lymph nodes mets

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bluebird
Posts: 7
Joined: Sat Feb 20, 2016 4:23 pm

lymph nodes mets

Postby bluebird » Thu Mar 31, 2016 9:05 am

Hello,

one question, if chemotherapy is working, is it possible that lymph nodes mets will disappear?

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: lymph nodes mets

Postby jhocno197 » Thu Mar 31, 2016 11:56 am

Yes, it's possible.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: lymph nodes mets

Postby Willow.NZ » Sat Apr 02, 2016 4:02 am

We hoping next scan for my Dad will show lymph nodes normal. My Dad had extensive spread from abdo-neck lymph nodes. At diagnosis he was estimated as 12-18 months to live. His response was amazing. One of his nodes measured 20mm & after few rounds of chemo it had shrunk to 5mm. He did 40 cycles of chemo & there was no sign of cancer in last scan. He has been off chemo for a few weeks, due for scan this month which will be 3 months no chemo so will be a biggie to see if lymph nodes still ok. He is feeling great & really hope he has truely kicked cancers butt.
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

Felicitym23
Posts: 32
Joined: Sun Jan 24, 2016 2:37 am
Facebook Username: Felicity Malyszko

Re: lymph nodes mets

Postby Felicitym23 » Sat Apr 02, 2016 7:55 pm

I also had mets to my abdo-neck lymph nodes like the previous post.

I started on Immune therapy with chemo and after 3 sessions I am NED.

I am still on chemo at this stage and should soon be going to maintenance chemo.

I truly hope it never comes back. I feel awesome on my good days and I want more of that and living life again.
47yrs and mother to a 12 year child with autism
Cancer confirmed 9/23/15
Ext right hemicolectomy 10/13/15
35 Lymph nodes & 6 cancer told Stage 3C.
Nov 15 Oxy, Leucovorin, Flurourcil
CT and PET Scan told that cancer was now in abdo & neck lymph nodes.
STAGE 4 told two days before Christmas 2015.
Oxy, Leucovorin, Flurourcil & Panitumumab
MARCH 2016 NED - currently in remission. Stage 4.
After 3 sessions of Vectibux.
PET & CT SCAN July 16 - Still NED but still on chemo and Vectibix.

User avatar
Shân
Posts: 14
Joined: Wed Sep 30, 2015 6:50 pm
Location: Old Greenwich CT

Re: lymph nodes mets

Postby Shân » Sun Apr 03, 2016 8:55 am

Fabulous news Felicitym23, so delighted to hear.

I am in the same place (but have rising CEA concerns).

Praying for you that NED will last forever.

Shân
Dx 3/14. Stage 111b. Aged 51 Mother of 4
3/14 Sigmoidectomy (6 positve lymph nodes out of 15)
12 rounds of oxaliplaton, 5 F-U and leucovorin
9/14 PEP scan tumor in superaclavicular lymph node
Stage IV
10/14 Radiation,
1/15 PEP activity in the lymph nodes in abdomen.
12 rounds irinotecan and avastin
4/15 NED
9/15 PEP activity in the lymph nodes in sternum
10/15 Radiation SBRT
1/16 PEP activity in another 2 superaclavicular lymph nodes
2/16 irinotecan and avastin
3/16 NED but CEA 6.1

Felicitym23
Posts: 32
Joined: Sun Jan 24, 2016 2:37 am
Facebook Username: Felicity Malyszko

Re: lymph nodes mets

Postby Felicitym23 » Sun Apr 03, 2016 9:31 pm

Shan I hope the numbers come down.

My oncolgyist is not too concerned about my CEA levels because he said colon cancer can't always be predicted by those numbers. They are too unreliable.

Good luck my friend. Its hard not being in control of this journey.
47yrs and mother to a 12 year child with autism
Cancer confirmed 9/23/15
Ext right hemicolectomy 10/13/15
35 Lymph nodes & 6 cancer told Stage 3C.
Nov 15 Oxy, Leucovorin, Flurourcil
CT and PET Scan told that cancer was now in abdo & neck lymph nodes.
STAGE 4 told two days before Christmas 2015.
Oxy, Leucovorin, Flurourcil & Panitumumab
MARCH 2016 NED - currently in remission. Stage 4.
After 3 sessions of Vectibux.
PET & CT SCAN July 16 - Still NED but still on chemo and Vectibix.

bluebird
Posts: 7
Joined: Sat Feb 20, 2016 4:23 pm

Re: lymph nodes mets

Postby bluebird » Mon Apr 04, 2016 4:22 am

Thanks all!

rp1954
Posts: 1526
Joined: Mon Jun 13, 2011 1:13 am

Re: lymph nodes mets

Postby rp1954 » Sun Jul 17, 2016 6:55 am

We've tracked both CEA and CA199 with daily chemo for over six years, intensified with milder drugs (e.g. celecoxib, cimetidine) and specialized supplements to keep the lymph nodes suppressed at small sizes. When 5FU levels or the other items get too low, the CEA and/or CA199 go up fast! So we track those markers and others more frequently than most here, 3 weeks, to 2 months recently, still on uninterrupted chemo. We now live over an hour's drive further away from the lab tech's collection route and that stretches the bloodwork frequency.

Daily chemo with mild drugs and immune building supplements doesn't whack out the blood work like Folfox/Folfiri and still seems to clear some nodes or mets over time. Elevated CA199 levels are clues to whether cimetdine with 5FU helps.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C


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