Postby Deborah614 » Tue Apr 12, 2016 9:25 am
Good morning, Judy
I feel a need to tell you about my recent port experience. My port felt uncomfortable from the start, but during chemo I lost weight and it protruded to the point of being in the way of my brastrap, showed through my clothes and was bumped into a lot. I asked to have it removed because it began to seriously hurt, but was told by my oncologist to keep it in a year, just in case. A few weeks later the pain was radiating through my arm, shoulder and clavical. The port nurse supervisor looked at it, saw no inflammation and told me it was probably pressing on a nerve, especially since I'd lost so much weight after it was installed in August 2015. I resigned myself to putting up with the port, until suddenly I spiked a 104° fever, was rushed to ER delirious and spent 6 days in the hospital due to a port infection. Needless to say, once the port was removed and I received umpteen bags of strong IV antibiotics followed by a take home prescription of more, my QOL improved greatly. This is just my story, but it's cautionary tale;)
Best wishes,
Deb.
dx 12/17/14
stage 2 rectal cancer T3N0M0
standard treatment 28 days radiation w/xeloda, surgery, 8 rounds Folfox
22 shots neupogen 32 days in hospital for infections
60 years old
mother of 6, grandmother of 10, wife of 1 for 35 years
Jeremiah 29:11
05/28/15 APR, Barbie butt, permanent colostomy
May 2016 Cat scans NED!
May 2016 mammogram
June 2016 invasive ductal carcinoma breast cancer left breast stage1
August3 '16 mastectomy with reconstruction, genetic screening scheduled