Just started Chemo

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mike1965
Posts: 118
Joined: Mon Jan 25, 2016 11:07 pm

Just started Chemo

Postby mike1965 » Wed Apr 20, 2016 12:01 pm

The second part of my journey has begun. I got power port on Monday. Started Chemo yesterday. I am on Folfox for six months. I prayed to God to help me and now it is in hands. The oncologist seems confident treatment should go work. Thanks to everyone on the board for their posts on what to expect when on chemo. I am trying to drink lots of water, exercise and put lotion on my body. It is only day 2 see how it goes. I pray that everyone else does well and can beat this evil Cancer.
Colonoscopy 09/06/15 Doctor removed polyp
DX - Rectal cancer 09/10/2015 T1M0N0
Surgeon recommended wait and see approach 09/2015
Tumor board recommended LARs Surgery 10/2015
Oncologist and PCP recommended LARs Surgery 11/2015
Seeking 2nd opinion from another Surgeon 01/2016
Having Sigmoidscopy on 02/01/16.
Figured out treatment 02/2016
LARS Surgery 03/2016
Stage 3A T1 N1C M0
Chemo Folfox to begin 04/18/16

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Just started Chemo

Postby BrownBagger » Wed Apr 20, 2016 12:44 pm

I found exercise to be very helpful when I was on Xelox (same stuff, just pills instead of a pump). My theory is that the endorphins provide effective, long-lasting nausea relief. You won't always feel like it, but once you get moving, you'll feel better. I also believe that getting your lungs and bloodstream moving helps spread the bad stuff around so that it doesn't pool in an area and cause neuropathy.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Just started Chemo

Postby chrissyrice » Thu Apr 21, 2016 11:42 am

Best of luck as you start out and keep moving and drinking ... also remember to take notes on your experiences so you can talk to your doctor next visit on anything that is bothersome or side effects.

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

Nik Colon

Re: Just started Chemo

Postby Nik Colon » Thu Apr 21, 2016 11:48 pm

Fyi, you may not want to hear, but watch out for worsening side affects. My first was like, no big deal, then after, not. If you have what you feel are bad, let your onc know asap.

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Just started Chemo

Postby AnnClare » Fri Apr 22, 2016 1:02 pm

Wishing you well as you begin this crazy journey that none of us wants to be on.

The others have already given great advice, so I don't have much more to add. I'm only two cycles in (will have 12 total), so it sounds like we're on the same 'plan.' My first round was a breeze, only very minor cold sensitivity about 3 days after infusion. Second cycle the cold sensitivity was almost immediate and lasted even into my off week. Also in my 2nd cycle I had hard-hitting fatigue three evenings in a row, decreasing in intensity each evening. Appetite also bottomed out a few days and the only thing I wanted (and had) was a chicken sandwich, fries & Frosty from Wendy's. Odd craving, especially since I've never been a fast food gal, but I honored what my body was begging for and I figured it was better than not eating at all.

Exercise when you can. I take our dog out (almost) every morning for a 20 minute brisk walk and do some stretching & strength training at home as well, when time & energy permit. Some days it's body weight only, some days I lift actual weights. Feels great to move when you can. :)

What else . . . I slap on a Sancuso patch the night before my Tx and wear it for 7 days. My onc also includes three anti-emetics in my infusion, and I'm thankful for that. My greatest bugaboo, even before this mess, has always been nausea. I made a big fuss about how I cannot, CANNOT, be nauseous, so he's been great about taking that 'phobia' into account.

That being said, EVERYONE responds differently. Still, I know from my point of view it's good to hear from others who have been in the trenches, so to speak.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17


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