Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Maia
Posts: 2436
Joined: Fri Aug 24, 2012 8:00 am

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Postby Maia » Sat Aug 12, 2017 6:34 pm

Roscoe, I of course wish you wouldn't be going through all this but... what a great 'team' you have formed with Dr Yang. I love that you found this out of the box strategy. Keep going!! I'd dare to suggest you might want to explore immunotherapy, in trials or off label, if you can --might be the 'something' that this very precise radiation is missing to give you hopefully durable responses.
Best to you.

justin case
Posts: 4184
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Postby justin case » Mon Aug 14, 2017 5:14 pm

Roscoe Douglas wrote:Roscoe Douglas,
roscoe@firstbenefits.com

I was diagnosed with Stage 4 colon cancer at age 67. The treatment offered was Chemo only. The Liver mets were supposed to kill me in 6 months without chemo. I refused Chemo and started on the Budwig diet.

When I first learned about proton therapy in Nov 2015, I called most of the Proton centers on the east coast, and they would not treat liver metastasis. Dr Yang at Loma Linda accepted me as a patient, and in Dec 2015 after 3 days of treatment on each tumor, the liver tumors were gone.

My colon tumor was removed robotically by Dr Conforti in Jan 2016 in Macon Ga,

In Feb 2016, a tumor around the aorta was treated with Proton therapy.

Proton treatment on 7 tumors began on August 15th and continued until Sept 28th 2016. One aorta tumor and 6 lung tumors.

In Nov 2016 Dr Yang found 20 more lung tumors and told me that I should get my affairs in order, that he felt that I had less than 6 months to live. He scheduled a follow up visit for Mar 2017 if I was able to fly.

I felt fine, and on Feb 18 2017, I had a Poppy 69 + Lola 1 = 70 birthday party. Lola is my youngest granddaughter who was born on my birthday Feb19th, 2016. I organized a walk run, and completed my 140th marathon that day.

Feb and March 2017, I returned to Loma Linda and Dr Yang treated 5 more lung tumors.

Returned to Loma Linda Aug 1st, and Dr Yang is treating 9 more lung tumors with Proton therapy. He grouped the tumors into groups of 5, 2 and 2. He is doing treatments for 10 minutes per day for 3 days on each group. I have at least 2 more lung tumors that he will treat in Feb 2018, may be more if others have grown by then.

I continue to do the Budwig diet, and take several vitamins and drink Pomegranate juice each day.

I believe that friends and family praying for me has been a big factor in my survival so far. I lot of people have asked me how I can have a positive attitude with terminal cancer. The answer is that I am not afraid to die. I know Jesus, and as a Christian, death is just a Change Of Address.

I spent the last 5 years of survival putting affairs in order. I'm with you on that one brother, death is just a change of address, although I hate moving with a passion ! I'm not stage four, although your metaphor will live with me for the rest of what Jesus leads me to ?
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

User avatar
chrissyrice
Posts: 1150
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Postby chrissyrice » Mon Aug 14, 2017 8:55 pm

What would be the process I should do in order to be referred from Emory in Atlanta to MD Anderson for proton therapy?

Emory Winship will not have their new machine in operation until late 2018.

I have been dx with another recurrence to my para aortic verge involves 50% of the iliac artery again.
Also mri shows that I have concerning brain lesions.

Emory is not wanting to operate as in 2015...they can only offer Xeloda and radiation therapy 5 days a week for 25 to 30 treatments.

I am not comfortable with the plan and I know that proton therapy would be a much better outcome.

My QOL has been good and I am MSS and Wild Type KRAS, NRAS,and BRAF too.

I am able to travel and your post has given me back hope...otherwise I am game over.

Thanks,
Chrissy
Dx 10-31-09 Surgery 12-1-09 Sigmoid Colon Stage IIIb; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU & Leucovorin;12-16-2010 PET/CT Scan Cancer Free;7-05-2012 CT Scan NED 2 years;10-13-2013 NED 3 yrs; 08-01-2014 NED 4 yrs; 06-30-2015 Stage 4 iliac lymph node(s) 08-11-2015 Surgery 3 cm tumor and iliac artery graft done. Positive margins in the abdominal aorta, No chemo. 03-16-2016 CT Scan Stable,06-16-2016 CT Scan Stable,09-21-2016 CT Scan Stable,12-2016 Stable,03-31-17 Stable,
Recurrence 6-30-17

User avatar
mypinkheaven
Posts: 416
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Postby mypinkheaven » Tue Aug 15, 2017 1:28 pm

chrissyrice wrote:What would be the process I should do in order to be referred from Emory in Atlanta to MD Anderson for proton therapy?

Emory Winship will not have their new machine in operation until late 2018.

I have been dx with another recurrence to my para aortic verge involves 50% of the iliac artery again.
Also mri shows that I have concerning brain lesions.

Emory is not wanting to operate as in 2015...they can only offer Xeloda and radiation therapy 5 days a week for 25 to 30 treatments.

I am not comfortable with the plan and I know that proton therapy would be a much better outcome.

My QOL has been good and I am MSS and Wild Type KRAS, NRAS,and BRAF too.

I am able to travel and your post has given me back hope...otherwise I am game over.

Thanks,
Chrissy


Chrissy, Get your records from Emory - CT scan discs included, MRI images. Then call MD Anderson:
https://www.mdanderson.org/patients-fam ... enter.html

Is Emory offering SBRT (more precise, but not as precise as proton or IMRT which does more surrounding damage to healthy tissue?
MSS, KRAS Wild
9/2012 Colon Cancer IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Metastasis to uterus. Hysterectomy
2/16 Pelvic radiation - 25, brachytherapy - 3.
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules less than 5 mm.
8/16 CT Nodules still present. Most stable. Some growth
10/16 CT Same ^. Onc recommends no tx :evil:
11/16 Transfer to UCSD Moores Cancer Center
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus

Roscoe Douglas
Posts: 6
Joined: Sun Apr 03, 2016 8:17 am
Facebook Username: Roscoe J Douglas

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

Postby Roscoe Douglas » Sun Aug 20, 2017 12:12 pm

Roscoe Douglas,
roscoe@firstbenefits.com

Update: I was diagnosed with Stage 4 colon cancer at age 67. The treatment offered was Chemotherapy only. The Liver mets were supposed to kill me in 6 months without chemo. I refused Chemo and started on the Budwig diet, a restrictive diet that involves eating a mixture of flax seed oil and cottage daily.
When I first learned about proton therapy in Nov 2015, I called most of the Proton centers on the east coast, and they would not treat liver metastasis. I found Dr Yang at Loma Linda on the internet, and he accepted me as a patient.

Dec 2015 I received 3 days of treatment on each tumor. A PET scan 3 weeks later showed the liver tumors were no longer cancerous and almost gone.
In Jan 2016, my colon tumor was removed robotically by Dr Conforti in Macon Ga,
In Feb 2016, a tumor around the aorta was treated by Dr Yang with Proton therapy.
From August 15th until Sept 28th 2016. One aorta tumor and 6 lung tumors were treated with Proton.
In Nov 2016 Dr Yang found 20 more lung tumors and told me that I should get my affairs in order, that he felt that I had less than 6 months to live. He scheduled a follow up visit for Mar 2017 if I was able to fly. He thought all 20 would grow at the same time and kill me.
I felt fine, and on Feb 18 2017, I had a Poppy 69 + Lola 1 = 70 birthday party. Lola is my youngest granddaughter who was born on my birthday Feb 19th, 2016. I organized a walk run, and completed my 140th marathon that day.
Feb and March 2017, I returned to Loma Linda and Dr Yang treated 5 more lung tumors. The other 15 had not grown.
On Aug 1st 2017, I Returned to Loma Linda and Dr Yang treated 9 more lung tumors with Proton therapy. He grouped the tumors into groups of 5, 2 and 2. The treatment was about 5 minutes per day for 3 days on each group.

I have at least 2 more lung tumors that he will treat in Feb 2018, and it may be more if others have grown by then.
I continue to do the Budwig diet, and take several vitamins and drink Pomegranate juice each day.
I believe that friends and family praying for me has been a big factor in my survival so far. I lot of people have asked me how I can have a positive attitude with terminal cancer. The answer is that I am not afraid to die. I know Jesus, and as a Christian, death is just a Change Of Address.

I would encourage anyone who is diagnosed with cancer to not rush into treatment immediately. Take time to consider all the treatment options. Doctors will usually only recommend treatment that is available locally. In the case of Metastatic cancer, that is usually Chemo Therapy. There may be other options, and in some cases, where there are other factors, an option could be to do nothing. I found Proton Therapy by continuing to research options after just changing my diet for 8 months. As of now, I have no side effects, and have a normal energy level. Does that mean that I have beat the cancer? No, but I have had a good quality of life for 2 1/2 years when I was supposed to have died in 6 months.

Remember, you did not get cancer yesterday. You may have found out yesterday that you have cancer, but it is not new. It will probably not kill you tomorrow unless you worry yourself to death. Calm down, pray for peace and you decide what treatment you want.

You can read more about Dr Yang and Loma Linda at
www.protons.com


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Aqx99, Bing [Bot], cmrl, rachel2017, Yahoo [Bot] and 40 guests