Hello again everyone. My onc asked me last week about my side effects of folfox6 round 8 and I told her that I am beginning to get neuropathy in my toes which just began. I have always had it in my hands but now happening in my feet. She lowered my dose of oxaliplatin last week and some other symptoms do not feel as bad such as the tightness and dull pain in my sides.but now she is saying if neuropathy gets worse she wants to pull it and just go with 5fu.
She said most patients typically can't handle the oxaliplatin after 8 rounds so they end of removing it. My concern is that I have already done 8 rounds of Folfox with it, and of she removes it how does it change my odds of survival or recurrence? I only have 4 more tx to go, but i certainly dont want neuropathy for the rest of my my life. I would love to hear from other long time survivors who have had a similar situation.