I did 8 rounds of chemo total in a 2week cycle.
My first two rounds were the standard FOLFOX via my power port. I would sit at the infusion center for 4+hours and then was sent home with the portable infusion fanny pack for another 48 hours. After 48 hours I would go back to the center and have the stuff removed. I suffered instantly and severely during these first two rounds and the theory is that I have a bad reaction to the way my body processes the 5FU intravenously. It was messing with my heart. The neuropathy and extreme sensitivity from the OXI took effect instantly as well and my dosage was reduced for the second round.
From rounds 3-8 we continued doing the OXI via IV, but I took the Xeloda pills at home. It was so much easier for me to function on Xeloda! However, towards round 8 the toxins from all the drugs had been building up in my system and even with Xeloda the ability for me to function was decreasing rapidly with each round.
I am almost 6 months done with chemo and the side effects (neuropathy, energy, etc) is getting better. Still not 100%, but I am seeing some improvement. I started working full time again about 5 months ago so I could keep my family covered under my insurance plan as well.
Good luck with your decision and stay strong!
32 yo,Wife & Mom, ages 9 & 3
4/17/15: Colonoscopy = 6cm in sigmoid + 6 polyps
4/24/15: Colectomy (no illeo)
4/27/15: Diagnosed Stage 3b CC, 2/55 lymph nodes
May2015: Genetic testing, no Lynch, FAP, Gardners
6/1/15: Started FOLFOX - BAD reaction to 5FU, switched rounds 3-8 to combo of XELODA + OXI via IV.
9/24/15: Round 8 and done with chemo!
Nov2015: First CT scan, X-rays, blood = NED
Jan2016: Bloodwork = NED
Next up: Colonoscopy & Endoscopy, more CT scans, etc