Scan Results

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tdsamal
Posts: 619
Joined: Tue Dec 29, 2009 12:49 am
Facebook Username: malby.tammy
Location: Salem Oregon

Scan Results

Postby tdsamal » Sun Apr 17, 2016 1:35 pm

Well I got them in the mail yesterday. No new growths (yeah), but no change in the ones that are there either. Dang it anyway. I've been doing chemo now for 4.5 months and no changes. I'm suppose to have txt #9 in the morning. I can't keep going like this if it's not working. I've been putting up with the side effect because I knew I only had 3 more to go. I'm running out of options at this point. We will see what the Dr. says tomorrow.
Tammy
Dx st IV CC & colon resection 11/09
Way to much to list
Last recurrence December 2017

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Scan Results

Postby midlifemom » Sun Apr 17, 2016 1:51 pm

Tammy, so sorry to hear no improvement. I'm in the same boat - chemo for 14 months and all I get is "stable".
I think it is especially hard on those of us who deal with the side effects and get no shrinkage.
Why do we do this?
How long do we postpone the inevitable?
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Scan Results

Postby Lydia666 » Sun Apr 17, 2016 6:15 pm

Ouf! Sorry to hear. I think there are still some chemo options like erbitux... Please try not to lose hope
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Scan Results

Postby CRguy » Sun Apr 17, 2016 7:02 pm

Mega POSI ++++ Vibes for some good feedback tomorrow Tammy
for now .. takin' stable as a win for you.

Harmony sista'
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Scan Results

Postby Bev G » Mon Apr 18, 2016 10:14 am

Aww Tammy! Of course you wanted some dramatic improvement to help offset the disgust that is chemo. I'm sorry. I hope your onc comes up with a promising plan tomorrow.

(((Tammy)))

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan Results

Postby DarknessEmbraced » Mon Apr 18, 2016 4:01 pm

I'm sorry there was no improvement in your scan results!*hugs* I hope that your doctor can find a new treatment to try.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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tdsamal
Posts: 619
Joined: Tue Dec 29, 2009 12:49 am
Facebook Username: malby.tammy
Location: Salem Oregon

Re: Scan Results

Postby tdsamal » Tue Apr 19, 2016 12:03 pm

Well I did get some good news. It's not as bad as I thought. The main tumor has shrunk but not by much. The things that showed no improvement they don't even think is cancer. BUT he did bring up chemo for life. I asked him if that meant forever and he said forever is a long time, we will see. With the side effects I had yesterday and today there is no way I can do this forever! I could go longer in between infusions and that might give me a little time to recover.
Erbicx (sp) is not an option for me so that's off the table and Xeloda doesn't even sound good to me with the H&F syndrome. So we will see what happens in the coming months. And so goes the roller coaster ride...
Tammy
Dx st IV CC & colon resection 11/09
Way to much to list
Last recurrence December 2017

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Scan Results

Postby BrownBagger » Tue Apr 19, 2016 12:16 pm

Good luck, Tammy. Sorry you're reacting badly to the chemo.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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