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How high can CEA go?

Posted: Tue Apr 05, 2016 9:49 pm
by Lund5505
I'm curious what is the highest CEA reading seen. Currently my CEA is at 3179 but I'm wondering how much higher it can go before my demise.

Thanks for the feedback

Re: How high can CEA go?

Posted: Tue Apr 05, 2016 10:02 pm
by Nik Colon
I found someone who claimed their cea was over 20,000. another over 7k, and a few saying over 6k. But this is just what I seen.

Here:
https://csn.cancer.org/node/171818

Re: How high can CEA go?

Posted: Tue Apr 05, 2016 10:21 pm
by Nik Colon
Oops

Re: How high can CEA go?

Posted: Tue Apr 05, 2016 11:58 pm
by wwroam
I found those high CEA numbers believable.
My SO was 18,000 at diagnosis. After 9 rounds it was 2400 when the onc. advised an Oxi break due to neuropathy. After 10 weeks without Oxi it had climbed to 8000. It is now steady at 14000. In that period of rise in CEA there has been no change in tumour size or numbers, so there is not necessarily a direct connection.

Re: How high can CEA go?

Posted: Wed Apr 06, 2016 11:28 am
by Lund5505
Thanks for the feedback. My CEA has always correlated very close with rising tumor volume. I was at 2600 at diagnosis then got down to 5 with folfox then back up to 1700 and down to 20 with folfiri. Since then we've tried xeloda and irinotecan and neither were doing any good so now I am just waiting and watching. My CEA came back yesterday at 3200 and it was 1200 a month ago. At this rate I'll be around 600 or more in a month. We know this is from mets covering approximately 80% of my liver.

I'm just frustrated and looking for some sort of sign as to when this is going to take a downward turn. I'm having a lot more fatigue and had to start a fentanyl patch to help with the pain.

I feel like I'm just waiting to die and this totally SUCKS

Sorry for the rant

Re: How high can CEA go?

Posted: Wed Apr 06, 2016 6:50 pm
by CLD
I'm sorry you are going through such a tough time right now. My thoughts are with you.

Re: How high can CEA go?

Posted: Thu Apr 07, 2016 8:25 am
by rivlinj
I was diagnosed a little over a year ago with Stage IV Colorectal Cancer. First CEA reading was 4880. Started Chemo immediately at Texas Oncology, Austin TX, every two weeks - Leucovorin, Avastin, Oxalipllatin and Folfox (portalbe pump) plus two anti nausea drugs. Now, after 21 Chemo rounds my CEA has come down steadily to 2.1 at the last reading. Now on sixth week of Chemo "holiday". Last scan was "clear" and will have scans quarterly, along with blood tests and flushing of the Chemo port. So far so good....feeling great except for Neuropathy in fingrs and feet. I can live with that.

Re: How high can CEA go?

Posted: Thu Apr 07, 2016 5:28 pm
by WriterGirl1969
Lund5505 wrote:I'm just frustrated and looking for some sort of sign as to when this is going to take a downward turn. I'm having a lot more fatigue and had to start a fentanyl patch to help with the pain.

I feel like I'm just waiting to die and this totally SUCKS

Sorry for the rant


Hi Lund5505.
I just wanted to reach out to you. Don't be sorry for your rant. We reserve that right. Not to mention, it's good to let it out. I just wondered whether you had seen a post by another user that sounded (at least to me) to be in a similar spot as you. Nothing was working, they told her to put affairs in order right before Christmas. Now she's in remission. I copied the link to that post below, but just wanted to pass on a word of hope to you. It sucks. For sure. Don't give up. When all else fails, rant away. Hugs and prayers sent your way from me.

viewtopic.php?f=1&t=53978&p=428641#p428641

Re: How high can CEA go?

Posted: Thu Apr 07, 2016 5:59 pm
by Nik Colon
Lund5505 wrote:Thanks for the feedback. My CEA has always correlated very close with rising tumor volume. I was at 2600 at diagnosis then got down to 5 with folfox then back up to 1700 and down to 20 with folfiri. Since then we've tried xeloda and irinotecan and neither were doing any good so now I am just waiting and watching. My CEA came back yesterday at 3200 and it was 1200 a month ago. At this rate I'll be around 600 or more in a month. We know this is from mets covering approximately 80% of my liver.

I'm just frustrated and looking for some sort of sign as to when this is going to take a downward turn. I'm having a lot more fatigue and had to start a fentanyl patch to help with the pain.

I feel like I'm just waiting to die and this totally SUCKS

Sorry for the rant

Are there any other suggestions, trials, etc? Just wondering if there is something else that may help. So sorry you are in this situation. Hugs and best wishes.