI gets out of whack. Try small frequent meals which is less stressful on the system. When I feel out of whack it usually try to give it a week to calm down and try to be more conscious of what I am eating that might be causing issues. Hope it quiets down soon.
10/2013 dx female @54 stage IV innumerable liver mets
CEA 2600 kras wild MSS
11/2013 folfox avastin 8 rounds
6/2014 neuropathy development CEA 9.8 but won't go lower
8/2014 colon resection
11/2014 folfiri and cetuximab 9 rounds CEA 1700
4/2015 cetuximab only 4 rounds CEA down to 20 but won't go lower
7/2015 chemo break getting too toxic
10/2015 xeloda 3 rounds CEA 800 then 300 then back up to 900
1/2016 irinotecan CEA 1800 at start 2/2016 too toxic
4/2016 Cea 3200
Hospice recommended but I'm not ready yet

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Ewwww more sticky poo... UPDATED

Postby CLD » Mon May 02, 2016 3:42 pm

So as DH continues to have symptoms, he asked me to call GI and ONC today (he can't call from work). GI will see him tomorrow, onc scheduled scans for Friday. Will keep you posted.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently


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