Postby NoFear32 » Sat Apr 09, 2016 1:16 pm
I had neuropathy issues from round 1 and made sure my onc was always aware of things that were getting worse, etc. My onc stopped my chemo (Oxi + Zeldoa) at round 8 because of the worsening neuropathy issues. He told me that the neuro symptoms would get worse about a month after stopping chemo before they got better (if ever). For me, this came true; I stopped chemo at the end of September, then symptoms became worse around December and stayed that way for about 2-3 months until I started noticing them improving. I am not 100% back to normal and don't expect I will ever be, but it is better than it was a couple of months again.
Neuropathy I am still experiencing: numbness/tingling bottoms of my feet (can't stand to wear sandals or walk around barefoot!), joint soreness in my knuckles and knees, cold sensitivity in hands, and extreme fatigue after doing something vigorous.
32 yo,Wife & Mom, ages 9 & 3
4/17/15: Colonoscopy = 6cm in sigmoid + 6 polyps
4/24/15: Colectomy (no illeo)
4/27/15: Diagnosed Stage 3b CC, 2/55 lymph nodes
May2015: Genetic testing, no Lynch, FAP, Gardners
6/1/15: Started FOLFOX - BAD reaction to 5FU, switched rounds 3-8 to combo of XELODA + OXI via IV.
9/24/15: Round 8 and done with chemo!
Nov2015: First CT scan, X-rays, blood = NED
Jan2016: Bloodwork = NED
Next up: Colonoscopy & Endoscopy, more CT scans, etc