five years out and NED from llbT4a

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Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

five years out and NED from llbT4a

Postby Deb m » Fri Apr 01, 2016 6:42 pm

Just got back from MD Anderson and all the scans and blood work were good. This was our five year check, so the oncologist at MDA told us that we no longer need any ct scans and that he considers my husband cured. We will continue to get a colonoscopy every three years. After being told at the beginning he was a t4 ( wall perforation) I wondered if we would ever get to this point. Many thanks to the encouragement and information given to us from you all.

Continuing to pray for everybody on this board including the caregivers!

deb m

SurvivorsSpouse
Posts: 88
Joined: Sun Nov 22, 2015 12:38 pm

Re: five years out and NED from llbT4a

Postby SurvivorsSpouse » Fri Apr 01, 2016 8:33 pm

Great news!

Almost there with my wife from Stage 2a T3

Felicitym23
Posts: 32
Joined: Sun Jan 24, 2016 2:37 am
Facebook Username: Felicity Malyszko

Re: five years out and NED from llbT4a

Postby Felicitym23 » Fri Apr 01, 2016 10:57 pm

Awesome news. Go live life to the fullest.
47yrs and mother to a 12 year child with autism
Cancer confirmed 9/23/15
Ext right hemicolectomy 10/13/15
35 Lymph nodes & 6 cancer told Stage 3C.
Nov 15 Oxy, Leucovorin, Flurourcil
CT and PET Scan told that cancer was now in abdo & neck lymph nodes.
STAGE 4 told two days before Christmas 2015.
Oxy, Leucovorin, Flurourcil & Panitumumab
MARCH 2016 NED - currently in remission. Stage 4.
After 3 sessions of Vectibux.
PET & CT SCAN July 16 - Still NED but still on chemo and Vectibix.

Nik Colon

Re: five years out and NED from llbT4a

Postby Nik Colon » Sat Apr 02, 2016 11:20 am

Awesome!

pantufla
Posts: 134
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: five years out and NED from llbT4a

Postby pantufla » Sat Apr 02, 2016 11:52 am

WOW!! Fantastic!!
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm.
June 2019: NED.

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: five years out and NED from llbT4a

Postby Ajane » Sat Apr 02, 2016 12:06 pm

Thank you for taking the time to share your encouraging news! Congratulations!
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: five years out and NED from llbT4a

Postby AnnClare » Sat Apr 02, 2016 12:56 pm

This is such wonderful news! Thank you for sharing.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

DarknessEmbraced
Posts: 3524
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: five years out and NED from llbT4a

Postby DarknessEmbraced » Sat Apr 02, 2016 1:05 pm

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

Re: five years out and NED from llbT4a

Postby macpudd » Sat Apr 02, 2016 1:40 pm

Thats brilliant news, congratulations :D
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Re: five years out and NED from llbT4a

Postby Buckeye » Sat Apr 02, 2016 9:45 pm

Congratulations!
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: five years out and NED from llbT4a

Postby Deb m » Mon Apr 04, 2016 1:50 pm

Thanks everybody!

deb m

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: five years out and NED from llbT4a

Postby NZJay » Mon Apr 04, 2016 2:12 pm

Huge congratulations :)
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection


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