Any news on Lonsurf? Hubby just started
Any news on Lonsurf? Hubby just started
Would appreciate any information at all. Seems there was a big to do about it and now, not much info.
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest
-
Redwingfan3991
- Posts: 25
- Joined: Wed Jun 04, 2014 6:17 pm
- Location: DTW
Re: Any news on Lonsurf? Hubby just started
Hello
I don't have to much info. My mom started the pills on Wed. So far she's just really really tired. She felt this way before starting the chemo and I'm sure this isn't helping
Michelle
I don't have to much info. My mom started the pills on Wed. So far she's just really really tired. She felt this way before starting the chemo and I'm sure this isn't helping
Michelle
Daughter/caregiver to mom aged 64
Kras mutant
4/14 diagnosed stage IV colon cancer mets to omentum
5/14 started folfox & avastin
10/14 chemo not working tumors growing
11/14 laparoscopic surgery to see how much seeding
12/14 unable to do surgery
1/15-8/15 folfiri
8/15- folfiri fail
10/15- Stivarga Stopped after 9 days due to side effects
10/15-- maybe clinical trial ? All conventional options seem to be exhausted
12/15--2/16 clinical trail failed
4/16 LONSURF
Kras mutant
4/14 diagnosed stage IV colon cancer mets to omentum
5/14 started folfox & avastin
10/14 chemo not working tumors growing
11/14 laparoscopic surgery to see how much seeding
12/14 unable to do surgery
1/15-8/15 folfiri
8/15- folfiri fail
10/15- Stivarga Stopped after 9 days due to side effects
10/15-- maybe clinical trial ? All conventional options seem to be exhausted
12/15--2/16 clinical trail failed
4/16 LONSURF
Re: Any news on Lonsurf? Hubby just started
Here is an updated search for the keyword, which may contain further info for you ??
search.php?keywords=lonsurf&fid%5B0%5D=1
I am thinking possibly DK37 might have more current feedback for you ???
Cheers
CR
search.php?keywords=lonsurf&fid%5B0%5D=1
I am thinking possibly DK37 might have more current feedback for you ???
Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
-
midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: Any news on Lonsurf? Hubby just started
Redwingfan3991 wrote:Hello
I don't have to much info. My mom started the pills on Wed. So far she's just really really tired. She felt this way before starting the chemo and I'm sure this isn't helping
Michelle
Michelle, can you tell us how the Lonsurf is going?
Best wishes to your mom.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
-
Redwingfan3991
- Posts: 25
- Joined: Wed Jun 04, 2014 6:17 pm
- Location: DTW
Re: Any news on Lonsurf? Hubby just started
My mom only did one round of lonsurf. She passed away the day was due to start her 2nd round.
Her heart was to weak ....
Best of luck to anyone starting this.
Michelle
Her heart was to weak ....
Best of luck to anyone starting this.
Michelle
Daughter/caregiver to mom aged 64
Kras mutant
4/14 diagnosed stage IV colon cancer mets to omentum
5/14 started folfox & avastin
10/14 chemo not working tumors growing
11/14 laparoscopic surgery to see how much seeding
12/14 unable to do surgery
1/15-8/15 folfiri
8/15- folfiri fail
10/15- Stivarga Stopped after 9 days due to side effects
10/15-- maybe clinical trial ? All conventional options seem to be exhausted
12/15--2/16 clinical trail failed
4/16 LONSURF
Kras mutant
4/14 diagnosed stage IV colon cancer mets to omentum
5/14 started folfox & avastin
10/14 chemo not working tumors growing
11/14 laparoscopic surgery to see how much seeding
12/14 unable to do surgery
1/15-8/15 folfiri
8/15- folfiri fail
10/15- Stivarga Stopped after 9 days due to side effects
10/15-- maybe clinical trial ? All conventional options seem to be exhausted
12/15--2/16 clinical trail failed
4/16 LONSURF
-
midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: Any news on Lonsurf? Hubby just started
Redwingfan3991 wrote:My mom only did one round of lonsurf. She passed away the day was due to start her 2nd round.
Her heart was to weak ....
Best of luck to anyone starting this.
Michelle
Michelle, so sorry to hear about your mom.
Thanks for your response.
I wish it had turned out differently for you.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
Re: Any news on Lonsurf? Hubby just started
So sorry for your loss Michelle 
Prayers, hugs and RIP for your Mom. oxo
Prayers, hugs and RIP for your Mom. oxo70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin #10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ???
2/21/17 Folfuri & Avastin
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Who is online
Users browsing this forum: No registered users and 87 guests