I'm bummed

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JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

I'm bummed

Postby JDinNC » Tue Apr 19, 2016 7:41 pm

Today, my dermatogist nurse called to say my melanoma has returned. I swear will we ever get a break from any cancer? it's bad enough dealing with stage four colon cancer but this is like a double edge sword. So I see another surgery coming at the beginning of May.

I've had basal cell skin cancer for close to thirty years...but it wasn't until after colon cancer and chemo treatment did the melanoma start showing up. It makes me wonder if there's a connection.?
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: I'm bummed

Postby midlifemom » Tue Apr 19, 2016 7:49 pm

Sorry to hear. No fair.
Will stomping our feet and having a temper tantrum help?
I figure it can't hurt.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: I'm bummed

Postby jhocno197 » Tue Apr 19, 2016 8:40 pm

That sucks so much. :(
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: I'm bummed

Postby Joannerogers » Tue Apr 19, 2016 8:58 pm

I'm sorry to hear that, I'm stomping my feet right now!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

Kerrywal
Posts: 20
Joined: Sat Mar 05, 2016 3:01 pm
Facebook Username: Kerry

Re: I'm bummed

Postby Kerrywal » Tue Apr 19, 2016 9:27 pm

So sorry to hear. Screaming, stomping feed and praying. It's tough
60/M Colonoscopy March 2016, CT, Endoscopy, PetScan:
T3N2aM0
radiation/chemo 4/26/16
31 rounds of RT & Xeloda
7/20/16 surgery
12 Ln out of 13 cancerous
Temp ileostomy, cancer on liver, unoperable
7/20/2016 Stage IV rectal

Nik Colon

Re: I'm bummed

Postby Nik Colon » Tue Apr 19, 2016 9:43 pm

I'm so sorry, that sux :( I know there are others here that had melanoma too, does make you wonder. Best wishes

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: I'm bummed

Postby lpas » Tue Apr 19, 2016 9:52 pm

Ugh--I'm so sorry, Jan. Do they know it's a local recurrence and not a new primary? Any info on lymph node involvement?

My doctor told me that melanoma tends to come out when the immune system is depressed. I suspect you're right about the chemo connection. I wish you could get some immune testing! The ND I see will order it if you want this done, but insurance may not cover, in which case the full panel runs around $1,100. PM me if you want more info.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

User avatar
ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: I'm bummed

Postby ziggymonster » Tue Apr 19, 2016 10:22 pm

I am so sorry to hear this......I can totally relate.....I am dealing with 2 stage 4 cancers myself....colon and prostate....both active. My prostate cancer has spread into my ribs and spine,taking hydro codon for pain. My recent ct shows more lung activity and I just had a vats.l still can not believe this is happening. Hang in.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: I'm bummed

Postby Stanfordmom » Tue Apr 19, 2016 11:44 pm

Jan,

so sorry to hear this. Hopefully they will be able to remove it, and that is the end of it.

Hugs (((((((())))))))

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm bummed

Postby DarknessEmbraced » Wed Apr 20, 2016 1:25 pm

I'm so sorry JDinNC!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm bummed

Postby Lee » Wed Apr 20, 2016 8:13 pm

(((HUGS))) to you. All the best with your upcoming surgery. Hope they can get rid of this cancer ONCE AND FOR ALL!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Travelgirl
Posts: 123
Joined: Sun Dec 20, 2015 4:17 am
Facebook Username: Jac gar
Location: Florida

Re: I'm bummed

Postby Travelgirl » Wed Apr 20, 2016 10:06 pm

Do you have lynch syndrome?

I was diagnosed with stage 1 cecum cancer. Two weeks later after my CT Scan they took before my colon surgery ...they found swollen lymph nodes in my chest.. I let them biopsy one near my aorta, and I have also Follicular Lyphoma who grade 2 stage III.

Now there testing me for lynch syndrome? I think skin cancer and colon cancer are lynch syndrome cancers..

You may ask to be tested? It is my understanding lynch syndrome patients, have access to immunotherapy drugs that are very effect at killing cancer..

Sorry and I will the best prayers....
Travel Girl
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: I'm bummed

Postby JDinNC » Thu Apr 21, 2016 7:04 pm

Travelgirl..

Thanks for the suggestion to test for lynch syndrome. I'll be seeing the surgeon who will be removing my cancer...ii'll ask him about this test.
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm bummed

Postby Ron50 » Thu Apr 21, 2016 7:20 pm

Hi JD,
5fu makes you sunsensitive and prone to skin cancers. Unfortunately in the 18 years since cancer and chemo I have spent years on methotrexate and cyclosporine. Both make me extremely sun sensitive. I have had several cancers removed from various parts of my body. With my history they always surgically remove them. Even the basal cell carcinomas I get are dangerous. The last one I had was micronodular. Apparently they go deep and travel via nerves making them hard to stop and potentially life threatening. In the last six to eight weeks I have had a raised black spot come up on my lower cheek ,I see my skin cancer man on Tuesday. I have six monthly checks. Good luck with your surgery , Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: I'm bummed

Postby JDinNC » Thu Apr 21, 2016 11:29 pm

Ron..

I've had basal cell cancer for close to thirty years. It wasn't until after chemo when my melanoma shown up. I'm feel there's a link between the treatment and cancer.
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED


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