Any Stage IV long term survivors here?

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teri3
Posts: 346
Joined: Fri Jan 09, 2015 11:03 am

Re: Any Stage IV long term survivors here?

Postby teri3 » Wed Oct 18, 2017 11:40 am

I'm coming up on my 3 year anniversary and I'm still rockin! I went through 11 rounds FOLFOX and 11 rounds FOLFIRI then decided I was done fooling around and went for VATS surgery to the mets in my lungs. I had the first one removed from my left lung April 10th and April 24th the one removed from my right lung. I'm still doing good and my surgeon told me if anything else pops up we'll just cut that out too :). Stay positive attitude is everything!
HUGS,
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?

kiwiinoz
Posts: 1079
Joined: Thu Jan 03, 2013 11:44 pm

Re: Any Stage IV long term survivors here?

Postby kiwiinoz » Thu Oct 19, 2017 5:36 pm

Coming up to 5 years from stage IV diagnosis and 4.50 years since last (lung) surgery to remove my met.
Finished my first marathon in the weekend with my wife, and it would appear that I am still well, and that the VATS didn't diminish my lung capacity by much.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 March 2017
Port Out 26 March 2015

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susie0915
Posts: 425
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Any Stage IV long term survivors here?

Postby susie0915 » Thu Oct 19, 2017 7:03 pm

kiwiinoz wrote:Coming up to 5 years from stage IV diagnosis and 4.50 years since last (lung) surgery to remove my met.
Finished my first marathon in the weekend with my wife, and it would appear that I am still well, and that the VATS didn't diminish my lung capacity by much.

That is awesome. I like to run but don't think I could ever do a marathon. Congrats on ned and the marathon
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

kiwiinoz
Posts: 1079
Joined: Thu Jan 03, 2013 11:44 pm

Re: Any Stage IV long term survivors here?

Postby kiwiinoz » Thu Oct 19, 2017 9:21 pm

Hi Susie
I always ran but the distances gradually got shorter as my age got older.
The cancer diagnosis, and a stage IV one at that, did change my perspective and I ran to run away from the cancer and my fears. Then I found I really liked running a lot more than I thought.
I was a lot more active in 2015 and 2016 in regards to both the board and exercise, and found that this year was devoted to work, study, moving (office) and more work. I did the marathon with my wife as it was a celebration of the almost 5 years but we never trained enough.
We have our eyes set on a few more, Boston, New York, Tokyo and Paris.
How much do you run?
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 March 2017
Port Out 26 March 2015

User avatar
susie0915
Posts: 425
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Any Stage IV long term survivors here?

Postby susie0915 » Thu Oct 19, 2017 9:36 pm

kiwiinoz wrote:Hi Susie
I always ran but the distances gradually got shorter as my age got older.
The cancer diagnosis, and a stage IV one at that, did change my perspective and I ran to run away from the cancer and my fears. Then I found I really liked running a lot more than I thought.
I was a lot more active in 2015 and 2016 in regards to both the board and exercise, and found that this year was devoted to work, study, moving (office) and more work. I did the marathon with my wife as it was a celebration of the almost 5 years but we never trained enough.
We have our eyes set on a few more, Boston, New York, Tokyo and Paris.
How much do you run?
Kiwi

I only do 3-4 miles about 5x a week. I did walk during most of my treatment but since January started adding running again. It's weird with the neuropathy but I do okay just have to be sure I lift my feet. But I do like it, and will continue because I can.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

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dianetavegia
Posts: 2630
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: Any Stage IV long term survivors here?

Postby dianetavegia » Fri Oct 20, 2017 5:31 pm

I began as Stage IIIB Jan. 2, 2009 (9 years this coming January) and Stage IVa in Feb. 2012. Had a liver resection in April 2012 and am NED. This coming April I will be 6 years since my liver surgery. I had FOLFOX after my Stage III surgery.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 10 months since original dx. Five yrs. 7 months post liver resection.
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

James65
Posts: 360
Joined: Thu Mar 06, 2008 9:41 am
Location: Exeter, NH
Contact:

Re: Any Stage IV long term survivors here?

Postby James65 » Sun Oct 22, 2017 10:34 am

Hi,
Four years since my liver MET and one year since the lung MET.

To the runners, I have run most of my life, but especially now. I find that with a portion of my upper left lobe missing if I don't run my breathing isn't as clear, like the left lobe tightens or something. The running keeps things loose and I also feel like this is probably one of the few areas where I can lower risk of another MET.

Plus, it keeps me sane. I do about 5 miles four to five times per week.

Best,
James
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Oops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13. So far so good.
Oops again, one tumor in each lung diagnosed 8/8/16. One too small to deal with and the other resected in late September. Wait and watch for now.

kiwiinoz
Posts: 1079
Joined: Thu Jan 03, 2013 11:44 pm

Re: Any Stage IV long term survivors here?

Postby kiwiinoz » Sun Oct 22, 2017 6:31 pm

Hi James

I had to google NH to work out it was New Hampshire. Gee, it must get really cold there. In Sydney, where I live, it gets to 5 degrees C (41 degrees F) in the mornings when I run in the middle of winter on a really cold morning. How cold does it get when you run?
I understand the keeping you sane thing, and I could never had done treatment, and the wait and see without running and the gym.

Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 March 2017
Port Out 26 March 2015


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