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Re: Any Stage IV long term survivors here?

Posted: Wed Oct 18, 2017 6:26 am
by stu
Hi Mercy ,
It's very difficult to say when it comes to multiple tumours as size and location come into play . A surgeon called Dr Ladas in London does laser surgery on multiple mets but it still has a criteria . Has your mum had a PET scan . My mum has had one lung met but two nodules were showing for a year and suddenly disappeared. So they concluded that they were not cancer . You would be best having her case reviewed by a thoracic surgeon or a radiologist to see if they are able to help in any way .
Chemo actually had a really big role to play in keeping my mum alive .
Take care,
Stu

Re: Any Stage IV long term survivors here?

Posted: Wed Oct 18, 2017 11:40 am
by teri3
I'm coming up on my 3 year anniversary and I'm still rockin! I went through 11 rounds FOLFOX and 11 rounds FOLFIRI then decided I was done fooling around and went for VATS surgery to the mets in my lungs. I had the first one removed from my left lung April 10th and April 24th the one removed from my right lung. I'm still doing good and my surgeon told me if anything else pops up we'll just cut that out too :). Stay positive attitude is everything!
HUGS,
Teri

Re: Any Stage IV long term survivors here?

Posted: Thu Oct 19, 2017 5:36 pm
by kiwiinoz
Coming up to 5 years from stage IV diagnosis and 4.50 years since last (lung) surgery to remove my met.
Finished my first marathon in the weekend with my wife, and it would appear that I am still well, and that the VATS didn't diminish my lung capacity by much.

Re: Any Stage IV long term survivors here?

Posted: Thu Oct 19, 2017 7:03 pm
by susie0915
kiwiinoz wrote:Coming up to 5 years from stage IV diagnosis and 4.50 years since last (lung) surgery to remove my met.
Finished my first marathon in the weekend with my wife, and it would appear that I am still well, and that the VATS didn't diminish my lung capacity by much.

That is awesome. I like to run but don't think I could ever do a marathon. Congrats on ned and the marathon

Re: Any Stage IV long term survivors here?

Posted: Thu Oct 19, 2017 9:21 pm
by kiwiinoz
Hi Susie
I always ran but the distances gradually got shorter as my age got older.
The cancer diagnosis, and a stage IV one at that, did change my perspective and I ran to run away from the cancer and my fears. Then I found I really liked running a lot more than I thought.
I was a lot more active in 2015 and 2016 in regards to both the board and exercise, and found that this year was devoted to work, study, moving (office) and more work. I did the marathon with my wife as it was a celebration of the almost 5 years but we never trained enough.
We have our eyes set on a few more, Boston, New York, Tokyo and Paris.
How much do you run?
Kiwi

Re: Any Stage IV long term survivors here?

Posted: Thu Oct 19, 2017 9:36 pm
by susie0915
kiwiinoz wrote:Hi Susie
I always ran but the distances gradually got shorter as my age got older.
The cancer diagnosis, and a stage IV one at that, did change my perspective and I ran to run away from the cancer and my fears. Then I found I really liked running a lot more than I thought.
I was a lot more active in 2015 and 2016 in regards to both the board and exercise, and found that this year was devoted to work, study, moving (office) and more work. I did the marathon with my wife as it was a celebration of the almost 5 years but we never trained enough.
We have our eyes set on a few more, Boston, New York, Tokyo and Paris.
How much do you run?
Kiwi

I only do 3-4 miles about 5x a week. I did walk during most of my treatment but since January started adding running again. It's weird with the neuropathy but I do okay just have to be sure I lift my feet. But I do like it, and will continue because I can.

Re: Any Stage IV long term survivors here?

Posted: Fri Oct 20, 2017 5:31 pm
by dianetavegia
I began as Stage IIIB Jan. 2, 2009 (9 years this coming January) and Stage IVa in Feb. 2012. Had a liver resection in April 2012 and am NED. This coming April I will be 6 years since my liver surgery. I had FOLFOX after my Stage III surgery.

Re: Any Stage IV long term survivors here?

Posted: Sun Oct 22, 2017 10:34 am
by James65
Hi,
Four years since my liver MET and one year since the lung MET.

To the runners, I have run most of my life, but especially now. I find that with a portion of my upper left lobe missing if I don't run my breathing isn't as clear, like the left lobe tightens or something. The running keeps things loose and I also feel like this is probably one of the few areas where I can lower risk of another MET.

Plus, it keeps me sane. I do about 5 miles four to five times per week.

Best,
James

Re: Any Stage IV long term survivors here?

Posted: Sun Oct 22, 2017 6:31 pm
by kiwiinoz
Hi James

I had to google NH to work out it was New Hampshire. Gee, it must get really cold there. In Sydney, where I live, it gets to 5 degrees C (41 degrees F) in the mornings when I run in the middle of winter on a really cold morning. How cold does it get when you run?
I understand the keeping you sane thing, and I could never had done treatment, and the wait and see without running and the gym.

Kiwi