Another rant, sorry

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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Another rant, sorry

Postby DarknessEmbraced » Fri Apr 08, 2016 12:09 pm

Sorry to hear that you're going through such a tough time!*hugs* I really hope things get better for you! I feel the same way when it comes to my health. Everything seems to go wrong at once! I finally have my GI appointment on April 13th to find out why I'm in constant pain, have cramping and other bowel issues. Rant all you need! It's good to get it out!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: Another rant, sorry

Postby AppleTree » Fri Apr 08, 2016 2:47 pm

When I am overtired or don't feel well - I rant too. I would say you have alot to rant over. It is frustrating. I hope you get the pain away soon, so you can rest. And then hopefully the rest will follow. Feel better soon.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

larway
Posts: 58
Joined: Tue Dec 29, 2015 4:40 pm

Re: Another rant, sorry

Postby larway » Fri Apr 08, 2016 3:06 pm

I am still fairly new to this suckiness but I think it is perfectly ok to feel pissy sometimes. My wife tells me that I should be more positive to which I reply "I am positive that all this sucks." Sorry you are having such problems lately.
Dx 12-18-15 rectal cancer @ 45 yo.
30 sessions of rad/ 3300 mg Xeloda
LAR and temp ileostomy 5/2016
6 rounds of xelox
Ileostomy reversal 11/2016

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Another rant, sorry

Postby Delinda2 » Fri Apr 08, 2016 4:54 pm

Aw Nik, you go right ahead and rant. You have every right to, that's too much crap on top of the cancer crap and the typical life crap. It's all crappy sometimes. So bitch, moan, cry, scream, get it out. Keeping it in just doesn't work sometimes. It won't really help but at least your head won't explode. It's so hard to stay positive all the time. This is your safe place & we get it Sweetie. Eventually it will pass & you will be your own sweet self again. Hope you feel better soon. Hugs. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Another rant, sorry

Postby Delinda2 » Fri Apr 08, 2016 5:12 pm

Re: my letting it out advise

I saw my wonderful PCP for a routine minor problem recently. This was about a month after my dx of a new second primary cancer. She asked how that was going and I burst into tears. (The first time I have cried about this.) This amazing doctor let me cry and babble for over an hour and held me while I cried. When I apologized for taking up her time she said better to let it out here than have it manifest some other way. So from time to time we all need a good cry - doctor's orders!
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

Nik Colon

Re: Another rant, sorry

Postby Nik Colon » Fri Apr 08, 2016 8:54 pm

Thank you all for the replies.

Ron50, sorry to hear of your issues as well, hugs

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Another rant, sorry

Postby Ron50 » Sat Apr 09, 2016 7:01 am

same crap just a different disease and day Nik. We cancer survivors get a lot of practice. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

behconsult
Posts: 264
Joined: Fri Jul 04, 2014 4:53 pm

Re: Another rant, sorry

Postby behconsult » Sat Apr 09, 2016 8:43 am

Nik, I'm sorry you feel like you are getting hammered this week. Hopefully, the acute nasty stuff will pass soon. Hard to live a normal life when you are not feeling normal. Peace, to you Bob
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Another rant, sorry

Postby BeansMama » Sat Apr 09, 2016 9:44 am

Nik,

Sorry to hear you are having such a rough time. I hope you start feeling better soon! Will keep you in my thoughts and send healing vibes your way.

I keep telling the nurses at the hospital I frequent that they need to start some sort of rewards program for those of us that are frequent fliers... So far I haven't gotten very far with it :mrgreen:
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Nik Colon

Re: Another rant, sorry

Postby Nik Colon » Sat Apr 09, 2016 12:08 pm

Thanks everyone :)

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Cowgirl918
Posts: 326
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: Another rant, sorry

Postby Cowgirl918 » Sat Apr 09, 2016 6:38 pm

So sorry that you are going through this terrible time Nik. Sometimes when I read my "list of conditions" I think "Really? I can't have everything can I?" :shock:

I know you must feel the same way. When you are too tired to enjoy even the simple things it does get overwhelming. I can't even imagine losing your senses of smell and taste. Rant away and we will listen and many of us will join the rant. Hoping things are better soon.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery

Travelgirl
Posts: 123
Joined: Sun Dec 20, 2015 4:17 am
Facebook Username: Jac gar
Location: Florida

Re: Another rant, sorry

Postby Travelgirl » Sat Apr 09, 2016 9:55 pm

Hang in there Nik. I know exactly how your feeling.

My last four years has been the one thing after the other too. Plus with added infections and viruses too.

We all have those days, weeks and months it seems like.

I do hope your feeling better soon my friend..

Good Bless and I Will pray for you.
Travel Girl
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.

Nik Colon

Re: Another rant, sorry

Postby Nik Colon » Sun Apr 10, 2016 9:08 am

Thank you

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Another rant, sorry

Postby Frenchie's Wife » Sun Apr 10, 2016 4:18 pm

I hope you are feeling better my dear. I have been thinking about you lately. You can't seem to catch a break.
I feel your frustrations honey. We are on a similar journey.
The way you have persevered is amazing. I follow you on here whenever I can. I find you insightful.
All I can say is " Hang in there and cherish the good days because there will be good days ahead. Make them count. " (((HUGS)))
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Another rant, sorry

Postby WriterGirl1969 » Sun Apr 10, 2016 8:15 pm

Nik Colon wrote:Just tired of all this. If it's not one thing it's another.


Hey Nik.

I can't imagine the extreme suckiness of having to go through all of that crap at the same time. It's not fair. It's rotten. Plus the shear lack of sleep is probably wreaking havoc. Sleep deprivation can be the worst. Hard to stay positive when you're exhausted and feel like poop. Bleeding from your ear? Ugh! It almost sounds like a perforated ear drum. Wonder if maybe that's impacting your smell/taste, since sinus stuff is all connected to ears. Hopefully they can do something for you soon to at least let you be comfortable and sleep.

I'm so new here, I can't really say much that's helpful, but I'll say this. You inspire me. I see you reply to folks here, giving advice, information, comfort and laughter. Even the rant - it's nice to see that it's okay to let yourself feel crappy about everything once in a while. I can't say I'm happy that anyone has to be on this site. I wish no one did. Including you. Including me. But since we do have to be, I can say I'm glad to have gotten to meet you. My prayer list grows and grows, but everyone here gets priority. :) Ultimate playing of the cancer card. You are at the top of my list. I hope that God cradles you and gives you the peace that passes all understanding. And of course, I hope He kicks the butt of your illnesses. All of them. In the meantime, RANT AT WILL!!! :lol:

Hugs and prayers from me.

--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”


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